my employee uses a wheelchair … but I found out he doesn’t really need one by Alison Green on February 21, 2018 A reader writes: I’m a manager in charge of a division at my company. “Drew,” one of the people I manage, uses a wheelchair. When first hired, Drew was told to ask if any accommodation was needed. He has never asked for any. Our area is on the first floor of our building. Our building has elevators and all the doorways are wide enough for his wheelchair. When Drew first began working here, he used public transit. There is a bus stop a few feet outside our front door. Now Drew has a car with hand controls and no one else parks in the space closest to the door. The space has been reserved for him. Drew has mentioned being a paraplegic but to my knowledge has not elaborated or said anything about how and when it happened. Drew is outgoing and popular, gets along with everyone, and is one of those people who has the gift of being able to talk to anyone. He has an active life and participates in many clubs and athletics. Drew’s work has always been good and I have never had a problem with him or anything he has done. Why I am writing in to you: Not long ago, I saw a short film online about people who believe they are disabled but are actually not. Drew was in it. He is not a paraplegic and does not need a wheelchair. In the film, Drew walks and is clear that he is not paralyzed and has no actual need for a wheelchair but uses it because he feels as though he was meant to be a paraplegic. It is for sure Drew and it was recently made. At least one of the other people I manage has also seen it. She discreetly came to my office and mentioned it to me. I’m not sure if I can or should do anything. This doesn’t affect our work, and Drew has never asked for any accommodation and hasn’t tried to defraud anyone out of money, gifts, or anything else. He does not constantly mention being paralyzed or the chair and barely talks about it. I think the lie is abhorrent and awful, but because it is his personal life I am not even sure if I can do anything. I normally would never say anything about the private lives of the people I manage, but Drew comes to work in the chair and uses it full-time and does mention being paralyzed. I am concerned the company may look bad if anyone finds out and says something. Is this even something I can talk to Drew about? Well, this is sticky. Here’s where I ultimately end up, and I’ll say up-front that I’m a little out of my depth here so ultimately I’m going to recommend that you consult with someone who isn’t. But based on a quick Google search, it seems plausible that Drew does have a medical condition — just a different one than you thought. Apparently there’s something called body integrity identity disorder that can cause this. Given that it’s reasonably likely that there’s a mental health disorder at play here, and given that it doesn’t sound like it’s impacting anyone’s work, I’d leave it alone. Yes, Drew is getting a parking space that he might not be entitled to, but it sounds like that might just be an accommodation for a different condition than the one you thought it was for. If other employees ask you about it, you can say something like, “I want to respect other people’s privacy when it comes to medical issues, but we’ll always try to accommodate people based on what they tell us they need, if we can.” (Of course, if you say that, it needs to be true — you can’t say that and then turn around and make someone provide reams of medical paperwork to get a chair they can comfortably sit in, or so forth.) But I do think you need to make your HR team aware of the situation — not in a “we must act on this” way, but in a “this seems like something you should be aware of in case I should be handling it differently, or in case it comes up in the future” way. I tend to recommend heading to HR less frequently than many people do, but you do need to keep them in the loop on anything that raises questions about accommodations or disability protections. And in this case, they should be able to help guide you — or consult with lawyers who can, if they think that’s needed. I think you’re thinking “I’m his manager so I have to figure out how to handle this,” but this is outside of the typical management stuff that you should handle on your own. Read an update to this letter here. You may also like:when does an employer need to make accommodations for a disability?my employee has hypochondria and is annoying all his coworkersshould we contact an employee's wife about our concerns for his health? { 1,066 comments }
rosenstock* February 21, 2018 at 11:04 am whoa. definitely agree with Alison who gave great advice as usual. if i were the OP i guess my biggest fear would be another employee finding out/seeing the doc and handling it less well than the 1st employee who saw it. like spreading it around the office or something. not sure how i personally would handle that :\
Fortitude Jones* February 21, 2018 at 11:11 am Yeah, I wouldn’t touch this either. Mental health issues are tricky, and if the illness isn’t negatively impacting his performance, then there’s not really much the manager can do. Alison’s advice to loop in HR is a good one because if the company ends up hiring someone who legitimately needs his parking space, I do think they’ll need to ask him to move, but again, that would be a very tricky conversation to have.
Amy S* February 21, 2018 at 2:58 pm Or they could just designate a new spot as an additional handicap parking spot :)
fposte* February 21, 2018 at 11:11 am Yes, I think this is a valid concern. There are definitely people of the “let’s see how paralyzed he is if the fire alarm goes off” school.
Emma the Strange* February 21, 2018 at 12:32 pm Or even worse, something like the “I think he’s faking” scene from the Big Lebowski.
Princess Consuela Banana Hammock* February 21, 2018 at 11:23 am I’ve seen folks with this condition, and it can absolutely be a medical condition (I.e., a mental health condition with psychosomatic effects). I don’t think OP should probe the issue, but it could make sense to ask Drew how he’s like OP to address any concerns from coworkers who see the doc. Of course, OP shouldn’t armchair diagnose Drew, but I think it may be reasonable, after speaking with Drew, to help reframe the issue for coworkers so that they don’t incorrectly perceive Drew to be “gaming” the system.
Anonymoose* February 21, 2018 at 7:22 pm I agree with this. My first stance was DO NOT TOUCH IT/do no harm, etc. But I think since he’s gone public with his disorder I think it would behoove both the LW and Drew to come to terms of how to communicate his needs SHOULD it ever come up.
G* February 22, 2018 at 7:20 am I have heard of people having something like this. In one documentary I saw, a woman tried to get surgery to make herself paraplegic and I’ve heard of people trying to perform self amputations.
Reya* February 21, 2018 at 11:26 am If I were the OP, I’d be tempted to take Drew aside and let him know that I’d seen the film. “Drew, I wanted to let you know that I’d seen [XXX]. I want to assure you that as far as I and the business are concerned this makes no difference to your employment here and your use of the chair, but as this is something that’s now in the public domain I wanted to give you a heads-up in case any of your co-workers bring it up. You are under no obligation to discuss your personal life and medical history with anyone, but is there anything you’d like me to say should anyone raise the subject with me?”
Grad Student* February 21, 2018 at 11:28 am I really like this script! (With the caveat that this whole issue is way out of my wheelhouse)
katydid* February 21, 2018 at 12:01 pm Great approach. I think it’s also worth noting that Drew participated in the making of the documentary and therefore had to have some expectation that it would get into the public sphere and possibly be viewed by people who know him. It should not surprise him that people see it.
Millennial Lawyer* February 21, 2018 at 12:15 pm I would discuss with HR and counsel before saying this. I think it’s a great script but you don’t want to be in a situation where it turns out what you are saying is not true. Anything you say should be backed up by HR and counsel before you make a go of it on your own.
Another Human* February 21, 2018 at 12:38 pm It might seem the perfect way to discuss this, but I’d still go over it with HR, first. I’d want to know if there were any potential legal hurdles to saying ANYTHING to this guy.
pinyata* February 21, 2018 at 1:11 pm I disagree! I’m not sure there’s any reason to mention anything to Drew. He believes he needs this chair. To me, it makes sense for OP to speak to other employees, using the script Alison provided above, and not to Drew directly about the film. I’m speaking from the perspective of someone who has some family experience with this. The fact that Drew appears in this documentary able to walk and seems (I think?) to be aware of the disconnect between his ability to walk and use of a wheelchair changes things a little bit from my experience but I’m not sure speaking to Drew in this way would do anything besides feel like a “gotcha” confrontation. Even if it’s presented in this very accepting and understanding script.
Zillah* February 21, 2018 at 1:37 pm I agree, especially since he’s presumably aware the documentary exists. What would the OP be telling him that he doesn’t already know?
Perse's Mom* February 21, 2018 at 6:26 pm It’s not a ‘gotcha’ because the script is specifically telling him (assuming HR signs off on it) that yes, the company is aware BUT they’re *supportive* of him. They’re alerting him to the fact that if two employees saw the film, it’s very possible other employees have seen or will see it. That allows him to prepare his own scripts or decide if or how to address it if or when it comes up rather than being blind-sided by it if or when it’s raised by another coworker (who may not be as compassionate).
Suzy Q* February 21, 2018 at 2:18 pm I have to wonder how the OP found the film. It’s an odd subject.
Jesca* February 21, 2018 at 2:30 pm There are streaming channels that play all kinds of documentaries. I too sometimes watch docs like this just to know about it. But it must be front and center somewhere that two people in the office have watched it.
LeRainDrop* February 21, 2018 at 2:42 pm I actually came across a short segment on this exact subject sometime within the last few months. I can’t even remember when or where, but I recall it as like a 5-minute clip on a news program, possibly. I don’t even have cable, so it must have been at someone else’s home or on an airplane, or possibly someone linked to it on Facebook.
Frank Doyle* February 21, 2018 at 7:04 pm There’s a documentary on Netflix about composting, and a former co-worker of mine happens to be in it. (Our profession doesn’t have anything to do with composting or farming.) It’s a small world, that’s all. Are you implying that something nefarious is going on?
Penny Lane* February 21, 2018 at 7:13 pm People stumble across all kinds of documentaries and YouTube clips.
Ego Chamber* February 21, 2018 at 7:19 pm The letter seems to put the timeline backwards, but it sounds to me like OP was alerted to the documentary by the other coworker who saw it.
Stacy* February 21, 2018 at 3:28 pm Yes, Reya’s script is perfect! I have a couple of invisible physical illnesses, and many folks with either or both of those do use wheelchairs. Some all of the time, some part of the time, some of us none of the time *yet*, and you cannot tell by looking at any of us how sick we are at any given moment. Well, unless you find me laying down on the floor in the grocery store because my BP just dropped and my heart rate can’t compensate quickly enough, and I need to get down to the ground before I pass out and gravity takes care of it for me. You might notice then. Or you might just think I’m super-weird and like to lay down in the grocery store aisle. Many folks who have handicapped parking permits and/or use wheelchairs some of the time but not all of the time have had horrid interactions with folks who think because you *look* fine that you *are* fine, and have pointed to this film as part of what they see as evidence that makes it that much harder to us to exist out in the world because we look like we are “faking” also. Many of the rest of us are fearful that we will need mobility devices and visible disability accommodations in the future, and then will run into the same issues. So pretty much all of us have, at least at one point or another, done things that can dangerous for us to avoid a potential altercation with a stranger on a day when our bodies are already being extra challenging. Because when your body uses 3 times as much energy as most people’s just standing up and you have to go grocery shopping, you don’t have the energy to also argue with a stranger about how you look perfectly fine so you have no business using that handicapped parking space so you don’t have to walk all the way across the parking lot, wearing yourself out before you even get inside the store. Or you stood up from your chair to grab something off the shelf, so obviously you’re faking needing that wheelchair. I hope that if/when I get to that point myself of needing to regularly use mobility devices, or need workplace accommodations that my employer/supervisor will react in exactly the way that Reya suggests! TL;DR I totally get why this is frustrating for people, and that it seems like Drew is faking. The truth is it seems like he does have a health condition that causes him to need to make use of a wheelchair as a mobility device at this point in time, just not a physical one.
MM* February 21, 2018 at 4:59 pm Glad you were here to say this! When I first started reading the letter I was really worried that this was a case of “Drew is capable of walking a few steps, so he must not be disabled or need the chair,” which I know is a common misconception. I was relieved to see that it appears that he frames his own case, in the doc, as being more of a mental thing than anything else, and so it wasn’t the LW making that assumption, but the potential repercussions are potentially really sticky for this company’s future with disabled employees. I’m glad it seems like the LW hasn’t jumped to any major conclusions.
Stacy* February 21, 2018 at 5:15 pm Yeah, it’s tricky. And I’m not sure if I phrased it perfectly either, because the physiology is complicated. Someone’s brain perceiving something different than what the rest of us can see…I mean, it is physical too, just not in the way we might expect as outsiders. It’s easy to kind of use language short hand an…I don’t know, it can be a heated issue, and it’s so easy to oversimplify, so I hope I’m not doing that! (I feel a little out of my depth here trying to find language for what I’m trying to say while also being aware it is a sensitive subject)
Safetykats* February 22, 2018 at 12:41 am Whether Drew is “faking,” or whether he has a mental illness, it’s unclear whether the appropriate accommodation is to allow him to, for example, have preferential use of the disabled stall in the restroom. What happens if another employee has an actual, physical need for that? Is someone who actually cannot walk into a normal-width stall meant to wait while someone who can uses the wider stall? It seems like this “works” only as long as there is no other employee with a physical disability – at which point it becomes a real problem.
IForgetWhatNameIUsedBefore* February 22, 2018 at 2:19 am The disabled stall in the restroom is not actually reserved for disabled people only. Anyone can use it, at any time. A disabled person might have to wait anyway.
Anna* February 22, 2018 at 12:31 pm The idea is that if the stall is available and a person with a disability is in line, they would get to use that stall rather than having to wait for it, not that they’d have to wait in line until everyone gets to pee using the stall with accommodations. If it’s in use, they wait until it’s available and then get to use it.
Elizabeth West* February 22, 2018 at 5:32 pm True–what if there were two disabled people who both needed it? One would still have to wait.
sap* February 23, 2018 at 3:05 am Yeah. Disabled people have waited in line to pee, too. It is not an abnormal experience (how do you think disabled people who hang out together use the restroom? We wait for the first user to be done, like anyone else?)
CB* March 3, 2018 at 1:10 am Wheelchair user here. I sincerely hope that able-bodied people (and disabled people who are not wheelchair users or in need of the extra space for some reason) refrain from using the largest stall. If you have a disability that makes you need to use the bathroom urgently (not uncommon) and can only use one stall, there is little more infuriating than waiting agonizingly outside or peeing yourself because someone else wanted to stretch out. The wheelchair stall gets so much traffic that it is often out of order, not lockable, emptied of toilet paper, and/or generally trashed by the time I get in, and for many wheelchair users, it is not an option to use any other stall. I didn’t know this or think about it before I was a wheelchair user myself, and I don’t think it’s a capital offense to use it. But when it comes up, I do tell people this. They really ought to label them somehow as a reminder.
Reya* February 22, 2018 at 10:29 am I think this is a complete non-issue. Businesses do, on occasion, employ more than one disabled person, in which case there will have been times when one of them has to wait for use of the disabled stall. I’m sure they manage it. I highly doubt anyone is ranking different disabilities to ensure preferential use of the disabled stall goes to the ‘most disabled’ person and so one. Because that would be absurd. The same with the discussion around the parking spot. If the business employs a second wheelchair user I imagine they will designate a second parking spot as well. Who knows, given that Drew does not appear to be a total asshole he might even voluntarily give up the closest spot in favour of another person if it was plain they needed it. Disability is not a zero-sum game.
Rachel - HR* February 21, 2018 at 5:54 pm I disagree. Working in HR, I would advise the manager not to approach it with the employee. What if the documentary was about the employee having an eating disorder? Or being blind in one eye? You would never be advised to bring it up willy nilly to the employee just to let them know you know. You’re getting confused by the fact that this is a unique situation and losing focus on how you would handle any other illness that you discovered without the employee’s knowledge.
Say what, now?* February 22, 2018 at 10:18 am How would you handle the situation if the rest of the office saw it? I feel like it’s good for the employee to know that he has someone in his corner because this is such a unique issue.
Anion* February 22, 2018 at 8:30 pm I dunno, I think the employee did the documentary willingly, and he must have some idea that people who know him might see it at some point. It’s up to him to decide how to handle it if people approach him about it, and if he feels there’s an issue he can approach the OP then. I certainly wouldn’t mention it to anyone else in the office (outside of HR), whether as a heads-up-be-nice or anything else.
Sketchee* February 21, 2018 at 12:37 pm Yes my initial reaction matches Allison as well. I can understand the LW’s initial shock and surprise. It’s a mental health disorder and accommodating it if it’s not impacting his work makes sense. The case is that he’s not intentionally being deceptive, he does in fact have a condition that prevents him from walking.
Notarealgreendressthatscruel* February 21, 2018 at 11:04 am Having a wheelchair is not an ‘easier’ way to get around. It is just a way to get around. There is no advantage or ‘fun’ being had by Drew in his use of a wheelchair.
Specialk9* February 21, 2018 at 1:05 pm My read was that the OP doesn’t, but is worried that other people will think he’s gaming the system. Which, realistically, some people love to find ways to feel slighted by things that have nothing to do with them, and some people love to gossip — and those two groups overlap considerably. OP, I hope you can find compassion in your heart for this guy – the stuff in his head must be really hard to deal with, and he’s worked hard not to put that on you all. Please try hard to reframe this situation that way, instead of this Grand Lie he’s perpetuating. You know from the video that is not this guy’s motivation. Whatever is going on, that’s a hard road and I’m thankful it’s not mine, and willing to extend compassion.
Jesca* February 21, 2018 at 2:32 pm “some people love to find ways to feel slighted by things that have nothing to do with them, and some people love to gossip — and those two groups overlap considerably.” Isn’t that the truth!
Myrin* February 21, 2018 at 11:09 am I’m not sure what you’re referring to – as far as I can see, neither the OP nor Alison mentioned anything in that regard?
Penny Lane* February 21, 2018 at 11:16 am No one even remotely implied that there was any advantage or fun being had by Drew in his use of a wheelchair or that he was “getting away with murder”, not sure why you are going there? But in a world of limited resources, I can certainly sympathize with the LW that, for example, you’d want to make sure handicapped parking spots were only being used by people who had legitimate disabilities, and not people who felt that they “should” have a disability.
fposte* February 21, 2018 at 11:16 am I don’t know that it’s to the OP, but there are certainly people who believe that being disabled confers perks and that therefore people fake it. But, as Notareal notes, this is somebody who is doing the heavy work of using a wheelchair all work day every work day, and the only apparent advantage he’s receiving is a closer parking spot. I think even in places with parking crunches, the mere fact of using a wheelchair, regardless of the reason, is enough of a hardship that I wouldn’t bedgrudge you that perk.
Elfie* February 21, 2018 at 11:22 am Yes, I can second this. My husband is disabled, and when he was working he requested a larger monitor (because he can’t see very well), and a Dictaphone (because he can’t hear very well and tends to miss what’s said in meetings). Especially with regards to the larger monitor, this was seen by his (bully of a) manager as a huge perk, that he (the manager) couldn’t get, so why should my husband?!!! FFS, I wish people would learn to properly empathise – would you rather have a closer parking space guaranteed, or be able to walk from further away at a normal pace, in no pain, and not have to take half a day to recover from the effort?!!
sunny-dee* February 21, 2018 at 11:37 am Well, I think that’s the thing, though — your husband has a need and only the worst of jerks could fail to see that. But Drew can walk from further away at a normal pace without pain, he isn’t exhausted and having to recover. He doesn’t have any physical ailments at all. It feels weird and creepy to give someone the accommodation which should really only go to someone who needs it. I mean … he’s physically fine. If I were in a wheelchair myself and found out he was fine, I’d be really upset. It’s not a game or an affectation, and that’s kind of how he’s treating it.
LawBee* February 21, 2018 at 11:39 am It’s a medical disorder, though. You should check it out – BIID (if that is what he has) isn’t fake, and it can be devastating.
Jerry Vandesic* February 21, 2018 at 12:14 pm It is a medical disorder, but is is appropriate or reasonable for the employer to treat him as if he were a paraplegic? Is it appropriate for a person with BIID to take a handicapped parking spot? Would they be eligible for accommodations that are associated with being a paraplegic? It’s an interesting case.
Laoise* February 21, 2018 at 12:21 pm Assuming he does have a mental illness, then his disability DOES dictate he use a wheelchair. Many people who use wheelchairs for strictly mobility or fatigue reasons are also capable of walking further than from a disabled parking spot. It’s not only paraplegics who can’t walk at all that require wheelchairs. And he seems to require one.
Jerry Vandesic* February 21, 2018 at 12:29 pm But not all the time, if the statement that he was walking in the documentary is to be believed.
Mary* February 21, 2018 at 12:34 pm Whether you need a wheelchair all the time or whether you only need it some of the time is irrelevant to the question of whether you need a wheelchair. The idea that you only “need” a wheelchair if you need it all the time is massively ableist.
Laoise* February 21, 2018 at 12:45 pm It is absolutely the norm for a wheelchair user not to need a wheelchair all the time. It’s a minority who only use a wheelchair all the time. It’s not acceptable to define accommodations for disability based only on best days. It’s not okay to question wheelchair users on how often they need it and only provide accommodations if it’s 100% of the time. Again, assuming he has this mental disability, you have no way of knowing what complications there may be from having stood for the documentary. I have a mental disability that prevents me from working full time generally — but I need the accommodations of lowered hours permanent, even if i do 1-2 weeks of full time per year, for example, to cover someone’s vacation. But it’s not without cost of temporary increase of symptoms during those weeks.
Jerry Vandesic* February 21, 2018 at 12:51 pm But that brings me back to my earlier question. Would someone with BIID be legally eligible to park in a handicapped spot? Would they be legally eligible for a handicapped placard?
fposte* February 21, 2018 at 1:00 pm @Jerry–private property can let him park wherever they want. Whether the state has given him a disabled tag or not is unclear–I suspect it could go either way–but I suspect the company would be legally okay to restrict their disabled spaces to those with state-issued disabled tags.
Laoise* February 21, 2018 at 1:37 pm @Jerry. In my jurisdiction, it is possible to get a disability parking placard for any disability that impacts your ability to walk that distance, as per the doctor doing the paperwork. It’s not “wheelchair parking” despite the fact a wheelchair is used to represent it. I do know of someone who was issued a placard for a primary psychiatric disorder because various symptoms made it difficult to traverse distances outside. Depending on what Gary does outside work, it’s also very possible he now has physical mobility issues (if he is not walking/in physio).
Jerry Vandesic* February 21, 2018 at 1:52 pm @fposte: it probably depends on the state. For example, in Texas, the police are allowed to enforce handicapped parking rules on private property (Sec. 681.010). The law doesn’t seem to allow the property owner to make their own rules about who can park in the handicapped spots. In other states I have seen police officers issuing tickets for handicapped parking on private property, in particular shopping malls.
fposte* February 21, 2018 at 2:02 pm @Jerry–Oh, that’s interesting! I wonder whether in practice it would ever happen in an employee lot without the workplace’s request or whether this is more a mall parking lot thing.
JB (not in Houston)* February 21, 2018 at 2:10 pm @Jerry Vandesic Your reference to the Texas statute isn’t exactly on point with fposte’s comment, though. That statute has more to do with property owners who officially designate a parking space for transportation of people with disabilities. But the OP’s business is free to designate a spot specifically for Drew, and even under the statute you cited, that wouldn’t entitle the police to enforce parking regulations against him for parking in that spot. There’s no reason the business can’t give Drew a special parking space if it feels that’s an appropriate accommodation for him.
Samantha* February 21, 2018 at 2:49 pm It is also true that adaptive vans (the OP indicates that there are hand controls) need the disabled parking spot in order to allow the wheelchair to access the vehicle. There is often a ramp or other adjustment to the side door on the vehicle to allow the chair to get in and out. Disabled parking spots often have some extra space on the side to allow this to happen. So if he is in the chair, he does need the spot.
Jerry Vandesic* February 21, 2018 at 2:57 pm @JB: I agree. If the employer wants to create a “Drew’s Parking Spot,” they certainly can. But if they create a standard handicapped spot, they wouldn’t (depending on state law) be able to let Drew park in that spot without having the proper placard/plate.
Safetykats* February 22, 2018 at 12:53 am The thing is, an employer is not meant to be obligated to figure this out in their own. You can check the case law on ADA; it’s not only allowable but recommended for conditions that are not easily diagnosed by a layperson or for which an appropriate accommodation might not be obvious that the employer require consultation with a medical professional. This does at least two things – it prevent people from claiming a less-than-obvious condition and an associated accommodation they may not be entitled to, and it protects the employer from liability associated with providing an inappropriate or even harmful accommodation, or not providing a needed accommodation even if not requested. HR should definitely be managing this issue, if only so they can formally weigh in on issues like whether the special parking is reasonable. Who knows – it could actually be harmful in some way to not only buy into but support Drew’s delusion. Without a formal diagnosis and advice from a medical professional you just can’t tell.
Gingerblue* February 21, 2018 at 12:36 pm The advice is not to treat him like he is paraplegic; it’s to treat him like someone with a mental health issue that makes him act like he is paraplegic.
LawBee* February 21, 2018 at 3:39 pm Zillah – it looks exactly like what the company is currently doing.
Zillah* February 21, 2018 at 4:44 pm How is the company treating him any differently than they would if he was a paraplegic, though?
CW: discussion of self harm, suicide* February 21, 2018 at 1:48 pm If he has one of the body-image-related mental health issues (there are several), it is absolutely appropriate and necessary for people to treat him as if he has the physical disability – because some sufferers of these disorders have actually self-harmed to the point of *crippling themselves* to make their body match their mental image. In several cases, people with one or other of these kinds of MH issues have actually, literally, self-amputated limbs. These conditions can have a really high risk of this kind of *serious* self-harm and suicide. (And, sadly, are also hard to treat.) If this work situation is helping him cope with a mental health disability in a reasonably functional way that isn’t harming anyone else, the best thing you can do is mind your own business.
Queen Esmerelda* February 21, 2018 at 2:28 pm I watched a documentary about a physician dealing with people who wanted limbs amputated. When talking with these people, he found that they drew, within one millimeter, a line in the same place where they said the “foreign” limb began. A functional brain scan showed that below that line, the brain did not recognize that tissue as self (no brain activity when that limb was pricked below the line). So he said it’s not really a mental health issue like we think of mental health. The brain really does not see that limb as part of the body, and that’s why people want it gone.
I'll come up with a clever name later.* February 21, 2018 at 4:02 pm @Queen Esmerelda – That is really interesting. Do you happen to remember the name of the documentary?
Not So NewReader* February 21, 2018 at 6:32 pm This is very, very interesting. Now some folks who suffer a stroke can have a left neglect or right neglect, where they will say, “But that is not my arm/leg/whatever.” I wonder if there are similar root causes.
Slartibartfast* February 21, 2018 at 7:23 pm I have seen that documentary, can’t remember the name, but I have always been fascinated by how the brain works. I may be wrong on this, but it doesn’t seem all that different from being trans, in that the body is not what the brain says it should be, and altering the body resolves the conflict. It is miserable not being comfortable in your own skin and I have much empathy for anyone facing that challenge, regardless of root cause. If using the wheelchair makes him more comfortable in his own skin, so be it. He isn’t causing anyone else harm.
Amy S* February 21, 2018 at 3:01 pm It is definitely appropriate for the company to continue treating him as they have been.
Elfie* February 21, 2018 at 11:47 am But what I’m saying is that there are a world of folks out there who believe that disabled people somehow ‘have it easier’ or something?! He’s making his life considerably more difficult than he needs to because of his condition. It’s – kind of sad, actually. But I think I’m saying that if we start going down the road of who’s the deserving disabled, it makes it worse for all disabled people. Is he gaming the system? Maybe…but I’d rather be fooled 100 times by someone doing that, than turn down help for a genuine person in need.
Penny Lane* February 21, 2018 at 12:16 pm Just because it’s a medical disorder doesn’t mean that it needs to be fully indulged, though. The commenters here were pretty unanimous that the guy with the hypochondria who took over discussions of his coworkers who had illnesses with the belief that he himself had these illnesses needed to reign it in. His reality was wrong — he didn’t have a brain tumor or cancer just because he might have felt slightly under the weather that day. As well, when a person with an eating disorder believes that at 90 pounds, they are fat, we don’t indulge that by agreeing that they are indeed fat because “that’s their reality.” Their reality is wrong.
Jessie the First (or second)* February 21, 2018 at 12:25 pm Sure. But where do you see people talking about “indulging”? I’m seeing comments saying that he does in fact have a disability. His employer is in no position to actually treat – much less “cure” – Drew’s disability. All the employer can and should do is provide whatever accomodations Drew asks for, and not make a Big Deal out of the fact that he has a different disability than the one he said. So it’s not about indulging or not indulging. Whatever is going on with treatment is between Drew and his doctors. But it *is* about recognizing that this is in fact a disability.
Jessie the First (or second)* February 21, 2018 at 12:27 pm *(rovide whatever accomodations Drew asks for – that are reasonable, etc, obviously. He hasn’t asked for any so far so it’s not an issue.)
fposte* February 21, 2018 at 12:26 pm But we indulge wrong realities at work all the time. If you believe you’re fat and you’re not, your workplace doesn’t get involved, because merely being wrong about that doesn’t hurt your workplace. The problem with the hypochondriac wasn’t that his beliefs were wrong–it was that their manifestation actively damaged his workplace.
Chinook* February 21, 2018 at 5:26 pm And to go even farther, those who are transgender also view their biological body as wrong and the push is to accept what they feel is the correct gender. How is that different from someone who views themselves as a paraplegic who factually isn’t?
Specialk9* February 22, 2018 at 11:07 am @Zebra Chinook didn’t say that transgender was a mental health disorder, so not sure why you are snapping. Being transgender is a good analogy here, in the broad umbrella of ‘people who feel that the physical reality doesn’t line up to their sense of self’. Personally, I kept checking my response to the wheelchair coworker against the ‘would my answer be different if they were transgender’ scenario, because I have more knowledge about that situation and little about this. We all have to make analogies to understood situations, because we can’t understand everything in this wildly complex world. Which is why reframing can be so helpful – oh actually it’s not this thing you’re thinking about, it’s more like this situation.
Chinook* February 22, 2018 at 11:39 am Exactly. Both seem to be a case of a person’s mind and body not agreeing on what they are and it is causing damage to the person’s well being which can be fixed by altering the body physically. At a basic level, how is believing that breasts or a penis shouldn’t be there any different from believing that you should be paralized or not have a left arm?
Anna* February 22, 2018 at 12:51 pm @Specialk9 Zebra didn’t snap and the reason it raises alarms is because the argument that body dismorphia is a mental illness is used against letting trans people gender express the way they feel comfortable, so maybe let’s not bring being transgender into a conversation about an actual mental health disease and call it equitable.
atalanta0jess* February 21, 2018 at 12:28 pm Right, but people in the workplace also don’t engage in challenging the reality of someone with an eating disorder, because they are coworkers, not treating providers.
Fiennes* February 21, 2018 at 12:31 pm The difference here is that Drew isn’t impinging on others. He hasn’t asked for other accommodations, hasn’t missed huge amounts of work, etc. The parking space is problematic but in isolation probably not overly burdensome as an accommodation for his mental illness. Roland the hypochondriac was missing enormous amounts of work and seriously upsetting anyone who either had their own illness or had a sick loved one—in other words, there was a genuine concern that he was unable to function in his role at work. This doesn’t apply to Drew.
Specialk9* February 21, 2018 at 1:12 pm My company gives priority parking spaces to all kinds of people – medical need (just doctor’s note, not disabled placard), those worried about domestic abuse or stalking (based on a private conversation with security), those who work late routinely, and of course executives. Unless parking is a hugely constrained resource, they should hopefully be able to make the parking space work.
Zillah* February 21, 2018 at 1:41 pm those worried about domestic abuse or stalking That’s really, really awesome.
Seanchai* February 21, 2018 at 2:28 pm IMO it’s important to make sure HR knows what’s going on for two reasons: 1) Disabled people are not unicorns, and accessible parking is very often limited. It is not outside the realm of possibility that a person with a physical disability (invisible or not) will come along who also needs that space, or who needs the closest space. Who gets the space – the person who has a heart condition/cystic fibrosis/quadriplegic/cerebral palsy/brittle diabetic, or Doug? If HR thinks he’s a paraplegic, that’s a very different judgment call than if they know he has BIID. I am not saying that Doug should automatically give up his space. Ideally, HR should encourage Doug and the new person to get together and work it out. In the event a judgment call needs to be made, however, HR needs to have the facts. 2) Doug has not asked for further accommodations – yet. That doesn’t mean he won’t. Whether he can “help it” or not isn’t really germane to the discussion – again, HR needs the facts in order to (hopefully compassionately) help make the right judgement call. 3) Again, Doug is probably not the only wheelchair user the company will ever see. If HR believes him to be paralyzed, there is a risk that HR will use him as a benchmark – “Doug didn’t need anything, therefore paralyzed employees don’t need many accommodations.” That’s great if the next guy/woman along is a low level para who’s very independent and doesn’t have any major health issues…. not so great if the next guy/woman along who is an actual para needs time off for doctor’s appointments to deal with pressure sores, gets autonomic dysreflexia, needs to take small but frequent breaks to cath or check their circulation, etc etc. It sounds silly – “why would we treat two chair users as having the same needs just because they both use chairs?” but human brains are addicted to categorizing, so it happens all the time. I’m blond, 5 feet tall (unfolded) and slight of build, and I have had people walk up to me with a completely straight face and greet me with “Hi, Bob!” where Bob is a mutual friend who is 6 feet tall, has black hair and a beard, has a completely different visible disability to mine, and has more muscle in his arms than I probably have in my entire body. But we both use chairs, so hey, same person! I could go on about BIID for quite a while (it’s a contentious subject for those of us who have physical disabilities, especially those of us who, like myself, are congenitally disabled), but for this situation it’s really not a factor… what’s causing the issue isn’t that he has BIID (that’s being accommodated with the wheelchair and the parking space), it’s that he’s misrepresenting *what* he has, and that *will* affect other disabled people down the line, because everyone who knows him as “paraplegic” will subconsciously use him as a benchmark for both “paraplegic” and “chair user”. That’s not Doug’s fault but it could still cause real harm in the long run.
Loose Seal* February 21, 2018 at 2:58 pm @Seanchai, Re: your #1. The thing to do in that case is to create more accessible slots or to provide shuttle service to the door or any number of other reasonable things. It is not for the employer to determine which disability “wins” the parking slots. What you’re suggesting is a Hunger Games scenario where Drew and another potential parking slot user have to one-up each other to prove they need the slot more. That’s pretty despicable. #2 — So what if he asks for more accommodations in the future? HR should handle it the same way they handle all other requests. If they require a doctor’s note (which they shouldn’t IMO) for others, they should require it of Drew. If they take the requester at their word, then they should take him at his word. #3 — I hope your company hasn’t made you jump through these hoops to get what you need and I hope they haven’t used you or another chair user as a benchmark for how everyone else is to be accommodated. If they are, they suck.
miss_chevious* February 21, 2018 at 6:06 pm I guess I don’t see why the parking spot is such a big deal. Companies give preferential parking to people all the time — seniority, performance, disability — and if this is the only accommodation Drew is asking for and is living his entire work life as if he is a paraplegic, it seems like a reasonable accommodation for his disability (his mental condition, to be clear).
Ego Chamber* February 21, 2018 at 8:26 pm @Seanchai Re: “Ideally, HR should encourage Doug and the new person to get together and work it out.” Nope. That is the very worst way for HR/management/whoever to handle pretty much any scenario. Pitting coworkers against each other when there’s a very real win/loss involved is awful, unfair (because coworkers don’t have access to potential solutions that higher-ups could put in place if they weren’t choosing to abdicate their own responsibilities), usually leads to interoffice conflicts, and is detrimental for morale. (Ask me about the time my manager decided our department needed to negotiate popular vacation days between ourselves or no one would get the time off (instead of putting any process in place and sticking to it). Negotiations quickly devolved into exactly what you’d expect: an ongoing argument about who “needed” the time most—complete with oversharing, thinly-veiled threats, and outright threats.) Tl;dr: Management should not expect coworkers to manage themselves, that’s management’s job.
Gadget Hackwrench* February 23, 2018 at 10:37 am Yeah. I mean if Drew has been carrying on with his life in his chair otherwise normally, not making a hoopla about it, there’s no reason to get on his case about anything. Seanchai’s point on the surface seems like a case of conflicting needs, which would need to be assessed, the thing is that one runs the risk of the impression that Drew is giving with ANY disabled worker. No two people’s necessary accommodations are the same so no one should be assuming that two people will use the SAME accommodations because they have the SAME disability. The company should no more use Drew as a benchmark for other chair users than they would use a one physically disabled chair user as a benchmark for another. Needs differ.
Mary* February 21, 2018 at 1:16 pm “Indulged” is a bit of a tendentious word choice. You don’t “indulge” people’s disabilities; you accommodate them. “Indulge” is pretty moralistic.
Tuxedo Cat* February 21, 2018 at 12:30 pm There are definitely people out there who think people with disabilities have it easier or get perks. Just like there are people out there who think being a woman, person of color, etc. have it easier than those who aren’t marginalized.
Specialk9* February 21, 2018 at 1:25 pm I know that people who believe disabilities come with benefits aren’t likely rational and are seriously lacking empathy. But here’s an example of how disabilities are NOT a benefit. I have an invisible disability. I went to a conference lately with a layout that was all sprawled sideways instead of up-and-down on floors. Those of us with fitness trackers compared the miles we had to walk daily just to get around (there were no shortcuts): 5 to 7 miles. They technically had disability accomodation for wheelchairs, but those of us with invisible disabilities SUFFERED. We just wanted to learn how to do our job better and improve our professional practices, but it came with a side of exhaustion and pain that other attendees didn’t have to deal with. I just don’t get why people think we’re getting something from this, other than exhaustion and hurt.
Mel* February 21, 2018 at 10:16 pm Virtual gentle hugs from a fellow person with an invisible disability who would suffer in that situation!
Not So NewReader* February 21, 2018 at 6:44 pm Adding those who think folks with disabilities are having an easy ride have never actually had to use our disability system. My husband filed for disability when the doc found eight broken vertebra in his spine. It took the TWO of us 8 hours to fill out the form required. So my husband with the 8 breaks sat, in a chair, in unimaginable pain trying to fill out this form for 8 hours. (We had to split it into two sessions.) Then he had to sit through interviews where they asked the same questions, again. But wait there is more. Some of his doctor appointments were totally unnecessary except to fill out more paperwork. I was the healthy spouse and I started getting to feel rundown/lousy, I have no clue how he coped at all. People can have a pretty cavalier attitude when they have not been up close and involved in what our system actually is.
Topcat* February 22, 2018 at 8:51 am I’m with you. I would frankly say nothing, and if Drew’s colleagues find out and give him a hard time about it, so be it. He should be getting psychiatric help to get over this issue. Frankly it sounds like he’s being indulged. This is a completely contrived modern ailment. Can you imagine a caveman having it?
boo* February 22, 2018 at 9:36 am “Can you imagine a caveman having it?” Yes? Can I imagine a “caveman” being diagnosed with it? No, because back in the prehistoric ages, probably it would have been hard to argue with someone who said they were unable to walk, and then demonstrated that by… not walking and using other, much more difficult means to get around. Not to mention, all kinds of mental illnesses have been around since we have. The species didn’t invent bipolar disorder because some of us got bored one day with our fancy gadgets. We’ve had cancers and auto immune disorders and been susceptible to viruses and bacterial infection since the beginning, why should our minds have been immune until, like, last week (geologically speaking)? It’s just that in the past, people were assumed to be possessed by demons, or declared holy fools, or locked up in attics, or everyone said, “Oh, that’s just Gary, he thinks he’s a walking corpse. Sad, really, but there’s nothing to be done about it. Oh, hello, Gary! How’s the afterlife? Necrotic tissue still holding up all right?” So, yes, cavemen probably had plenty of neuroses, some like the ones we have today and some different. That’s who we got them from!
Bird* February 22, 2018 at 9:54 am I’d hate to have you as a manager or a coworker, since it appears you have a troubling lack of empathy for someone whose life really isn’t making anyone else’s more difficult. Also, talk about a red herring – plenty of things are “modern ailments” in that we are still learning about various conditions and diseases. Cavemen likely didn’t have noise-induced hearing loss from not protecting their ears in noisy workplaces or concerts – a “modern ailment” – but we accommodate that without disparaging those with hearing loss. The word “autism” wasn’t used until the early twentieth century, and our understanding of autism spectrum disorders continues to change and be refined. So, that’s a “modern ailment” as well, which society recognizes and (theoretically) works to accommodate. But honestly? If a caveman did have a disability – whether you thought it was real or not – why do you not think that they would have been cared for and supported by their community?
Alienor* February 22, 2018 at 4:47 pm I read something a while ago about how if someone had autism in, say, fourteenth-century England, people probably would have just said “Oh, Tom is a little odd” and put him in charge of something like watching the sheep, and Tom would have been mostly fine because he had a low-stress job and lived in an environment devoid of artificial stimuli (flashing lights, noisy traffic, etc). Which makes a lot of sense when you think about it.
Countess Boochie Flagrante* February 23, 2018 at 10:38 am I also read something really interesting, pointing out that the folklore about changeling children (ie the fairies came and stole your toddler and left a lookalike that acted oddly in his/her place) lines up really well with how autism first manifests and what differences are most readily visible (or would have been in a low-tech society). Changeling children spoke oddly, often as though they were more mature than they were, were unaffectionate and often withdrew from society, were picky eaters or easily became ill, but could also be very clever.
sap* February 23, 2018 at 3:19 am Can you imagine a caveman being parapalegic and that working out well? No? I can’t either. How about a cave man who was allergic to the only type of berries in the area while the protein source was in hibernation? Lots of disabilities would not have been “indulged” in cavemen because cavemen did not have the technology to accommodate them. That is not the standard by which any reasonable person judges whether someone with a medical condition should get an accommodation.
Countess Boochie Flagrante* February 23, 2018 at 3:28 pm Actually, there’s some pretty solid archaeological evidence that primitive humans did take care of their disabled neighbors. Scientists have found multiple skeletons with obviously healed injuries that would have substantially impaired life function.
Laura* February 21, 2018 at 12:08 pm If Drew were being give accommodations at the cost of someone like your husband, I think there would definitely be an issue. But if the only other people are not disabled, accommodating Drew’s mental illness isn’t hurting anyone. It’s not an easy illness. And *yes* I absolutely agree that people should empathize! And *yes* I think accommodations should be made for handicapped people! I have worked with many handicapped people who are absolutely amazing. They could be sitting home collecting disability, but they are out working, being productive, and we should absolutely give them what they need to do that! I have a friend who actually has a state-issued disabled pass, but he won’t use it, because he says there are always people more disabled than he is (he has heart problems; he’s not in a wheelchair or otherwise hindered mobility-wise).
Loose Seal* February 21, 2018 at 3:07 pm Wow. You do realize that plenty of people who are on disability aren’t just sitting at home gleefully collecting their money, thumbing their noses at the system they beat? I guess it’s great that you know some “absolutely amazing” people who can overcome everything and be productive but there is nothing wrong with those who actually can’t work. Do you think proving disability (in the U.S. anyway) is easy? Do you think it pays well? Your friend with heart problems got that pass because one day he thinks he will need it. Otherwise he wouldn’t have bothered. When that day comes, I hope you don’t bootstrap him into being productive.
Perse's Mom* February 21, 2018 at 8:39 pm That’s probably the most uncharitable possible way to have read Laura’s comment.
Ethyl* February 22, 2018 at 12:55 pm Laura literally said that, though: “They could be sitting home collecting disability, but they are out working”
Anion* February 22, 2018 at 9:16 pm Yes, but she didn’t mean it as “They could be sitting at home collecting disability like lazy bums,” she meant, “They deserve accommodations to help them be out in the workforce.” And we’re not really supposed to nitpick wording here, iirc. She clearly didn’t mean to insult anyone or imply that people on disability are lazy do-nothings.
Reya* February 21, 2018 at 11:33 am I’ve never been in a wheelchair, but I’ve had to use crutches before due to an ankle sprain. You never realise until your mobility is limited just how hard it is to get around in those situations – so many places still don’t have elevators between floors, or they’ll be out of order for some reason, particularly on public transport. Trains and the tube have you walking for what feels like forever to get between platforms. Doors are heavy and difficult to open, or tricky to get through with limited mobility (ie it’s really difficult to use revolving doors if you’re not moving at a reasonable speed). Using a wheelchair is NOT an easy option. Unless you’re at a theme park I guess. I’d give a lot to be able to queue sitting down at a theme park.
Eh? Non Y. Mouse* February 21, 2018 at 12:14 pm Revolving doors are a special kind of hell with a mobility device. Not just for the pace, but also, if your crutches or cane is planted on the ground, you’re propelling forward, the rear part hits the rubber tip and jams and stops it and you’re faceplanting into the front part because you were still moving forward. HATE revolving doors.
SarahKay* February 21, 2018 at 12:22 pm I spend seven weeks in a wheelchair in my late teens after an operation to break and reset both ankles, and it’s incredibly hard work. Just small things like opening a heavy door – put brakes on wheelchair (so that it doesn’t move instead of the door), pull open door using a handle that’s probably higher than is comfy, release brakes (while keeping heavy door open) get oneself through door before it shuts…. Pavements (sidewalks) are spectacularly uneven in a way you just don’t realise when you’re walking. So many things are out of reach, because you’re effectively about 18 inches shorter than the average adult. It was a fascinating experience, but one that I am absolutely happy never to have to repeat; I can’t imagine anyone doing it without a very good reason, whether that be physical or mental.
sstabeler* February 21, 2018 at 11:34 am II think that’s what would make me think it really is a mental health issue, rather than him faking it. In a sense, he |IS confined to the wheelchair, it’s juts the mental health condition that does it, not a physical disability.
Gene Parmesan* February 21, 2018 at 11:23 am Look up the condition Alison mentioned, body integrity identity disorder. I wouldn’t say Drew is doing it for fun or to get special treatment. Individuals with this condition believe that their able-ness is alien or not really who they are.
Sleeping, or maybe dead* February 21, 2018 at 11:40 am Yes, while it is a difficult situation for the manager and the co-workers and it might be difficult to understand Drew’s point of view, that is often the case with most of mental illnesses. So I agree with Alisson, maybe he is not in fact paraplegic, but he does need the accommodations for a different, equally medical and valid reason.
sunny-dee* February 21, 2018 at 12:20 pm I have a limited experience with mental illness. The one time I was stalked by a paranoid schizophrenic, I felt a great deal of compassion — but I didn’t really believe that the CIA was chasing me or that the voices telling him where to take me were, you know, real. The guy was tormented and sad, but nothing that he was thinking was reality. I’m not saying string Drew up from a lightpole or something, but he knows he can walk. He has no physical reason not to walk. He’s just kind of … LARPing as disabled, and that feels wrong to me. There are people who have real mobility issues. He isn’t one of them, and I don’t think it’s right for him to act like it. IRL, if I found out and I were disabled, I’d be mad. If I found out and I’m able-bodied, it would make me really uncomfortable and it would change the way I perceived him. I would certainly try to be kind and, in some ways, it’s really not my business. But it would affect how I looked at him and respected him as a person.
atalanta0jess* February 21, 2018 at 12:31 pm I think the framing of it as LARPing as disabled is kind of offensive though, assuming the guesses about his mental health diagnosis are correct. I mean, someone with schizophrenia isn’t LARPing, right?
sunny-dee* February 21, 2018 at 1:09 pm No, but someone with schizophrenia flat out cannot process reality. Is that where Drew is? Because he seems aware he can walk, he just … doesn’t want to?
LawBee* February 21, 2018 at 1:35 pm Please look up BIID. It isn’t that he doesn’t want to walk – that makes him sound lazy. Fposte described it below (idk if they were her words) as kind of the opposite of phantom limb syndrome. BIID is serious and has caused people to self-amputate.
Risha* February 21, 2018 at 1:37 pm If I really need to make a phone call, and I have my phone and the number, and I spend the day trying to make the phone call but my anxiety prevents me from doing so, I’d be highly offended (though not, unfortunately, surprised) if you said I just “didn’t want to” make the phone call. Well, actually, usually I also don’t want to make the call, but that’s mostly because I know I’m going to spend the day or days suffering while trying to do it.
Ego Chamber* February 21, 2018 at 8:39 pm I am right there with you. We all need to get better about how we understand mental health. It’s not laziness. It’s not for attention. It’s sure as fuck not a new avant garde take on LARPing.
Turquoisecow* February 21, 2018 at 1:15 pm That is incredibly offensive. Mental illness is not a choice. Someone doesn’t *choose* to hear voices, or feel paranoia, or depression, or panic, or anxiety, or have suicidal thoughts. They don’t choose to be disabled any more than physically disabled people choose their disabilities. They are not “LARPing,” this is not a choice, and they can’t just get over it. Drew isn’t voluntarily in a wheelchair anymore than Stephen Hawking is. And that attitude is part of the reason why mental healthcare is so lacking.
Specialk9* February 21, 2018 at 1:33 pm I once had a schizophrenic patient who looked up at me and screamed that I was the Angel of Death… And I could see in her eyes just a reflection of what she was seeing, and it broke my heart for her. I could imagine how awful and terrifying her brain was making me, huge wings and demonic and all. And she was being utterly rational (we’d all scream exactly like that if we saw the Angel of Death) – but her brain was messing up her inputs. At the end of the day, this manager doesn’t have the background or the right to try to sort out what’s what in this situation. But I hope the manager can have compassion for someone who has a hard path, and still conducts himself with kindness and humor.
Loose Seal* February 21, 2018 at 3:11 pm He does have a disability. It’s not one that *you* define as a disability but it is one nonetheless. You are correct in saying it would be none of your business, just as it’s none of Drew’s co-workers’ business.
soon 2be former fed* February 21, 2018 at 7:13 pm Then why did he agree to be in the documentary? There was no guarantee that his coworkers would not see it. It would seem that he does not mind people knowing.
Ego Chamber* February 21, 2018 at 8:46 pm We don’t know anything about the documentary (except that it was fairly recent) or what Drew did or didn’t agree to when it was being filmed. For all we know, it could be a psychology student’s project that they uploaded to YouTube because that’s how the professor wanted to grade it, and they didn’t think to inform the participants how the footage was going to be used. (That’s a stretch, sure, but anything between that and “legitimately produced by a large studio” is a possibility.)
sap* February 23, 2018 at 3:23 am This would be a horrifying breach of ethics from that professor! I’m sad it sounds plausible.
Q* February 21, 2018 at 4:09 pm I suspect disabled people would have a very different perspective on this than you do. LARPing as disabled, really? Mental illness is a disability.
JessaB* February 21, 2018 at 12:35 pm And there are cases of persons who suffer this disorder SO badly that they do things to themselves to MAKE themselves disabled. I’ve seen awful stories of people who the disorder makes believe they should be blind putting caustics in their eyes. People getting into deliberate accidents. This is not minor. And I’d rather accommodate his need for a wheelchair now, than for him to put himself in a position to injure himself so that he’s permanently disabled and that psych help cannot assist him in getting past the disorder to a place he can make it in. There are even shady doctors overseas (and in back rooms in the US,) that for the right upfront money will do things that are categorically against medical ethics and assist people with this disorder into crossing the line to PHYSICAL rather than mental disability. Whether it’s body integrity or Munchausen’s I’d rather treat it like the disability it is, than the disability it could become. NB I am NOT saying in any way whatsoever that OP’s actions in either direction could push him over a limit line. I don’t think that’s the calculus here, but I would absolutely talk to HR before talking to him. This can be extremely fraught. I am hoping that his willingness to be part of a documentary about his disorder is part of a team effort to assist him past it.
Zillah* February 21, 2018 at 1:44 pm Whether it’s body integrity or Munchausen’s I’d rather treat it like the disability it is, than the disability it could become. This is an excellent way of framing it.
LawBee* February 21, 2018 at 11:38 am There isn’t anything “fun” about BIID. It’s a serious issue that has lead people to take drastic measures as self-amputation to get relief. Recent research indicates that BIID may be an issue with how the brain process signals from the rest of the body. I don’t know where you got that the OP, or anyone, thinks Drew is using his wheelchair for “fun” or “advantage”, or because it’s “easier”, but you’re way off-base.
fposte* February 21, 2018 at 11:54 am Here is an interesting story about it: http://nationalpost.com/news/canada/becoming-disabled-by-choice-not-chance-transabled-people-feel-like-impostors-in-their-fully-working-bodies
Laura* February 21, 2018 at 12:02 pm This is what I came here to say. BIID is serious enough that people self-amputate. I *have* tried a wheelchair after IRS’ annual wheelchair basketball game. The able-bodied players left and the wheelchair players couldn’t get the extra wheelchairs out, so my friend and I helped. We both tried to use the chairs. Admittedly, we weren’t used to them (which is why the handicapped guys kicked ass every year), but it is *hard* to use those chairs!
LavaLamp* February 21, 2018 at 1:02 pm This. I watched a show once about a man who amputated his hand, then lied to paramedics and said that he had an accident with like a lawnmower or circular saw or something like that. They found his hand, but I can’t remember if it was reattached or not.
Specialk9* February 21, 2018 at 1:35 pm A reminder that this is all speculation, though. We’re guessing at a medical diagnosis, as a way to encourage the OP to be able to consider the situation differently. But this is all a guess.
Jennifer Thneed* February 21, 2018 at 1:42 pm Off-topic, but I like your user name. (signed) –If I had a million dollars
anon4now* February 21, 2018 at 2:03 pm He could garner sympathy in situations that he otherwise wouldn’t. What he’s doing is morally wrong.
fposte* February 21, 2018 at 2:05 pm But it’s not like people should only be sympathetic to certain kinds of disability, or that it’s a finite resource.
anon4now* February 21, 2018 at 2:52 pm No one said anyone should be sympathetic to only certain kinds of disability? Like what? And while it may not be a finite resource, that doesn’t mean you accommodate able-bodied folks that wish they were disabled due to a mental disorder. Like, where are you coming from?
Nerdling* February 21, 2018 at 3:00 pm fposte is coming from a place that acknowledges that mental disorders can be disabling.
fposte* February 21, 2018 at 3:01 pm I’m coming from the position that it’s not a problem that people feel sympathy for him, because it doesn’t expend the resource and he’s got a disorder. Sounds like you disagree.
anon4now* February 21, 2018 at 3:17 pm He has a mental disorder that’s being accommodated through faking a physical disability. He should have sympathy from others, but it shouldn’t come from lying. And I’m sure others wouldn’t feel good about sympathizing with someone faking a physical disorder. You may think it’s all ok, because not a lot of “resources” were being used, but to me it’s about being honest and truthful. Mental disorders are invisible, and this one manifests itself through faking physical disability. While I do pity him, I do not personally believe this should be accommodated through projecting a real life physical ailment and allowing said individual to benefit from it.
LawBee* February 21, 2018 at 3:48 pm I’m not sure I follow your logic. Would you rather he self-amputate or take drastic measures so that his body fits what his brain tells him it should be? Then he wouldn’t be “lying”. If you would rather he just stop “faking a physical disability” and suffer daily, then – well, I don’t know what to say about that. For all we know – because this is all speculation – this is part of his medical treatment plan. To quote a podcast I recently listened to – choose happiness over suffering. He is suffering. How he is treating his mental illness (if, again, that is what he has) is his way of choosing happiness over suffering. I can’t imagine being a person who would prefer that he suffer. Things like this aren’t black-and-white – you’ve got to allow for some gray areas in life.
anon4now* February 21, 2018 at 4:02 pm I don’t understand how wanting to be paraplegic can make someone suffer. It can certainty make one unhappy or dissatisfied in life (but we all are to some degree). But even amputating or taking “drastic measures” doesn’t always work with people with this disorder. It’s a mental disorder that should be treated with therapy and meds, and not accommodating the need/want/desire to be disabled.
LawBee* February 21, 2018 at 4:22 pm The amount to which we disagree is Grand Canyon sized, so I’ll leave this particular thread with this thought: unless you are Drew’s therapist, you don’t get a say in how he treats his illness. You say that amputation may not work – neither may therapy and meds. Maybe he’s tried them. Maybe he is in the middle of therapy right now, and this is part of it. We don’t know, and we will never know. Unless you are Drew, you also don’t get to determine how he is feeling. You may not understand his illness (and neither do I – I don’t understand it at ALL!) but diminishing something that has literally caused people to drop heavy weights on their bodies in order to damage their limbs permanently, or pour bleach in their eyes, as “unhappy or dissatisfied” is not a great viewpoint. If Drew has BIID, he doesn’t “want to be paraplegic”. His brain is telling him every minute of every day that his legs are not supposed to work, that his body is wrong. That is a terrible way to be, I can’t imagine it. People who have BIID do suffer – I think you might be more empathetic if you learn a little more about it.
Natalie* February 21, 2018 at 4:25 pm @anon4now, as mentioned elsewhere in the thread, neither therapy nor meds are necessarily instantaneous or even effective. Nor can an employer mandate a specific course of treatment.
IForgetWhatNameIUsedBefore* February 22, 2018 at 3:03 am Are you saying that it’s morally wrong to have a mental illness?!!
Foreign Octopus* February 21, 2018 at 11:07 am Oof. This is a difficult situation, made more difficult by the fact that he isn’t calling attention to his use of the wheelchair. Alison’s adivce, I believe, is spot on. Give HR a head’s up and then go about as normal, I’d say.
jm* February 21, 2018 at 11:58 am Not to be disagreeable, because I definitely agree with Alison’s advice and understand that Drew has an actual medical issue, but he actually did call attention to the use of the wheelchair/medical condition by participating in the documentary. If I were his manager, I would definitely want to go beyond HR and talk with Drew using a script like Reya suggested above. The fact is, since other employees have seen the documentary and will have a variety of feelings about it, the manager needs to be prepared to manage the situation – especially how Drew would want the manager to repond if an employee brings it up.
Sometimes yes, sometimes no* February 21, 2018 at 12:18 pm *may have seen The participation in the video is immaterial; if anything, it sheds light on a little discussed, little understood condition. As someone who has a major mental disorder, but one that is still heavily stigmatized in the office, I can certainly understand the impulse to share my story in an effort to raise awareness and decrease that stigma. So in a way, yes, that’s “calling attention to it,” but the implication seems to be that rather than participating in something that he may have found empowering or a necessary part of therapy or any number of things, he should have sat down, stayed quiet, and pretended it didn’t exist so no one would use it against him.
jm* February 21, 2018 at 1:17 pm True, *may* have seen. Hopefully participating in the documentary was healing, empowering and helpful to Drew — and by drawing attention to the disability, it allows him to share information with a large audience to increase understanding. I just think that now the can of worms has been proverbially opened that Drew’s disability is different from what everyone assumes it is, Drew’s manager should talk with Drew about how he would like the manager to respond to concerns from other employees, should other employees see the documentary and make comments in the office.
Sometimes yes, sometimes no* February 21, 2018 at 1:22 pm I do agree with you that the public nature of the disclosure makes it discoverable, and that HR and Drew and the manager should discuss how to handle it should it come up. I think I was reacting mainly to the undercurrent I detected suggesting it was a boiling problem that needed immediate attention (“since other employees have seen it”).
Gadget Hackwrench* February 23, 2018 at 10:54 am Yeah my mind went here too. The documentary participation was almost certainly to try and raise awareness and reduce stigma, not milking anything for attention or admitting to being a “faker.”
designbot* February 21, 2018 at 6:14 pm I actually think his lack of calling attention to is makes it an easier situation; it makes it easier to not meddle in his private medical business.
Hills to Die on* February 21, 2018 at 11:07 am I understand that this is a mental disorder but part of me is still judging Drew. Even if I felt like a should have a disabled body I would hope that some part of me would overcome that and be grateful for a functioning body. I just don’t understand this I guess.
Hills to Die on* February 21, 2018 at 11:08 am And I understand that this isn’t the question being asked by the OP so please feel free to delete.
Leatherwings* February 21, 2018 at 11:12 am That’s not really fair. It’s like asking an extremely depressed person to just be grateful they’re alive. I don’t think this is particularly helpful for OP and probably stigmatizes mental health issues.
Hills to Die on* February 21, 2018 at 11:26 am I agree. It isn’t fair. I’m just struggling with the part where he knows he isn’t actually disabled and asked for am accomodation anyway. Maybe I just need to stop judging—I’m just processing this via comments, I guess.
Alli525* February 21, 2018 at 11:31 am I agree with the Extremely Judging bit of your post (I am right there with you, who DOES that??) … but OP specifically says that Drew never asked for any accommodations and just uses the ADA stuff that’s already in place (elevators, wide doorways, etc.).
Leatherwings* February 21, 2018 at 11:31 am But if he has this disorder, his brain isn’t telling him he actually isn’t disabled. It’s telling him he can’t walk. Similarly, someone who is depressed might have a roof over their heads and a great family and a “good” life, but still struggle to get out of bed. They’re still unable to get out of bed in the morning anyways. That doesn’t make sense to a lot of non-depressed people but it’s their reality. This is Drew’s reality. Realistically, the only accomodation he’s getting is a parking spot. I get that that’s uncomfortable, but the LW went out of their way to explain that he’s NOT asking for a ton of accommodations.
Hildegard Vonbingen* February 21, 2018 at 11:36 am But he IS “actually disabled.” It’s just a different type of disability than the one he’s naming. We all judge from time to time, it’s human, but first and foremost it’s a good idea to get your facts straight. Only then can you form accurate judgments. Second step is to determine whether your judgment is relevant and worth voicing/acting on.
Loose Seal* February 21, 2018 at 3:18 pm Frankly, it’s entirely possible that Drew knows full well he has BIID (if he does) but finds it easier to tell people he is paralyzed rather than educate people about a mental health disorder. How many commenters have said that they keep their mental health diagnoses under wraps rather than face the judgment and stigma that might come with it at work? He’s not obligated to give everyone at work a play-by-play of how he came to use the wheelchair.
Thursday Next* February 21, 2018 at 5:18 pm Nor is he obliged to lie. I think this is what a lot of people (myself included) are getting hung up on. If Drew had said he had a chronic condition that led to his need for a wheelchair, I’d probe no further. Honestly, I’d never ask in the first place. It’s the disconnect between what he said to the LW and how he represented himself in the documentary that is problematic for me and many others I’m sure.
Sometimes yes, sometimes no* February 21, 2018 at 8:00 pm So what’s the step forward here, then, given he did claim he was paraplegic instead of being more vague? He obviously can’t step that back. Is his integrity forever ruined? Does he need to prove himself trustworthy in some way? A public apology?
Thursday Next* February 21, 2018 at 8:56 pm From the letter, there doesn’t seem to be a need for Drew to do anything. He hasn’t asked for accommodations; his working relationships and performance are good. It doesn’t appear to have become a workplace topic of discussion. The LW seems empathetic and helpful. I don’t think Drew has lost all claims to integrity or needs to issue a public apology (I’m not sure if you were serious about these). I wish this were a completely abstract discussion, and that Drew didn’t have to bear the burden of all of the concerns we’re bringing up here. But if it did come up in his workplace, a possible response would be for Drew to say that he used paraplegia as a concise explanation of his condition to avoid having a longer conversation about it, but that he has a different chronic condition. I think most people wouldn’t push for more details (I wouldn’t, at any rate).
Sometimes yes, sometimes no* February 21, 2018 at 11:14 pm @Thursday Next: It was merely incredulous, not serious. You suggested scenarios that would have prevented the reactions of some (with regards to the “lying” aspect), but those aren’t what he did; given what he did, then, what is the way for him to move forward in an acceptable fashion? Your final sentence is what I assumed — explain why he used the shortcut — but the whole thing kind of itches at me. It just feels very much like tone policing and entitlement (and here I’m moving into a general “you”): you’re entitled to know the truth, the whole truth, and nothing but the truth, never mind the practicality of the alternatives. I have experienced multiple sides of the coin in terms of disability disclosures and it’s just impossible to get it right. If I tell you I have Bipolar I, I’m oversharing and putting you in an uncomfortable situation. If I tell you I have a mood disorder, I’m being vague and not giving helpful details. If I tell you that I need accommodations regarding doctor’s appointments and flexibility with work assignments, I’m being cagey and taking advantage of the system. I personally understand 100% why someone would rather go for the straightforward analog rather than the complicated if accurate explanation or no comment at all because it 1) prevents questions; 2) provides all the information you need in order to accommodate my needs; 3) doesn’t ask me to have faith that you’ll handle a vague answer or the real, complicated mental illness answer.
EvanMax* February 21, 2018 at 11:51 am There’s a misconception somewhere in our culture that somehow being aware of your own mental dysfunction invalidates that dysfunction (as though one should be able to heal themselves mentally solely through the power of rational thinking.) A mental or emotional condition isn’t any different from a physical one. Knowing that your leg is broken is a good first step towards seeking treatment and understanding why it is important to follow doctor’s orders for recovery, but just knowing about the break doesn’t suddenly heal the leg.
CmdrShepard4ever* February 21, 2018 at 12:12 pm This many times over. This is the same thing with depression, many people that are depressed know they suffer from depression, but that fact alone does not make the depression any better and they cant just tell themselves to not be depressed anymore.
Jadelyn* February 21, 2018 at 12:27 pm I always quote that one John Mulaney line – “I also don’t want me to be doing what I’m doing right now!” Like yeah, I know my brain is Doing Things, I would really rather it not Do Things, but knowing it and wanting it to stop doesn’t actually prevent it. In some ways, I’m as much a bystander as anyone else when the biochemical functioning is on the fritz again.
Kalamet* February 21, 2018 at 1:17 pm I’ll admit that my first thought towards Drew was judgment, but after reading the comments I realized that it didn’t make sense to judge him. I have depression and otherwise lead a pretty charmed life, but no amount of logic can make me appreciate that when the sadness flares up. I’ll admit that I don’t get BIID, but I can see the comparison between it and myself. I think it’s easy to side-eye BIID because it’s a disorder that can manifest as an other disorder, which gets people’s hackles up. It _looks_ like appropriating from the disabled community, even though they are disabled themselves.
Anonymous Pterodactyl* February 22, 2018 at 3:33 pm I am, frankly, really having a hard time developing any coherent thoughts about this topic, or to understand where a reasonable line is between appropriating, disability, and acceptance. When someone identifies as being of a race other than the one they were born as, and takes steps to present as being of that race, they are treated with scorn and accused of appropriating (particularly, if not only, when it is a white person presenting as a minority) – I recall a case of this that went very viral a few years ago, though not the specific details. When someone identifies as having a physical disability that they do not have, and take steps to present as having that disability (up to and including actually physically harming themselves), that is considered to be a disability in and of itself. We don’t agree that they *have* the disability they present as having, but we don’t want to treat them as appropriating disability either. And when someone identifies as a gender that is not the one they were assigned at birth, and takes steps to present as being that gender (up to and including gender reassignment surgery) we no longer consider that to be a disability or mental disorder, but instead a fact about who they are, and something to be accepted. I would never tell a transwoman she was being appropriative of women’s history and experiences. (I do recognize, though, that this is a thing that happens and it has an ugly history, and that some people do still consider being transgender as a mental disorder.) I’m struggling with how to reconcile these differences. I want to be a kind and compassionate human who accepts people as they are. I want those who struggle with disabilities of all kinds to have the support and care that they need. I want to have a thought process that makes sense and is self-consistent. So, why is it that we see one’s internal sense of gender to be substantively different from one’s internal sense of race? Why is one valid but the other invalid? They “feel” different to me, but *are* they? Or do they only feel different because society has made some progress on transgender rights? Why is an internal sense of disability itself a disability when the other two aren’t? It can’t be solely due to the possibility of self-harm to cause that disability, as self-mutilation is extremely possible for a transperson who is not believed or supported and sees no other way to get a body that matches their identity. Is it instead because the desired result, if achieved, would be to have a disability? I struggle to make sense of it all.
Gadget Hackwrench* February 23, 2018 at 11:09 am It’s possible that BIDD will eventually be declassified as a mental illness treated with transition to actually disability as with trans people, but the barrier to that of course is that while it’s somewhat conceivable to want to be a different gender, people cannot wrap their heads around wanting to be disabled. Of course neither of these is about WANTING but you try explaining that to a lay person. Either way in both of these cases the line between appropriation and acceptance is that in these cases a person is willing and ready to make a full time, permanent transition to this state they KNOW is their TRUE state, fully divesting themselves of any advantage that came with their previous state. Someone with BIDD is going to be in the chair whether people are looking or not, only getting up for very RARE reasons, like demonstrating it in a documentary about their condition, and would seek to have surgery to make it no longer possible. A socially transitioned trans woman (surgery or no) isn’t going to up and use the men’s restroom just because the line is shorter. They made a break with the false self, and are living their truth. That’s where things get sticky with people who believe they are another race. You can never fully divest yourself of the advantages of the race you were born into.
Yorick* February 27, 2018 at 12:09 pm Can a man ever fully divest himself of the privileges he was born into? Even by living as a woman, he didn’t have that experience from birth the way cis women have.
JanetM* February 21, 2018 at 4:34 pm I have described my own depression as, “Sometimes, despite good drugs, good therapy, and good things happening around me, my neurochemistry wakes up in the morning and says, like George Carlin’s Rice Krispies, ‘Snap, crackle, f* you.'”
Whiplash* February 21, 2018 at 12:31 pm Good lord, yes. I have a lot of anxiety and therapists have pointed out to me during sessions that I seem remarkably aware that I’m being unreasonable in certain situations. I can tell you six ways from Sunday why any given freakout was not necessary, but I cannot NOT have the freakout.
Hlyssande* February 21, 2018 at 12:50 pm I’ve had that problem with past therapists. I studied philosophy in college and I can logic and brain my way through just about anything, but I’ve never been able to get the rest of everything to follow suit, if that makes sense.
Whiplash* February 21, 2018 at 1:11 pm Yep, makes sense. For me, medication was the golden ticket. I still have the freakouts, but they are way shorter and all the traffic jams in my brain slowed down a LOT so it’s easier for me to get myself out of a freakout now.
Zillah* February 21, 2018 at 1:53 pm This! A huge part of mental illness is having responses that don’t make logical sense – that’s part of the illness. When I’m having a mood swing, I often know on some level that what I’m feeling doesn’t make logical sense. When my ADHD makes it harder for me to do basic things, I often realize that it’s the ADHD that’s doing it. That doesn’t make it not a mood swing or not the ADHD.
DizzyFog* February 21, 2018 at 2:24 pm *There’s a misconception somewhere in our culture that somehow being aware of your own mental dysfunction invalidates that dysfunction (as though one should be able to heal themselves mentally solely through the power of rational thinking.)* Thank you, thank you, EvanMax! I am completely aware that my panic-level avoidance of people who I know and like is ridiculous. I am very aware that I have a good life and no reason to be depressed to the point of being practically non-functional. This awareness changes nothing about the symptoms that I experience. Drew can be completely aware that his legs are physically functional and still unable to stand up and use his legs when he’s having a bad bout of mental disconnection.
Gadget Hackwrench* February 23, 2018 at 10:56 am I know I have PTSD. That did not make it magically go away.
Zillah* February 21, 2018 at 1:55 pm It’s really great that you’re using the comments to process a judgment that you know isn’t fair – I wish more people were that open. (Just to be super clear, since tone is occasionally problematic on the internet, I’m not being sarcastic at all right now!)
LCL* February 21, 2018 at 1:09 pm It’s totally fair. People who haven’t suffered from mental illness really don’t get what it’s like. The ‘why don’t you just…’ response is a normal one. It’s not a helpful one, but if one is unfamiliar with mental illness it’s likely to be one of the first questions asked. Asking this question out of ignorance (in the original def. of not knowing) should open discussion and will probably destigmatize mental health issues in people that don’t have them. Empathy is hard sometimes, everybody wants to be empathic but unless they are educated they will fall short.
SebbyGrrl* February 22, 2018 at 8:18 pm Also, (very late to the conversation) This isn’t about wanting to be disabled. As people with depression and anxiety have said – we can KNOW there is no logical reason to feel as awful as we do as it’s happening and still have zero power to NOT BE depressed, anxious, dysfunctional, et. al. BIID doesn’t cause someone to WANT to be disabled – it causes their brain chemistry to SAY “THERE IS SOMETHING WRONG HERE, what manifests outwardly is NOT How YOUR BODY is SUPPOSED to BE.” One can’t simply/JUST BE better, agree bodily with what your mind is telling you by force of logic or will or meds. or treatment – any of those things MAY change some of it for the better but may not or may come with side effects that are MORE DEBILITATING. And a huge portion of mental illnesses is that they lie, they cause the systems of our minds and bodies to produce bad information, bad feedback, bad feelings, bad physical states ( depression and anxiety can come with physical pain or other overt physical features like panic attacks). If you haven’t ever suffered from these issues, that’s great FOR YOU. But you have no measure to deny others’ reality solely because you haven’t had a comparable experience or reality. Do the White House, Eiffel Tower, Great Wall, NYC not exist because you have never been there, seen it, touched it, experienced it? One’s own experience by itself is not a good measure of validity of the plethora of experience of humanity.
Fortitude Jones* February 21, 2018 at 11:17 am That’s the thing about mental illness – you can logically know that your thoughts make zero real world sense, but still not be able to alter your thinking or behavior without serious effort or intervention from a trained professional. I’m curious if Drew’s had any help at all – this seems incredibly sad to me.
Kj* February 21, 2018 at 11:20 am That is my question too- Drew appeared in a documentary about this- surely he knows treatment exists and is choosing not to have it. That said, that isn’t something an employer should touch with a 20 foot pole.
5 Leaf Clover* February 21, 2018 at 11:29 am We don’t know that he is choosing not to have it. I’m sure these treatments don’t work overnight.
Anon,Anon, Anon* February 21, 2018 at 11:31 am True. I did make an assumption. I hope he is in treatment. I’m worried about what happens if/when his team finds out.
CmdrShepard4ever* February 21, 2018 at 12:14 pm Also mental illness is usually not something that is ever really “cured,” most people deal with it their whole lives. It can be treated and managed, but it is always possible for it to recur or to have an episode of greater severity than normal.
Zillah* February 21, 2018 at 2:09 pm Yes. I think it’s also often useful to adjust what we see the goals of treatment to be. It’s not necessarily to eliminate the symptoms – it’s to get them to a point where they’re manageable and don’t profoundly impact one’s functioning. If eliminating symptoms entirely or “curing” the illness is on the table, that’s great! It’s often not, though, which can mean setting priorities and making judgment calls. I don’t know what Drew’s situation is, but I do think that’s something to keep in mind.
Kimberlee, Esq.* February 21, 2018 at 11:30 am I mean, he definitely could be in treatment/therapy/whatever! People who are seeking treatment for depression are often still depressed, as treatment is neither instant nor 100% effective.
Princess Consuela Banana Hammock* February 21, 2018 at 11:32 am Great point! My depression, for example, is fairly well managed (but it’s also not as severe as it is for others). Treatment does not mean it will ever be “cured,” and it doesn’t mean I won’t have bad periods where it’s less manageable.
Elfie* February 21, 2018 at 11:54 am Yes, I’m on the highest dose of anti-depressants my doctor will prescribe, I go to therapy/CBT twice a month (and have done for years), and on my best days I only have to spend a couple of minutes debating whether it’s worth getting out of bed. On my worst days, I just don’t bother. And I have a husband that loves me, a job I love, my life from the outside looks ideal – my brain just tells me that I’m a worthless, selfish human being who will never do anything right, and I’ll never be happy so it’s all just pointless. I live with that EVERY DAY. I don’t remember the last time I was sustainably happy. It’s managed, much like diabetes gets managed. Not all mental health disorders are the same, but it’s perfectly possible to be in treatment and still suffering.
Sammy Mcsamson* February 21, 2018 at 11:17 pm Jenny Lawson (thebloggess.com) has two amazing and hilarious books about her life, mental illness etc. I can’t remember which one it is, And I’m paraphrasing, but she says that when a cancer patient’s chemo suddenly stops working people don’t say maybe you need to try harder. I really, really recommend her books. And her site. I know a little off topic, but still.
Hera Syndulla* February 21, 2018 at 7:21 pm For all we know, the wheelchare *might be* (part of) the treatment.
Princess Consuela Banana Hammock* February 21, 2018 at 11:30 am That’s not accurate. People with this condition suffer, and theee are few treatments that are effective at completely getting someone to shed their belief/desire to have a disability. This is a hot area in medical ethics because some folks will seek voluntary amputation of healthy limbs to make their body conform to their view of themselves. It’s not quite the same as gender reassignment surgery, but it’s very similar. I think this is a situation where compassion and suspension of judgment can be helpful. Instead of thinking of Drew as “flaunting” his “choice” to use a wheelchair, consider that he may have been trying to draw attention to an issue that is not yet well understood.
Countess Boochie Flagrante* February 21, 2018 at 11:49 am Yep, and if they can’t get the voluntary amputation of healthy limbs, sometimes they will go to extreme measures to render those limbs unhealthy, and put their lives at risk in doing so. It’s a sticky and messy area of medical ethics, that’s for sure.
Former Employee* February 21, 2018 at 2:20 pm It sounds more like anorexia to me. The people who have it see themselves as fat. The people with this disorder see themselves as disabled. In that sense, both are issues of distorted perception.
Hildegard Vonbingen* February 21, 2018 at 11:45 am It’s not at all clear that he’s choosing not to have treatment. Also, let’s assume he is getting treatment. Not all treatments for psychological/neurological issues are effective. A good example is hoarding. Notoriously difficult to achieve change through treatment. And that’s just one example. I’d definitely loop in HR. This is, as Alison stated, a tricky situation, and on a number of fronts. Going by some of the comments here, if others on his team find out about his condition, they may jump to conclusions about this individual that aren’t valid (e.g. he’s not getting treatment, he’s not “really disabled”). That could affect team dynamics and how this employee is treated. HR pros can help sort out any future complications in an appropriate way and provide good guidance to the employee’s manager going forward. I know I’d want help with this situation.
SebbyGrrl* February 22, 2018 at 8:27 pm See my late comment above – there is no ‘Choice’ here. Mental illness creates untenable states between mind and body and rational mind and sick mind. Do people with brain tumors choose for medication or radiation/chemo to work or not to work? No, our minds/bodies respond (for better, for worse or minimally) or they don’t. BIID is a mental illness caused by either brain chemistry (not necessarily treatable with meds, therapy, etc.) or a physiological issue/disagreement between brain and body that current medical science cannot correct completely. He doesn’t WANT TO BE this way or CHOOSE TO BE this way, his brain is sending messages to his physical body that he IS this way – self control, self awareness don’t come into play.
Margarete* February 21, 2018 at 11:24 am Brains aren’t logical. I know *logically* that I’m not hated by everyone I ever encounter, but my mental illness means that understanding and believing that is incredibly difficult. It sounds as though Drew is handling it as well as he can.
Anon,Anon, Anon* February 21, 2018 at 11:30 am Unless Drew is in some sort treatment, he is not handling it as best he can. Sorry, I have mental illnesses myself and had a VERY bad eating disorder in the past. When I was refusing the offered help, I was not doing the best I could. Thankfully, I had people who continued to offer me (and at times force me) to get help and I got better with time and lots of effort. But if Drew is not choosing to get help, I really don’t think we can say he is doing the best he can. I have strong feelings about this, as no one chooses mental illness, but we can choose treatment for ourselves (barring barriers such as availability and cost). Now, he maybe he is getting help and it maybe taking time, as my treatment did. If so, I really applaud him for being brave enough to get help. It is not the employer’s business if Drew is getting help, so we can’t know if he is getting help or not. But this is going to be an issue for Drew’s team if/when everyone finds out.
Margarete* February 21, 2018 at 11:43 am When I say “handling it as well as he can”, I meant within the office environment – apologies that wasn’t clear. We don’t know if he’s seeking or in treatment for this and as such I’m not going to get into it. But within the office, he is managing this without calling undue attention to it – he doesn’t go on and on about being in a wheelchair, he just uses one.
Anon,Anon, Anon* February 21, 2018 at 11:53 am True. I feel bad for everyone involved. And I hope that Drew is getting help, although I bet treatment would involve giving up the wheelchair and that would be hard to explain to co-workers. Drew is ill and is handling some things well. But his co-workers will still be pissed if they find out and I won’t blame them for being upset. And Drew did the video, so some will find out…. Ugh, I hope the OP goes to HR. This could get ugly.
Gadget Hackwrench* February 23, 2018 at 11:26 am It might not mean giving up the chair. I read a great story once about a woman who had horrible paranoid delusions that she left her hair drier on and it was going to burn down the house. It made her turn back from work 4 or 5 times on her morning commute and left her anxious all day. She was in treatment for years with different practitioners and never got any relief. She couldn’t hold down a job. She was suffering constantly. Then one therapist suggested she simply take her hair drier with her, and if she was scared it was going to burn her house down, look at it and remind herself that it couldn’t because it was there with her. It worked. People of course would say that that’s not good treatment because now she’s wandering around with a hair drier in her purse, but the thing is once she started doing that she got a new job, gets in every day on time, feels more relaxed and in control. Her quality of life has shot thru the roof by comparison to any other treatment option. If sitting in the chair is the difference between Drew having an independent self-sufficient life, and spending all his time and energy on trying to deal with the mental anguish of NOT being in the chair, then why on earth should he suffer when he can actually LIVE a comfortable life if he sits in the chair?
Gadget Hackwrench* February 23, 2018 at 11:42 am It might not involve giving up the chair. There was this story about a lady with terrible paranoid thoughts every day that her hairdrier was going to burn her house down. She tried everything. All kinds of therapists, medications, meditation, what have you. She couldn’t hold down a job, have a social life, she was suffering terribly. Then one day a therapist suggested she simply take the hairdrier with her and look at it when she started thinking about it burning down her house, and know that it couldn’t be because it was there, with her. Some people would say this isn’t good treatment, because she hasn’t “gotten over it,” but at a certain point the goal of treatment needs to shift from fixing a person’s thinking to finding a way for them to rejoin society. Likewise, it’s entirely possible that Drew’s treatment includes staying in the chair, because everything short of that has failed, and there’s little point in having him dedicate all his energy and time to changing his thinking about his legs, if that will preclude him from being a part of society, and sitting in a chair brings relief and lets him work and live.
Gadget Hackwrench* February 23, 2018 at 1:15 pm Halp Moderator. First it ate my comment then when I reposted it it un-ate it and now it’s here twice!
Robert Walker* February 26, 2018 at 11:47 am What if there is a fire in the building…and the employee is given special attention by several other employees, thereby delaying emptying a building. People are warned to NEVER use an elevator during a fire….so several people have to carry him down flights of stairs? Delays and risks occur…when he could have just got up and used the stairs…If here are injuries or deaths that could been prevented, are the people/ company that covered up this situation negligent in ANY way? An. attorney representing those people would say “YES”.
Jadelyn* February 21, 2018 at 12:09 pm Alternatively, we could not audit people’s “best” and decide that they have to conform to our ideas of what “doing their best” would look like. We could just decide to, idk, trust that people know themselves better than we know them, and offer them the basic human respect of assuming that they’re doing the best they can with what they have, which includes context that we don’t see from the outside. People rarely take any action for *absolutely* no reason. Their reasons may be transparently obvious to us, or they may be utterly opaque and leave us baffled, but there is almost always some kind of internal logic behind the action, whether we can see it or not. It seems to me to be simple courtesy to acknowledge that without literally being inside another person’s head and seeing the world through their eyes directly, we can’t know all the factors that lead to someone taking any particular action, and so if they’re doing something we don’t think is “their best” then there’s probably a reason, which means that *is* the best they can do, in this moment, in the context they’re living in.
Galatea* February 21, 2018 at 2:36 pm +1 (Plus — your best efforts overall may not be your “best” in any singular given situation, if that makes sense? Ex. I can willpower my way through some of my own mental health issues, but doing so in one arena is almost certainly going to short me somewhere else down the line.)
Hey Nonnie* February 21, 2018 at 12:15 pm I’d also (vociferously) dispute that it is universally true that not being in treatment for mental illness means you’re not doing the best you can. There are people who are too poor to pay for treatment. There are people who are uninsured. There are people who live in areas where appropriate mental health practitioners are just not available. There are people who tried treatment and found it kept them stuck or made them worse. There are people who tried to get an appointment and were turned away for reasons ranging from the facility is overloaded with patients to the staff are unsympathetic and bad at their jobs. There are people who are at a point where trying to find yet another facility / therapist / dosage / medication cocktail is just too exhausting and they need time and space to just be alone before they can take that search up again. There are times in life where doing your best means functioning at a much lower level than those around you, or at a much lower level than you have in the past, or may do in the future. Sometimes your best is actually pretty damn poor. That doesn’t mean it’s not your current best under current circumstances and currently available resources, both external and internal. Yours is an incredibly privileged position to take. And frankly I’m appalled that you’d judge someone else’s mental illness that way.
pope suburban* February 21, 2018 at 12:41 pm Thank you for speaking up for those who cannot access treatment. I was too poor to get therapy for a long time, and yet not poor enough for state health insurance that frankly didn’t have much if anything in the way of usable mental-health planning. Being in that situation was not good for my depression and anxiety, and there was a lot of shame over not treating issues I knew I had, mostly because of this idea that therapy and medications exist, and it was somehow on me to obtain them regardless of other logistical barriers. I know I am far from the only one. I don’t know that Drew has going on, but I’m pretty sure he’s not living a carefree and easy life regardless, and anyway I don’t feel that it’s my prerogative to judge him.
JessaB* February 21, 2018 at 1:16 pm thank you. Ever since they gutted the mental health industry for a lot of people even with a tonne of money, time and insurance, just finding a practitioner is more than they can do, because they just aren’t there. Add in no money, no insurance, no transportation and you’re edging in on the impossible. Many people who have the spoons to attempt therapy of some kind have to go through more than one practitioner just to find someone who helps them. Psych care is finicky and there are all kinds of differences from one practitioner to another from anything to types of therapy, OMG I just hate this person, I don’t want meds and this person is a meds type. It ain’t easy, and most psych disorders sap your energy and willpower, every time you get out and try and it doesn’t work, it makes it harder to try the next time.
Beep* February 21, 2018 at 11:57 am I have now watched like five youtube videos on BIID. Surprisingly, in one instance, a woman wanted to make herself blind and the therapist POURED IN THE DRAIN CLEANER FOR HER.** I think it is percieved as “they won’t feel like themselves if they are forced to be able bodied” just like if you forced a trans person not to transition. So I think that the doctors and therapists want to help them just do it in the safest possible.*** ** in all caps because while I logically understand the condition. I can’t disconnect emotionally and having someone pour drain cleaner into my eyes is insane. *** not saying pouring drain cleaner into your eyes is safe or was the best way for anyone to come about it
AngelicGamer aka that visually impaired peep* February 21, 2018 at 12:17 pm I am legally blind and heard of the therapist who did that. I still cannot wrap my mind around someone /wanting/ to be blind. It makes me want to go back in time and swap eyes with her if I could. That way, we could have what we both want. I wonder if anybody’s thought of that as a form of treatment for BIID? That way, the one with BIID gets what they want and someone who is disabled gets what they want.
namenamename* February 21, 2018 at 12:55 pm I’m transgender and a medical ethicist. I would argue that they are not similar at all, except in the way the lay public gets squicked out.
Marvel* February 21, 2018 at 1:02 pm As another trans person I have to agree with this–let’s treat them as separate issues and not get into the weeds of comparing the two.
sap* February 23, 2018 at 3:36 am Can we stop making comments that equate being trans to having body dysmorphic symptoms related to genitalia, which are two distinct things? Many trans people do not have any problems with the genitals they were born with–many trans people never suffer from any genitalia-related dysmorphia (leaving the debate about whether the latter is mental-health related). Being trans and wanting to remove/add breasts or a penis are not the same thing; there is a reason “transgender” and “body dysmorphia” are different words.
Penny Lane* February 21, 2018 at 12:20 pm I wonder how the advice given here squares with the advice given a few years back to someone who saw a person who engaged with a mannequin the same way you would engage with a live romantic partner. That person lived under the delusion that the mannequin was a romantic partner — but I don’t think that obligated the office to invite the mannequin to the holiday party as his +1. “I have a delusion” does not equal “and everyone needs to indulge it. The comparison with depression is an invalid one, IMO, because having depression is not a delusional stage. One may feel unable to *handle* reality, but that doesn’t mean one has lost touch with reality.
sunny-dee* February 21, 2018 at 12:26 pm This, very much. There are clinical distinctions between disorders where you can’t process reality and ones where you simply don’t respond appropriately (like depression or OCD).
Ask a Manager* Post authorFebruary 21, 2018 at 12:32 pm I do not think that letter was here, unless I have completely lost my memory.
fposte* February 21, 2018 at 1:01 pm I have a vague feeling that there was a Dear Prudence along those lines.
LBK* February 21, 2018 at 12:55 pm Speaking as someone with depression, I’d disagree that it doesn’t involve at least some level of delusion. Your brain convincing itself to be sad, tired, anxious, etc based on no logical stimulus sounds like delusion to me, albeit more mild than something like BIID. When I was laying in bed physically unable to move during very deep bouts of depression I wouldn’t say I was fully in touch with reality.
Risha* February 21, 2018 at 1:43 pm +1 When I went through the partial hospitalization program that first diagnosed me with bipolar disorder, the difference between before the antidepressant kicked in and after the antidepressant kicked in was like night and day. My thoughts beforehand were only tangentially related to reality, but it was impossible to see while actually suffering from the depression.
suzygreenberg* February 21, 2018 at 5:18 pm Penny Lane I believe you are thinking of the film Lars and the Real Girl–not a post on this site lol.
Gingerblue* February 21, 2018 at 9:36 pm No, I definitely saw this as a question in an advice column sometime in the past year.
Annakarenina* February 21, 2018 at 11:36 am Agreed. I’m seeing a lot of connection to Rachel dolezal. Marginalization isn’t there for the privileged to claim as they see fit. The mental illness side of it obviously makes it more complicated – but I am cringing at the thought that treatment is indulging it, rather than addressing it. Though that line of thought can be taken to absurd and dangerous if applied to sexuality/gender, so with all things, it’s super complicated and there’s no easy answer. My gut reaction cringe and horror at a person who is presumably privileged in many ways (affording the wheelchair, van, etc… paints a SES picture) living life as a marginalized person remains.
Rat in the Sugar* February 21, 2018 at 11:42 am But how on earth do you “address” someone’s mental illness? Just tell him to stop having it? Also, as someone who has mental illness, I want to push back really strongly on the notion that we are “privileged”. Yeah, everyone has different types of privilege, but struggling with mental illness that has you convinced that parts of your own body are “wrong” or don’t belong to you is a huge thing to deal with in your life and I don’t think that should just be swept aside.
Ask a Manager* Post authorFebruary 21, 2018 at 11:44 am I don’t think anyone is suggesting that treatment should be indulging it rather than addressing it, but Drew’s coworkers aren’t in a position to treat him.
Annnon* February 21, 2018 at 12:17 pm If only he worked for the boss pushing cupping and acupuncture…
Marshmellin* February 21, 2018 at 12:17 pm Rachel Dolezal was in a place where she could remove that marginalization at any time, if she chose. If Drew does have a mental disorder where he does not believe he can walk (or believes his legs won’t work), I’m not sure he’s in a position where he can remove that marginalization on a whim. I’m not sure in what context he was walking in the documentary (under hypnosis? With a VR headset so he doesn’t realize his legs are working? Just plain ol’ he was walking?) but he may not be able to consciously choose to stand. Rachel Dolezal can choose to stop tanning and slip effortlessly back into her white privilege.
sunny-dee* February 21, 2018 at 12:25 pm Isn’t that an assumption, though? Drew is just as capable of removing the marginalization as Rachel Dolezal or Shaun King — because there’s just as much reason to believe they have a mental illness as he does. (Both of them have straight up said their parents aren’t actually their parents. I mean, it’s extreme.) Or, conversely, that a mental illness isn’t enough of a reason to lie.
Best wishes to OP* February 21, 2018 at 12:45 pm That’s making a huge assumption to say he is “capable of removing the marginalization.” Paralysis can be caused by a psychiatic condition. Just because he is in a video that shows him walking at one time does not mean he can walk at any time. We do not know enough about Drew to be saying what he can, cannot, or should do. Neither does OP. He’s obviously got some serious and rare issues and it’s not reasonable to assume we know what he can or should do.
Becca* February 21, 2018 at 3:23 pm Sunny can correct me if I’m wrong, but, considering the rest of the comment, I took “just as capable” as meaning in this instance “neither is very capable at all,” in much the same vein as Hey Nonnies comment below. I’m not sure where the “Shaun King is likely mentally ill” comment and ensuing counters comes into this, so I won’t touch that, but (and not having followed it very closely, granted) I do agree as far as Rachel is concerned. Not that I don’t understand the emotional reactions of the communities she or Drew were claiming as their own either.
Natalie* February 21, 2018 at 1:52 pm Re: Shaun King, I’m assuming you’re referring to the article that circulated a couple of years ago questioning whether or not he’s black? He is – the “parent that isn’t his (biological) parent” is his adoptive white father, but his biological father was black. Fun (possibly not fun) fact that I did not know – the author of that original article was Milo Yiannopoulos, so, you know, consider the source.
RVA Cat* February 21, 2018 at 2:13 pm Also consider that Shaun King was severely beaten by white racists when he was just a teenager. So, yeah.
August* February 21, 2018 at 2:32 pm Thank you for mentioning this, I was really confused by the reference to Shaun King
Triangle Pose* February 21, 2018 at 2:07 pm What? Shaun King is nothing like Rachel Dolezal. His biological father is black. A white police wrote on a police report that he was white because he is light skinned and there was no option for biracial. The police officer who listed King’s race as “white” was later interviewed and stated that everyone who knew King knew he was biracial.
Hey Nonnie* February 21, 2018 at 12:25 pm Rachel Dolezal is a tangent, but I’d point out that if you watch / read Rachel herself attempt to explain herself, it’s pretty easy to see how disordered her thoughts are on the matter. She has her mental “safe zones” and retreats there whenever pushed to confront something uncomfortable for her. I don’t think appropriating from a place of privilege and mental illness are mutually exclusive.
Lissa* February 21, 2018 at 1:05 pm I think Rachel Dolezal is a really good example of the spectrum of sympathy, mental illness etc. Whether or not she’s diagnosed, there’s *something* going on there that is likely not her consciously choosing/deciding to be a jerk, but because we recoil so much from her actions, in a way we don’t with other “I perceive myself to be this way but my body does not match that” situations, because of the privilege concern….and I think Drew seems to be falling in the middle with that. (This is assuming Dolezal does have something going on mentally/emotionally and is not just a scammer, but I see waaaaay less sympathy directed to her than to people like Drew.)
Hey Nonnie* February 22, 2018 at 5:36 pm To be clear, I don’t think Dolezal is delusional (in my completely inexpert I-am-not-a-psychologist opinion), based on the way she speaks about herself in interviews. She seems to be aware of the reality, she just goes through all sorts of verbal gymnastics to avoid confronting it. In my mind, that’s a bit different than someone who struggles with delusions; her capacity for walking away from the self-imposed marginalization hinges on a willingness to do something uncomfortable, rather than on altering reality as she knows it. There’s also the issue of real, concrete harm. Dolezal got a teaching position, leadership positions, and other concrete benefits that presumably would have gone to someone who was AA if she hadn’t been around. Drew, at this point, is not receiving limited benefits from his employer that would otherwise go to someone who actually needs them.
chomps84* February 21, 2018 at 1:34 pm But this person isn’t privileged! HE has a mental disorder. That is not a privileged status.
Zillah* February 21, 2018 at 2:38 pm SES privilege absolutely exists. It also absolutely does not erase disability. Medicaid covered the wheelchair and my family was able to afford a van when my mother’s ALS progressed to the point that she couldn’t ride in a car. We are in a better position than someone with the same diagnosis who has less money, but SES privilege doesn’t mean that she’s not living life as a marginalized person with a significant disability. I think the most compassionate (and productive) way to think about privilege that you don’t have a lot of sympathy for isn’t to go into it thinking “What privilege does this person have that cancels the other thing out?” It’s to go into it thinking “If someone was in my position except for X characteristic, how would things be different for them?” It’s always going to be more complicated than that because privilege (and lack thereof) absolutely intersects, but it’s a good way to start looking at it in a different way. Not having enough money for basic needs always makes a situation, but having money doesn’t solve other issues. Rich women still get raped and abused. Rich black men still get told that they should be “grateful” that they get paid to play a sport that millions of people watch every week. Rich people with depression still commit suicide. There’s nothing simple about any of this.
fposte* February 21, 2018 at 3:04 pm Yes, I was thinking about exactly this. It’s not “everybody privileged on this side, everybody else on the other”; we all have different facets that grant us different accesses to privilege in different realms.
Marie* February 21, 2018 at 12:33 pm I struggle with this as I understand its a mental illness but as someone who does actually use a wheelchair (I have a condition that fluctuates in severity sometimes I can manage on crutches sometimes I need a wheelchair). I have often been accused of faking, especially when I was first diagnosed and turned up in a wheelchair for the first time when I was in high school. I was bullied quite badly over this and still have issues as a result. In a professional environment I struggle to be taken seriously due to my disability and people like this guy perpetuate the idea that people like me are faking to get additional privileges. If I worked with him I doubt I could remain civil. What happens if the company hires a genuine paraplegic? The OP better make sure at the very least if they are going to give physical accommodation in the form of parking spaces to this guy they have enough to give them to anyone else who requires them. I do understand it is a mental illness but as I would give anything to have a functioning body (my condition is degenerative) I do not think I could work with someone like this and remain professional.
Genevieve* February 21, 2018 at 3:16 pm Gonna suggest folks with mental illness stay out of this comment section, fyi
Mephyle* February 21, 2018 at 12:38 pm A key quote from the National Post article: “this disorder is starting to be thought of as a neurological problem with the body’s mapping, rather than a mental illness” For more information, try a search on the terms biid neurological. I had just got as far as typing “biid ne…” into the search box, and Google was already suggesting “neurological” to complete the second word.
Mephyle* February 21, 2018 at 12:42 pm What does that mean? For example, long ago, epilepsy used to be considered a psychiatric disorder, but now is understood to be a neurological condition.
Perse's Mom* February 21, 2018 at 9:07 pm Someone much further up mentioned scans showing that in at least some cases of BIID, the brain literally doesn’t recognize pain in the affected limb or region, but comments further down also mention there are changes in the brain for other mental illnesses as well. I would guess it’s something rather specific – either a way to see a physical response (or non response) to the condition – a seizure lighting up one part of the brain, a pain center NOT lighting up on someone with BIID? Perhaps mood disorders don’t show the same kind of response patterns and are therefore currently classified differently? (Neurology is fascinating, clearly I know nothing about it, just thinking ‘out loud’ as it were.)
Sometimes yes, sometimes no* February 21, 2018 at 12:43 pm Philosophical tangent, but what distinguishes a neurological problem from a mental illness? Is it physical manifestation of the “crossed wires”?
fposte* February 21, 2018 at 1:02 pm I don’t work in these areas, but the more I learn, the more I believe the answer is “mere convention.”
Sometimes yes, sometimes no* February 21, 2018 at 1:19 pm That was my interpretation as well. It seemed like a curious way to “medicalize” the “psychological” – maybe a better framework for approaches to treatment? Or maybe just an attempt to destigmatize. I hope the former, because the latter means we have a long, long way to go.
fposte* February 21, 2018 at 1:29 pm I suspect also it’s dependent on the technology that was around when an illness first became notable. Alzheimer’s got defined after we could look inside people pretty easily and see quantifiable changes, so that’s how it entered rhetorical and public consciousness.
Elizabeth H.* February 21, 2018 at 4:16 pm I totally disagree! I think there are meaningful distinctions. Too off topic though.
Risha* February 21, 2018 at 1:26 pm Plenty of mental illnesses are either neurological issues or can arguably manifest as such. Off the top of my head, depression, anxiety, bipolar disorder, schizophrenia, and anorexia are all associated with observable changes in the brain.
Elizabeth H.* February 21, 2018 at 4:20 pm This is a red herring, though, because EVERYTHING changes the brain – learning to play the piano is also associated with observable changes in the brain. Teaching rats to run a maze changes their brain. Etc.
FoxyDog* February 21, 2018 at 1:57 pm To the best this of my knowledge, neurological means there’s a physical problem within the brain.
Topcat* February 22, 2018 at 8:55 am I can accept that with something like a limb that may not be wired properly to the brain. But this man can walk. This is a psychological affectation of wanting to present and be treated like a disabled person. I could imagine a caveman having a limb-mapping issue. I could not imagine a caveman having this contrived, modern disorder. Drew should be doing all he can to get over it, not indulging in it.
Neuro Nerd* February 21, 2018 at 1:09 pm Body Identity Integrity Disorder (the proposed name in the medical community) is increasingly classified not as a mental illness/personality disorder that expresses itself as an identity-based delusion, but rather an anatomical, neurological disorder that typically begins to present early in childhood. It involves damage or hindered development to the portion of the brain that maps and integrates the body parts and abilities in question. The result is a great deal of physical and mental stress, in reaction to the presence of a limb or a set of sensory inputs that the brain perceives but rejects as foreign and potentially invasive. The NCBI/PubMed database has a large number of recent, peer-reviewed articles on BIID, including a number that are free to read. https://www.ncbi.nlm.nih.gov/pubmed/28711223,28611645,27832097,27366074,25108391,25045269,24824202,24713336,24446228,23991064,23089967,22514657,22353728,22139385,22123511,22086292,22071988,21563047,21484872,20212002?report=docsum For those interested in a less wonky reading experience but something more substantive than your average clickbait, the book “The Man Who Wasn’t There” by science journalist Anil Ananthaswamy is aimed at a more general audience and includes a chapter on BIID.
fposte* February 21, 2018 at 1:30 pm Oh, this is super interesting and helpful, thanks; the Ananthaswamy book is going on my reading list.
Fact & Fiction* February 21, 2018 at 4:01 pm Trust me. If those of us with mental illnesses could just “overcome” them by wishing ourselves well, we would. They’re _mental illnesses_ that are just as real as physical illnesses. Our brains are malfunctioning in some way and we can no more “overcome” whatever deficiency we have than a diabetic can wish sugar into processing correctly or someone with a heart murmur can wish that away. Yes, we need to get treatment for our mental I’ll esses to the extent possible if it affects those around us, but we can’t just wish ourselves well. And this illogical belief that still permeates every corner of society—even among many of us due to social conditioning that we SHOULD be able to just “get over it” is why so many of us still die way more often than we should. It’s really important that each of us confronts our own beliefs when we find ourselves spreading the believe that people with mental illness can and should just overcome it. I wish it were really that easy…
fposte* February 21, 2018 at 11:07 am That’s definitely a weird one. I think it might be helpful for you to change your thinking on this. He’s not lying–this is his identity, that he’s apparently willing to invest considerable funds and time into for no external gain–he’s telling you a disordered truth.
Emi.* February 21, 2018 at 11:11 am But he didn’t tell OP that he wanted to be a paraplegic; he told her that he *is* a paraplegic, when he apparently knows darn well that he’s not one. How is that not a lie?
Tuxedo Cat* February 21, 2018 at 12:51 pm That and he’s in the documentary shown to be walking. It’s judgmental of me and I want to be empathetic, but I do think this would change how I see him if I knew.
grace* February 21, 2018 at 1:06 pm It would change how I thought of him, too, whether I wanted it to or not. Which is why I think OP should take a proactive approach — speaking to HR, assuming that coworkers of Drew’s will eventually see the documentary, etc.
Emi.* February 21, 2018 at 11:13 am To be clear, I don’t think that really changes what the OP should do, since he hasn’t asked for real accommodations. But it is a lie.
Loose Seal* February 21, 2018 at 3:33 pm As I said above: Frankly, it’s entirely possible that Drew knows full well he has BIID (if he does) but finds it easier to tell people he is paralyzed rather than educate people about a mental health disorder. How many commenters have said that they keep their mental health diagnoses under wraps rather than face the judgment and stigma that might come with it at work?
sap* February 23, 2018 at 4:00 am Yeah, this is totally baffling to me too. Especially in light of the many comments that “he should just walk,” which he was probably trying to AVOID at work. It is obnoxious to explain *any* complicated medical problem using fully accurate terminology in a way that does not invite further discussion. I have a medical condition that causes me to have complicated physiological responses to *being colder than like 55 degrees,* which involves actually having my immune system go into high gear and trigger all of the responses to an infection, like fever, vomiting, sneezing, etc. I am not immunocompromised; my body fights off actual infections very effectively. But explaining why I can’t do x because I will get a fever is complicated and time-consuming and lots of people just decide that actually I don’t like the cold and should suck it up… So you know what I tell people? “I’m immunocompromised,” because I need the exact same types of things as someone in that condition and people generally have a sense of what the medical needs are for it. This seems like exactly the same thing–instead of taking hours to explain exactly what he needs to function safely, he told everyone to treat him like a parapalegic because the things he needs are the same, and it takes all of 10 seconds vs an hour of discussion with a stranger.
sap* February 23, 2018 at 4:06 am *by things he needs=same as being parapalegic I don’t mean his medical, treatment needs and prognosis/future needs are the same at all; I mean his needs with respect to his employer, which in this case is “don’t require anything from my legs.”
Countess Boochie Flagrante* February 23, 2018 at 3:32 pm This is a really good point. There’s not much room to get upset with people for not telling you something that was none of your business in the first place, like the intimate details of their medical issues. Drew uses a wheelchair? Okay, we’re going to treat him as someone who uses a wheelchair, whether he does it because of BIID, because his legs will support him fine but he has balance issues that might make him fall over, because he’s fully paralyzed from the waist down — doesn’t matter!
serenity* February 21, 2018 at 11:13 am And more importantly, what is going to happen when the rest of the office finds out? If it were me, I would mind my business and move on but I’m guessing OP can’t guarantee that their other reports will do that. I can see this turning into a bit of a problem.
Detective Amy Santiago* February 21, 2018 at 11:18 am As someone with a very close friend in a wheelchair, I would be incredibly offended and find it difficult to work with Drew if I learned this.
Kj* February 21, 2018 at 11:24 am This. This is the problem. It is going to bother A LOT of people if it gets out. OP, does Drew have a disabled parking spot permit? Or is this just an informal arrangement? I’d be bothered if he had a disabled parking permit, as he would be taking a spot that could be used by someone who needs it. But if it is just an informal arrangement, it isn’t as bad.
Loose Seal* February 21, 2018 at 3:46 pm In my state, a doctor has to sign off on the form that allows you to get a parking permit for the blue slots. Perhaps that’s not so in Drew’s state but I imagine it’s pretty common. That would mean that at least one treatment provider was willing to say that he needed it.
Reya* February 21, 2018 at 11:41 am I understand the emotion – I guess it’s similar to the outcry when Rachel Dolezal was revealed to be genetically white. But Drew isn’t profiting off this from the sounds of it, or really benefitting in any meaningful way. He has lied about it, sure, but it sounds like the type of lie told just to give an explanation and close the subject down – he’s not trying to call attention to it, or use it to gain something. It sounds like Drew is just more comfortable using a wheelchair. I get that if you CAN’T walk, it must be really upsetting to hear of someone who can, and is choosing not to. But it’s something that ultimately it’s going to be better for your (or anyone’s) own mental health to rise above – remind yourself that Drew isn’t hurting anyone with his choices, and you don’t always agree with the path someone chooses to take in life but it’s still their right to take it.
Yada Yada Yada* February 21, 2018 at 12:18 pm This reminded me of Rachel Dolezal as well. People were trying to coin the term “transracial” back then similar to one of the articles shared above referring to “transdisabled”
Jules the 3rd* February 21, 2018 at 11:45 am As someone with a mental illness, I would be supportive of Drew and your friend. I’m assuming you’d be concerned that people would see Drew, figure out he doesn’t have a physical requirement, and apply that knowledge to others (ie, “he’s faking it, they’re all faking it” bull). People who would be influenced negatively by Drew’s situation and apply their negativity to your friend *would do that anyway*. Drew would just be another piece to support their confirmation bias. The problem is with the judgemental people, not the subjects of their judgement. The other possibility is that you think Drew’s use somehow dismisses your friend’s difficulties. They don’t. Intersectionality and not comparing tragedies can be hard to do, but it is important that we make that effort. This is especially true when interacting with people with mental or other non-visible illnesses like MS or fibromyalgia. I really like Alison’s reframing of this.
Natalie* February 21, 2018 at 11:46 am Why does being close with someone who uses a mobility aid give you a pass to be “incredibly offended” about someone else’s medical condition? I’m also close to some people with disabilities and I’m not incredibly offended, does that mean we cancel each other out?
Detective Amy Santiago* February 21, 2018 at 11:59 am Because my friend didn’t choose to have a debilitating physical disability that causes her chronic pain and untold suffering.
Natalie* February 21, 2018 at 12:12 pm Did you actually read what I wrote? I’m not asking about your friend – I’m sure she can speak for herself about her own opinions on this topic if she wishes. I’m challenging your use of a person with disabilities to give your opinion on someone else’s disability more weight.
Rat in the Sugar* February 21, 2018 at 12:16 pm Sorry, didn’t refresh the page. Didn’t mean to answer for you!
Thursday Next* February 21, 2018 at 5:33 pm Perhaps because she cares about her friend and feels empathy for her friend’s situation? I don’t ready Detective Amy as saying her opinion counts because she knows someone who uses a wheelchair. But she clearly feels compassion and anger for her friend’s struggles.
Rat in the Sugar* February 21, 2018 at 12:14 pm Not to speak for Natalie, but I think you’re implying that she said your friend doesn’t have the right to be offended when what she said was that YOU don’t get a pass to be offended on her behalf. You’ve left several comments about people appropriating the identity of disabled people, but aren’t you doing something similar by speaking for your friend and expecting your words to carry the same weight that hers would when you yourself are not disabled?
Penny Lane* February 21, 2018 at 12:25 pm Wait, are there points we need to amass before our opinions are valid? If I broke my leg and temporarily used a wheelchair, do I have more points than the person who has never broken a leg? Do I get points if I grew up with a sibling who had a wheelchair? Would love a link to the scoring system so we can evaluate everyone’s opinion validity.
JB (not in Houston)* February 21, 2018 at 12:49 pm @ Penny Lane I’m not sure where you’re getting that from, but you seem to be seriously misreading what Rat in the Sugar or Natalie said.
Tuxedo Cat* February 21, 2018 at 12:55 pm I don’t think it gives her or anyone a pass, but I can see how it’s more personal and might mean they’re more offended. It might not, too.
Loose Seal* February 21, 2018 at 3:52 pm Heck, I use a wheelchair oftentimes myself and I’m not offended by Drew’s use of one, whatever the reason. His use of one doesn’t cancel out my use of mine. And if we worked together, it would be the company’s job to accommodate both of us in reasonable ways. And a reasonable way isn’t to make Drew prove he needs it just as much as me, to be clear. It’s listening to what we say we need and doing those things, if possible. If it’s not possible, having discussions as to what else might be possible. I don’t really need anyone to be offended on my behalf. Perhaps, Det. Amy, you should ask your friend if she does.
Q* February 22, 2018 at 9:32 am I would think, having made the accommodations for one person (for WHATEVER reason), would give them an established method and plan for accommodating another person with similar complications.
Jaguar* February 21, 2018 at 12:37 pm My dad’s in a wheelchair (sort-of – Parkinson’s, so he’s wheelchair-bound only most of the day) and I don’t care at all about this and would be fine working with him. I find it really hard to care if a dude wants to spend his day in a wheelchair. Am I really alone in this? Can I get a sanity check from anyone that feels similarly? It seems like a waste of time and energy to get upset about this.
fposte* February 21, 2018 at 12:40 pm I think the practical concern is pretty much nil. But I think the discussion about the rest of it is still pretty interesting.
Jaguar* February 21, 2018 at 12:57 pm Yeah, it’s interesting. I think, though, that on the individual level, if you’re getting upset or offended by someone using a wheelchair when they don’t need it (regardless of it’s related to a mental health issue), you should consider how easily you get offended and whether it might be a problem with your sensitivity rather than someone else’s insensitivity. Dude can operate fine in the world with a wheelchair even though he doesn’t physically need one. We’ve made an advance. Who cares? It’s like getting upset when people eat gluten-free food when they don’t have any problem digesting gluten. Sure it’s obnoxious, but move on.
Loose Seal* February 21, 2018 at 3:58 pm I would say it’s only obnoxious if they make it obnoxious, like making the restaurant clean the grill before cooking their gluten-free food even though they know they just prefer GF rather than need GF. Or angrily refusing to tip the waitperson who pointed out that what they ordered contained gluten. (Both of which I’ve sadly been witness to.) If they just quietly went about their chosen GF life like Drew is doing here with his wheelchair use, I’d say it’s fine. But that’s a really good comparison about people getting upset over things that don’t generally concern them.
Temperance* February 21, 2018 at 1:04 pm I’m recovering from a significant and unpleasant injury. The thought that someone would fake this is beyond the pale.
Purplesaurus* February 21, 2018 at 11:17 am Well, what about people who are one sex but identify as another? I don’t think trans-women are lying when they call themselves women.
Detective Amy Santiago* February 21, 2018 at 11:19 am There is a WORLD of difference between being trans and co-opting the identity of a disabled person.
Leatherwings* February 21, 2018 at 11:21 am Yeah, I agree this is not a helpful or correct analogy. There are bodies of evidence on gender dysphoria. Drew is sick, trans people are not.
Princess Consuela Banana Hammock* February 21, 2018 at 11:37 am There’s a difference between copying identity and body dysmorphia, too, though. Of Drew does have an illness that causes him to believe his body doesn’t match his identity, then it’s more similar to issues facing trans folk (although not equivalent) than appropriators. We don’t know which applies to Drew, but if it’s a medical condition, then I think folks need to be willing to add some gray to the issue.
Countess Boochie Flagrante* February 21, 2018 at 11:50 am Are you suggesting that Drew is choosing to suffer from mental illness?
Detective Amy Santiago* February 21, 2018 at 12:00 pm I am suggesting that Drew’s use of a wheelchair and telling people he is a paraplegic is not actually treating his mental illness.
Countess Boochie Flagrante* February 21, 2018 at 12:03 pm Okay, cool? It’s not actually the OP’s business whether Drew is getting treatment or not, or what form that treatment takes.
Anon,Anon, Anon* February 21, 2018 at 12:02 pm We don’t choose to have mental illnesses, but we can choose to seek treatment or not (we can’t know what treatment Drew might or might not be in, this is a more general statement). I am big on this belief, as I am a person with mental illness and a history of other illnesses. I didn’t choose any of them. But at times, I choose to not to use the help being offered and that WAS my choice (and a poor choice, BTW). We can’t choose our illnesses, but we do get to choose how we try to get better. I know people who choose to reject help and choose to not try to get better (some things are hard to get 100% better from, but there is nearly always some progress that can be made). This is all assuming the person will the mental illness has access to treatment, which can be a false assumption in the states. We can’t know Drew’s treatment history. He may be doing the best he can. But regardless, he co-workers are going to be PISSED at him if they find out and that will such for Drew and the team.
Detective Amy Santiago* February 21, 2018 at 12:23 pm I’m kind of flabbergasted that so many people are excusing Drew’s behavior with “oh, he has a mental illness” when the comments on the bird phobia post very strongly pointed out that a mental illness is not an excuse to harm another person. What Drew is doing is harmful to people who are actually paraplegic and require the use of wheelchairs.
SarahKay* February 21, 2018 at 12:34 pm But how is Drew harming people who are physically disabled? OP says he hasn’t asked for any accommodations. He’s got the use of a disabled parking spot – but presumably a second could be created if necessary. We don’t know that he’s using a Disable parking pass. I’m really not seeing that Drew is hurting other people.
Jessie the First (or second)* February 21, 2018 at 12:38 pm “What Drew is doing is harmful to people who are actually paraplegic and require the use of wheelchairs” How, though? Not a snarky question. I am legitimately baffled.
Fiennes* February 21, 2018 at 12:41 pm The harm in the bird phobia post was someone literally being pushed in front of a car. Nothing Drew’s doing has anything like that kind of impact, if any.
Tuxedo Cat* February 21, 2018 at 12:58 pm I get where you’re coming from in some ways. There’s abstract ways where Drew might be harming others- similar to how people have claimed to have celiac and then don’t, which leads to those with celiac not being believed. However, it doesn’t seem like Drew actually is harming anyone. It seem like he took anything from anyone. He hasn’t harmed anyone (physically or mentally). At this point, he’s just a guy in a wheelchair who doesn’t have a physical reason to use one.
Temperance* February 21, 2018 at 1:05 pm I thought that this comments leaned towards excusing him off all culpability because of his illness.
fposte* February 21, 2018 at 1:17 pm @ Temperance–I think the comments on the bird post tilt differently to different readers; I suspect comments people disagree with always carry more weight than those whose opinions they share.
Risha* February 21, 2018 at 1:48 pm Add me to the list of people who are legitimately baffled by you saying this is harming actual paraplegics. Unless you mean hurting their feelings?
Marie* February 21, 2018 at 4:41 pm To all those saying it isn’t harmful. I am not a paraplegic but I use a wheelchair due to a degenerative condition. I do not always use the wheelchair sometimes I can manage on crutches and I can just about stagger across a room in my house without any aids but I often need the chair for walking any distance. As I am often accused of not being disabled as I can technically walk. A lot of people think I am faking it (to the extent my wheelchair has been stolen, vandalised and I have been physically pulled from it. Most of these incidents were in high school when everyone involved was a stupid teenager but more than one has involved adults). In fact when I read the headline before I read the article I thought this would be an incident where the manager didn’t think a disabled employee was as disabled as they claimed as they didn’t always use a wheelchair. People who are fully capable of walking using wheelchairs promotes the idea that wheelchair users are faking it for special privileges. I understand (assuming he has this condition where people genuinely feel like something shouldn’t work and I have heard of it before) that it is a medical condition (I believe it is a form of body dis-morphia but I’m no expert). I understand he likely doesn’t mean any harm, he obviously isn’t do it to mock disabled people or for any material gain, and its probably an unpleasant condition to have if he is intentionally making his life more difficult (wheelchairs are not easy to use) albeit unpleasant in a different way to how being a paraplegic is unpleasant. However just because it isn’t intentional doesn’t mean it isn’t harmful.
Natalie* February 21, 2018 at 5:00 pm @ Marie, I don’t know, that sounds uncomfortably close to Respectability Politics. I have a hard time imagining someone being really woke about people with disabilities and then finding out Drew’s deal and suddenly becoming a bully. Isn’t it more likely that they were already kind of shitty and ableist and would have remembered anyone that reinforced their prejudices? They are responsible for the harm they do, not random bystanders that they’ve built into their stereotypes.
MCMonkeyBean* February 21, 2018 at 5:24 pm No. Full stop no. The man with bird phobia sent someone to a hospital. That is harming another person. To suggest that what Drew is doing is “harmful” on that level is absurd.
boo* February 22, 2018 at 11:49 am I think the mental illness question is getting stigma all over this question (and stigma is so hard to get off, even with borax). I know this is yesterday’s thread, so I should move on, but just one more thing. Having done some quick reading on BIID, I still don’t know much, but it appears that Drew could say, completely truthfully, “I have a neurological condition that affects my legs, and I need to use a wheelchair to get around.” That’s the literal truth, it’s just the moralizing about mental illness muddying up the works. He’s probably painfully aware of that, so I get why he said something more familiar. (See this thread, for example. Also so no one would push about which neurological condition? and have you tried positive thinking? and my sister’s cousin’s llama instructor had neuralgia and was cured by drinking only mineral water and vodka for a week, have you tried that?) Anyway, I’m off to try that llama instructor’s cure-all…
JessaB* February 21, 2018 at 1:26 pm Can we not say we can choose to get treatment or not, please? Treatment is not readily available/accessible to many people in the US today. There’s a lot of stigma whether you do or do not get treatment, presuming you can find a practitioner, get to and from sessions, afford whatever treatment they want you to try, and the next and the next if the first doesn’t work (It often doesn’t, and can make things worse.) There is a massive lack of psychiatric beds, a large portion of ER time is taken up with patients in psychiatric distress that they cannot help because help is a long term not a quick fix kind of thing, and they have no beds to transfer them to. Certain insurances do not cover mental health. Medicaid and Medicare are notorious for not covering certain types of inpatient care. The state of care in the US at least is horrendous. There is often no choice about it. And that’s presuming a whole lot about whether the person is capable of understanding they need care, in the first place. Many disorders mess with that executive functioning needed to admit you need and access care.
Talia* February 21, 2018 at 2:26 pm Not to mention a rather large community of psychiatric survivors– which is to say, people who *did* seek treatment and were horribly harmed by the treatment they got. For some mental illnesses seeking treatment can be actively dangerous.
traumanon* February 21, 2018 at 5:58 pm That actually happened to me. I was traumatized by a bad therapist who treated me incredibly inappropriately and ended up causing irreparable harm. I’m in therapy again now, but it took me literally over a decade to find a provider I could stand for more than a few weeks, much less trust at all. I still can’t talk about certain things with my current therapist, the person I’m *supposed* to be able to talk about those things with, or anyone else.
Pomona Sprout* February 21, 2018 at 8:46 pm Talia, I seriously question the existence of a “large community” of people who have been “horribly harmed” by being treated for mental illnesses. As one who has been enormously helped by such treatment, and who knows many others who also have benefited, that seems inappropriately alarmist, bordering on paranoid. Do you have a source for this claim that is based on something other than anecdata?
Hrovitnir* February 22, 2018 at 1:30 am I’m sorry Pomona, do you not understand different people have different experiences? There are a lot of mental health practitioners with different training and different amounts of skill – it’s certainly easy to harm people through being inadequately prepared even before touching on how people with mental health issues are very vulnerable to abuse. I have been lucky enough to never see anyone who treated me badly, but I have been to a lot of therapists (counsellors, psychologists) who were just… out of their depth. Frankly, my relationship with my current GP is one of the better ones I’ve had and the idea of finding a mental health specialist who will work for me is just tiring. I have friends who have had great experiences, and others who have been blamed for their assaults by their therapists or had them side with their abusive partner during marriage counselling as abusive people are generally pretty great at manipulating people. And no, I’m not going to spend my time finding studies for you.
KellyK* February 22, 2018 at 9:00 am Pomona Sprout: https://en.wikipedia.org/wiki/Psychiatric_survivors_movement Just because lots of people have been helped by psychiatric treatment doesn’t mean that many people haven’t also been harmed, any more than the fact that many people have had helpful and successful surgeries means that medical malpractice doesn’t exist. Psychiatrists and therapists are humans who have biases and make mistakes, just like any other profession. Added to that, even necessary and appropriate psychiatric treatment can be traumatic. If someone is involuntarily committed, that can be deeply traumatic, even if it was necessary. In cases where it’s *not* necessary, why would it be surprising that someone who experienced that wouldn’t want to seek psychiatric care again?
Purplesaurus* February 21, 2018 at 12:07 pm I didn’t intend to draw parallels between the two, but to combat the argument that he is “lying.” I apologize that I’ve caused any offense with this.
JB* February 21, 2018 at 11:24 am A pre-op transwoman who calls herself a woman clearly has a specific meaning in mind, and it’s not “I have XX chromosomes and female genitalia.” It is the result of much labor and effort on the part of trans activists that someone could, and should, be understood to use language in that way. No such changes have been made with regard to BIPD. If someone says they are paraplegic, it is not reasonable to believe that they mean that they identify as such but have full spinal function. That said, since Drew is not asking for significant specific accomodations, I agree that this is best left alone for now. But what if he starts to? Then HR will have an interesting research project.
Luna* February 21, 2018 at 2:21 pm Yes, Drew could have just said that he has a medical condition that requires him to use a wheelchair and left it at that. He is obviously under no obligation to explain what the specific condition is. The fact that he instead chooses to say he has a condition that, at least on some level, he knows he does not actually have is the part that is most problematic. But as you say, that doesn’t really change the advice for the OP.
Gene Parmesan* February 21, 2018 at 11:26 am I don’t think this is that far-fetched of an analogy. That’s the crux of the disorder, that they feel like they’re in the wrong body.
Rulesfor* February 21, 2018 at 11:30 am I think there’s a difference between the social role of gender and the social role of disability. Disability isn’t a socially constructed concept in the same way, in our society. And trans people aren’t saying, “I have x/y/z body” when they don’t, which is what it sounds like this dude is doing.
Countess Boochie Flagrante* February 21, 2018 at 11:53 am Disability is absolutely a socially constructed concept, because the lines of what constitutes ‘disabled’ are defined in very large part by the structures we put in place around us and expect people to use.
fposte* February 21, 2018 at 11:56 am Seconding this big time. Hell, there are the sociologically observed models of the main ways disability *is* a constructed concept.
Rulesfor* February 21, 2018 at 12:05 pm What I was trying to say is it’s a different type of construct, in our society, than gender is. We don’t treat them as equivalent. But I feel like this is massively derailing and not helpful to the OP at this point, so I’m going to bow out.
Decima Dewey* February 21, 2018 at 12:20 pm I wear glasses. Without corrective lenses, my vision is 20/400. I’m not considered disabled. When I worked at the Library for the Blind, I was considered Sighted, and that was that. There are also orthopedic consequences to using a wheelchair, a guide dog, a white cane, and so forth. Drew may be more “disabled” than he was when he started using the wheelchair.
Decima Dewey* February 21, 2018 at 12:21 pm I forgot to add that 20/200 *with* correction is one standard for being legally blind.
fposte* February 21, 2018 at 12:31 pm @Decima–have a look at information about models of disability; I think you’ll find them really interesting.
Chinook* February 21, 2018 at 5:42 pm Thirding. What society considers disabled depends on how it affects your movement in it. Wearing glasses or using a cane help combat a disability but, if designed a certain way, they pass as accessories and the disability disappears.
Penny Lane* February 21, 2018 at 12:28 pm “Disability is absolutely a socially constructed concept, because the lines of what constitutes ‘disabled’ are defined in very large part by the structures we put in place around us and expect people to use.” This is incredibly vague. Can you provide a more detailed example of what you mean — what’s an example of a structure in society we put in place and define the inability to use it as being disabled but we’re wrong?
fposte* February 21, 2018 at 12:35 pm The Countess is talking about the social model of disability–it’s a well-established sociological construct. Put it this way: the social model of disability is a big one in the Deaf community. When everybody’s Deaf, deafness isn’t a disability; it’s just the way things are, people function just fine, and stuff is built and designed accordingly as a norm. The problem comes because a lot of the world has designed its structures differently, not because they can’t hear.
Rebecca* February 21, 2018 at 12:45 pm Dyslexia is one example. It never existed before the invention of reading and writing.
Whiplash* February 21, 2018 at 12:47 pm I could be wrong here, but I’d imagine it’s sort of like building stairs instead of a ramp. If it was just a ramp, then nearly everyone could navigate it and no one would be considered disabled because they couldn’t get up it. But because stairs were chosen way back when as the preferred method of getting up something, people who can’t climb up them are considered disabled.
Countess Boochie Flagrante* February 21, 2018 at 12:49 pm “But we’re wrong’ isn’t really the core idea here. It’s just that a disability — having a struggle to do something, presumably something important or relevant — is defined by what needs doing and what the circumstances of doing it are. For example, a lot of the reason that autism is such a difficult disorder is that the modern world is profoundly unfriendly to people with autism. Most humans live and work in very crowded conditions where unspoken social rules are enormously important, most activity outside the house is accompanied by lots of noise, bright lights, and so forth. A person with autism in 2018 has significantly more challenges to face than a person with autism in 1518, even if by some theoretical objective measurement they may fall in the same place on the spectrum.
Tuxedo Cat* February 21, 2018 at 1:09 pm I wouldn’t say we’re “wrong”- just that the assumption of being able to do x is how society is currently structured (and it doesn’t have to be that way). My partner has misophonia and hates hearing the sound of people eating. I believe that’s considered a disability. If everyone ate alone in soundproof private stalls, he probably wouldn’t have a disability. However, our society is structured such that eating together occurs fairly often and is even encouraged.
Merida Ann* February 21, 2018 at 2:36 pm I think Drew’s hand-driven vehicle is a good example. If Henry Ford had decided to make the Model-T using only hand controls (perhaps to more closely match the way you would steer a horse drawn carriage with only your hands on the reins) and car makers had followed his design, Drew would be able to use a “normal” vehicle. It’s only because foot-controlled gas pedals are more popular in our society than hand-controlled ones that someone without use of their feet needs an “accommodation” for driving at all.
Loose Seal* February 21, 2018 at 4:10 pm No kidding. Those of us who have to use the accessible bathroom stall in public probably all have stories of how someone else in the bathroom tried to shame them for not being disable enough. I’ve heard stories of people who had a permit to park in a blue spot being followed and harassed by folks in the parking lot who didn’t think they were disabled enough to need it.
Alton* February 21, 2018 at 12:15 pm Yep. Trans people identify with a *gender* other than the one they were assigned at birth. They typically don’t identify as a different *sex* unless they’ve medically transitioned to some degree. There’s no one accepted definition of what makes someone a certain gender, but there’s a medical definition for paraplegia.
Countess Boochie Flagrante* February 21, 2018 at 12:50 pm That’s not really true, though. Body dysmorphia is a thing, and quite a lot of trans folks struggle with specifically feeling that their bodies are not what they are supposed to be. Why else would gender surgery be such a thing?
Alton* February 21, 2018 at 1:07 pm That’s my point: trans people with body dysphoria sometimes transition in order to correct that. Gender identity can be connected to your physical sex. But trans women, for example, typically don’t believe or claim that they were born with XX chromosomes, and it’s a harmful stereotype that trans people are “in denial” or “confused” about their birth sex. Some trans people do let people assume they’re a cis person of the gender they identify as (referred to as going stealth), but this is usually because they see their trans identity as a private, personal thing.
fposte* February 21, 2018 at 1:26 pm But before regular discourse began separating the biological concept of sex from the social concept of gender saying that you were “really a woman” *was* perceived as denial; it’s just that our language has evolved to make a culturally important distinction. Right now there is no useful terminological separation that differentiates the social concept of disability from the medical (save for specific populations, like Deaf and deaf). You’re making the argument that the medical definition is the one that has to define someone’s identity, and I think that’s worth interrogating.
General Ginger* February 21, 2018 at 12:27 pm Eh, technically, some of us are. “I’m a man, and therefore, my body is a man’s body” is a common self-affirming statement.
Grad Student* February 21, 2018 at 11:35 am I wouldn’t even say it that way (“are one sex”)–trans women ARE women. Sex is complicated.
Pomona Sprout* February 21, 2018 at 9:09 pm Good point! This is a really important distinction, imo. If more people understood this, there would be a lot less controversy over things like which public restroom a person should be allowed to use.
Hey Nonnie* February 21, 2018 at 11:19 am There are plenty of mental health disorders which allow (or demand) a patient to believe something that is not objectively true. Any delusional disorder, for example. But they believe it is true, it is true for them, so I think we can and should distinguish that from intentional lying. It’s quite possible that his bodily integrity disorder is not just “I wish I were paraplegic” but an actual delusion that he is; or that it started as the first and ended up as the second. I don’t think it serves anyone to speculate “how bad is his disorder REALLY?” and judging based on whether you think it’s “bad enough” to qualify as legitimate.
fposte* February 21, 2018 at 11:22 am Because “lie” and “truth” aren’t simple binaries. It also doesn’t sound like he believes he’s pretending to be paralyzed, either. This is a really murky world, and it’s being called “transabled,” people who feel their bodily representation doesn’t reflect their identity; while I realize the politics are different enough from the gender trans experience that people are going to see it very differently from that, that might be a good lens to use when thinking about this. (And yes, some people do actually undergo procedures to match their bodies to their identities; mostly the known ones are by people who see themselves as amputees, and they’re either done in countries where doctors have different rules or by themselves as “accidents.”)
RVA Cat* February 21, 2018 at 11:33 am The possibility that those “accidents” could occur in the workplace are a reasonable concern for employers. So is the effect on morale when word gets out about Drew. Does the OP’s company have an outside employment policy that would apply if Drew was paid to appear? That could cover the ethical issue solely in a work-related way.
Natalie* February 21, 2018 at 11:45 am This feels like really splitting hairs to try and “punish” him for some reason.
Victoria Nonprofit (USA)* February 21, 2018 at 12:27 pm Agreed, Natalie. Not everything that could happen is a reasonable concern.
SarahKay* February 21, 2018 at 12:40 pm Where you say “The possibility that those “accidents” could occur in the workplace are a reasonable concern for employers” – this could be used against people suffering from depression just as much as against Drew. Should I have an employer worrying that I might commit suicide while on site because I’m suffering from depression and suicidal ideation? And, by the way, this is why I didn’t tell my employer when I was suffering from depression – I didn’t want the discrimination that tends to come with any mental illness.
Q* February 22, 2018 at 11:53 am “That could cover the ethical issue”…that just sounds like, “Look, we can punish and/or fire him with this excuse instead.” After all, that ethical issue is entirely different to…what the actual problem is.
Grad Student* February 21, 2018 at 11:33 am This whole comment is incredible and fascinating; thank you.
Gabriela* February 21, 2018 at 11:36 am This whole discussion is really fascinating. I was cringing as a I read it, expecting some really heated comments. I have been really pleasantly surprised at the different view points being expressed.
PlainJane* February 21, 2018 at 4:20 pm Yes. I nearly always learn something from reading Ask a Manager comment threads (wish I could say the same for most other Internet comment threads). I appreciate that most commenters try to be compassionate and are open to learning. I’d heard of BIID but never thought about how it could manifest in the workplace or what issues it might provoke. Thanks, y’all (and Alison, of course) for educating me today.
Murphy* February 21, 2018 at 11:34 am If he’s telling people he’s paraplegic, then he is pretending to be paralyzed.
Murphy* February 21, 2018 at 11:56 am To clarify, by “pretending” I mean he is telling people that he has a physical disorder that he knows he doesn’t have. I’m not denying that he may have a mental disorder.
Loose Seal* February 21, 2018 at 4:23 pm Does it matter if he needs the wheelchair either way? Should he chance the stigma of revealing a mental health disorder (if indeed he has one)? Many of us with mental health disorders are vague about it at work and constantly question if we are revealing too much for fear of being judged by it. Perhaps he’s decided that it’s just easier to go ahead and say he’s paralyzed knowing that people won’t delve too far into that for politeness’ sake. Now that the documentary is out, Drew may decide to change his statements to work about why he needs the accommodation. Or he may decide it’s still easier not to go down that path unless forced to. Either way, he needs the wheelchair and the employer says it’s not a problem for them to accommodate so, again, what does it matter *why* he needs it?
Jam Today* February 21, 2018 at 11:23 am Because he believes it. It would probably be more accurate to call it a delusion.
Kj* February 21, 2018 at 11:34 am Does he believe it though? I don’t think we can say he believes he is a paraplegic, since he did walk in the video. He believes he SHOULD
Kj* February 21, 2018 at 11:38 am be paraplegic, but that isn’t the same as believing he is one. People’s brains can do strange things to their bodies, but I’m not sure this is that case, given the video description the OP posted. It is an interesting distinction and I don’t know which is true and I think it matters to this situation.
Jam Today* February 21, 2018 at 12:25 pm But I think that’s part of the delusion, no? That cognitive dissonance between what is demonstrably true, and what he says is true *despite demonstrating the opposite*? I mean its super weird (it is, come on) but I would still assert that he’s not lying inasmuch as as a lie is a conscious, controlled act. I don’t this is in his control. Its like those people with such severe body dysmorphia that they try to amputate limbs, because they’re “supposed” to only have one leg. NB: I am not a behavioral-health clinician so I’m just spitballing here.
fposte* February 21, 2018 at 12:37 pm Yes, I think Ramachandran’s Phantoms in the Brain is a relevant read here; he talks about stroke patients who say they can’t move their arms on one side, because of where their damage is, but the damage is in being *conscious of moving the arm even when you can see it*. Our beliefs aren’t this neatly mapped out neighborhood where if you get to the destination one way it’s a truth and another way it’s a lie.
JessaB* February 21, 2018 at 5:42 pm I have hemiplegic migraines and they do leave deficits such as when one has a stroke. A neurologist asked me to move my arms around each other (folded over each other in front of me,) and if you’d asked me I would have sworn on my life that both arms were moving. My left arm was NOT. When he pointed it out to me I was able to consciously move the left arm in the motion he wanted, but without actual visually looking at it, I had no idea I was NOT moving it. Objectively both my arms can move. But my brain was literally unaware one was not moving til I was told it wasn’t. Doesn’t mean the arm is paralysed, but it does speak to brain/body differentiation. On the other hand we know I have a processing disorder where my brain does not register things that objective proof would show it should. I cannot hear out of my right ear at all, but passive testing SAYS I can. It took 8 hours of straight neuro testing to realise that the ear works, but the part between the ear and brain does not register the impulses the ear is sending. So it’s not so far off about my arm. I guess my point is that just because something is true on the face of it “OP’s employee is not paralysed,” does not mean OP’s employee can walk all the time. And that the most powerful organ in the body is the brain, and it can convince you very easily that x is true even if you know it’s false.
Jessie the First (or second)* February 22, 2018 at 12:06 pm Jessa – yes! My son has a form of blindness. His eyes are fine, aside from a very mild nearsightedness and nystagmus. But there is a funky thing that happens between the eye and the part of the brain that processes the visual signals: his brain just does not “see” the perfectly fine visual signals his eyes are sending him. I don’t generally go into detail when explaining this to strangers who ask why he isn’t looking straight at them (people get SO NOSY). I say he is blind, even though he’s not blind in the common understanding of that term.
Princess Consuela Banana Hammock* February 21, 2018 at 11:39 am A lie is a knowing falsehood. If Drew believes himself to be paraplegic, he may not be “lying,” even if his description is believed by others to be inaccurate.
Kj* February 21, 2018 at 11:43 am But the OP states he believes he should be paraplegic, not that he thinks he is, and he walked in the online video. So I really doubt he is delusional by the strict definition. I know of people who believe they can’t see even though their docs say they can see, but they don’t talk about wanting to be blind, they say they are.
Jules the 3rd* February 21, 2018 at 11:52 am Perhaps an anorexia analogy would work to help draw the distinction? A person who thinks that a 7% body fat makes them ‘fat’ and that they must lose weight seems kinda similar – most of the world would say they were inaccurate, but they think they are correct. The main difference is that ‘fat’ doesn’t have as specific a technical meaning as ‘paraplegic’, but ‘misusing because of belief that it’s accurate’ isn’t a lie, to me. I am not as familiar with this area of mental illness as I am with anxiety / ocd / depression, so my apologies if this is offensive or way off base.
Sleeping, or maybe dead* February 21, 2018 at 11:58 am I will reply assuming he is not delusional and is aware he is not paraplegic and has in fact body integrity Identity disorder. Number 1 reason to lie is because mental illnesses are highly stigmatized and readily dismissed by most people, specially if it is an obscure one.
Birch* February 21, 2018 at 12:16 pm Yes, this is the crux, to me. He has said he has one disability, when he really has another. It’s the untruth that makes him look suspicious, but it’s totally possible that he actually believes he is a paraplegic. In that way it’s a lot like the hypochondriac letter–the man thought he had cancer, etc. when really he had an (also debilitating) disorder of hypochondria. So the question is…. which disorder do you deal with? Do you treat the person as if they are lying, because they are? Or do you indulge their disordered perception of reality? I also wonder how people with other disabilities in the same office might view him if they find out. IMO I think it’s his responsibility to deal with this upfront, if he knows that video is out there and people might see it, but like I said before, it’s possible he believes he’s dealing with it in the best way already.
Sometimes yes, sometimes no* February 21, 2018 at 12:21 pm How differently do you think an office — or just your average person — is going to treat someone who discloses a physical disorder versus one who discloses a mental disorder that manifests as physical? Based on these comments, I know which one I’d prefer, especially since the difference between the two is immaterial to accommodation. I’d hardly consider it “lying” to say “I’m in a wheelchair because I’m paraplegic” rather than “I’m currently in a wheelchair because I have a disorder that leads me to believe in a very real way that I am and should be paraplegic potentially up to the point of me enacting the means to become so.”
Detective Amy Santiago* February 21, 2018 at 12:25 pm Why does he have to give a reason for being in a wheelchair?
Sometimes yes, sometimes no* February 21, 2018 at 12:27 pm It was a reference to disclosure. Offense seems to be coming from the idea that Drew is lying because he said he had one thing, when he really had this other thing that presents as that one thing. How do you differentiate without disclosing?
Luna* February 21, 2018 at 2:34 pm But I don’t think Drew would be required to disclose either. He could have just said he needs to use a wheelchair due to a medical condition. Instead he voluntarily discloses a disorder that is not the one he really has. Whether he really believes he is paraplegic, I don’t know, but I think that would be the most difficult part to get others in the office to accept if they were to ever find out about this.
Not So NewReader* February 21, 2018 at 7:39 pm It’s not a lie TO Drew. It’s his belief. I’d put it under the heading of “we don’t know what it is we don’t know”. While science has investigated many many illnesses there are always new ones or ones that have not had so much attention. I tend to tell myself that if 20 years from now science is able to help people and fix things like this, how would I feel looking back on my decision to label this person as a liar, when there was something larger going on that needed serious help. Using a big picture focus can be so helpful with so many things in life. If we label someone as a lair then that is the end of that story. But if we think of a person as having a larger difficulty that perhaps science can help in the future, we can start thinking about other things, such as how best to help/support this person today.
Birch* February 22, 2018 at 6:49 am This is the problem though. He is apparently aware on some level about what is actually wrong with him, given that he participated in the video. So intentionally framing his disability to his coworkers in a way that is misleading is a problem, regardless of whether you want to call him a liar or not. It’s still untrue (even if it’s only untrue to him because it’s not the whole story–sins of omission are still sins!) and it still makes him look bad for offering that untrue information of his own accord, as Luna said. He didn’t need to offer any explanation at all, and then no one would have a problem with it. I would even venture to say that most people, including myself, would be much more OK with the whole situation if he didn’t offer any information up front, even if they later found out about the video.
Happy Temp* February 22, 2018 at 12:37 pm I struggle with this as well. What happens when there is an in-office emergency (say, a fire/evacuation) and Drew’s coworkers put themselves in danger to help him out of the building? Or, what if they already know about his condition and think “I don’t need to stop and help him”? I can’t figure out a way for management to deal with this in a way that’s respectful of Drew but also respectful of his coworkers. I also wonder if he asked for accomodations based on his paralysis rather than his illness that makes him believe he is paralyzed. Does that make a difference?
Penny Lane* February 21, 2018 at 11:21 am Just because he may have a disorder that causes him to think he should be a paraplegic, or that he sympathizes excessively with paraplegics, does actually *make* him a paraplegic. What happens when he travels, for example, and requires special accommodations which may come at extra cost with airlines, hotels, rental cars, client visits? Totally fine for someone who really is a paraplegic and requires a wheelchair. Less cool if it’s someone who just thinks he is. What other examples are there of accommodations which are fully kosher for someone really needing them, but not so kosher if someone just *thinks* they need them but they really don’t? Bad analogy, but it’s the only one I can think of at the moment. If you told me my workplace needed to be peanut-free because of a coworker with a severe peanut allergy — cool, no problem, I’m doing it, no need to ask me twice. If you told me it was only because the coworker *thought* he was — but he really wasn’t — not so cool and I’d be pretty annoyed that I have to play along with a sham.
fposte* February 21, 2018 at 11:23 am I didn’t say it did make him a paraplegic. I said it wasn’t the same thing as a lie.
my two cents* February 21, 2018 at 11:34 am Penny Lane – a severe peanut allergy, leading to a ban on peanut products in the office, would be considerable accommodations (lots and lots of stuff has at least traces of peanuts). But Drew doesn’t ask for anything, aside from being granted his parking spot. I’d even wager that Drew paid out-of-pocket for his chair and hand-paddles in his vehicle. This decidedly Isn’t Great, but Drew’s certainly not asking anything additional of coworkers…which puts it back into the ‘Pretty Sticky’ camp for me.
Sometimes yes, sometimes no* February 21, 2018 at 12:35 pm > If you told me my workplace needed to be peanut-free because of a coworker with a severe peanut allergy — cool, no problem, I’m doing it, no need to ask me twice. If you told me it was only because the coworker *thought* he was — but he really wasn’t — not so cool and I’d be pretty annoyed that I have to play along with a sham. I’m curious: why?
Arjay* February 21, 2018 at 2:01 pm I’m not Penny, but it would bother me especially right now because it’s Lent and a peanut butter sandwich is my main sacrificial meal on Friday. If it was life-threatening to someone, of course, I’d work around it. Cheese quesadilla or tuna sandwich it is! But for me to have to work around it for no valid reason – that would be quite annoying.
Kelly White* February 21, 2018 at 2:24 pm That’s an excellent question. I agree. I think I feel the same way. I had actually typed out a whole response, but it didn’t really answer why. Why accommodating someone with an allergy is ok, but accommodating someone who “thinks” that they are allergic, is annoying. But by that same thinking, Drew isn’t asking me not to bring in the peanuts, know what I mean? Why would it bother me that he’s using a wheelchair. It’s no skin off my nose. But you are right- how much accommodating will we tolerate? For example, say I have a co-worker who is afraid of doors. She has the door to her office taken off. No problem for me! But, then she decides she can see my door, and so my door needs to go. Well, I would have a problem with that. But, what if the solution was that she moves her office to where she can sit at her desk, and see no other doors. This wouldn’t bother me. But what if the only office that would work, was mine, so now I have to move? Now, that would bother me. What a fascinating point you raise!
Anon for this* February 21, 2018 at 4:31 pm Yes. The key point for me is whether someone’s actions (regardless of the cause of those actions) hurts someone else. Drew isn’t really hurting anyone. People might be offended or misunderstand if they knew, but his day-to-day actions are just fine. The bird phobia guy also had a mental illness, but his illness led directly to him seriously injuring his co-worker. I’ve been struggling for years with how I perceive mental illness (father was mentally ill, and mother used that as a reason to excuse whatever horrible thing he’d say or do), and I’m trying to root out my remaining traces of ableism around that issue. This comment thread, along with the “get off my foot” analogy that comes up here from time to time, have helped me clarify my own feelings and be less judgmental–while still insisting that people don’t get a pass for hurting someone else.
Q* February 22, 2018 at 12:02 pm If someone genuinely thought they had a peanut allergy, and you brought one in anyway, you could, possibly kill them either from stress, or a placebo effect. We can convince ourselves sugar pills can cure our cancer and it works. I have to assume we can convince ourselves of a physical disability and make it impossible to use part of your body. As someone with a severe anxiety disorder–even if I know I can actually do something, if it causes me extreme emotional distress, it’s not worth it. People with OCD CAN manage without their rituals of, say, locking their door twenty times before leaving, but not doing so causes extreme psychological distress to them. Maybe that’s worth you not being annoyed, but it probably isn’t to them.
Snarkus Aurelius* February 21, 2018 at 11:07 am I can’t tell from the way you wrote the third paragraph, but it sounds like Drew consented to being in this film and spoke openly about what he is doing. Either way, he can’t honestly be surprised when (oh and that’s a when, not if) his behavior is found out. It sounds like he’s prepared to take the consequences. That said, AAM’s advice is good. HR needs to be aware because you’ll need then when (again, not if) the rest of your office finds out. Then you’ve got a real problem.
Hills to Die on* February 21, 2018 at 11:09 am It does sound that way—that on some level he recognizes that this is a mental disorder and not a physical one.
Lil Fidget* February 21, 2018 at 11:14 am I did wonder that too. This would never have come up except that Drew chose to be featured in the film, so he sort of created this problem for himself (not that this changes any of Alison’s advice, just that if it were me I’d feel bad “outing” him to HR except that he was clearly not that concerned about keeping it a secret).
Kj* February 21, 2018 at 11:40 am Agreed. It is hard to keep anything secret if you post a video of you talking about it to the web. He has to know someone he knows could see it. I wonder if that is part of the disorder too, the need to talk about it? I don’t know, but it is interesting. More people on the team will find out at this rate.
Loose Seal* February 21, 2018 at 4:33 pm I think it’s hard to say without knowing the intended audience of the video. If it’s meant to help others with BIID (again, if that’s what this is; we have no way of knowing) or to help explain to their friends and families what that might look like, we could see Drew as a hero willing to “out” himself so that others in his situation wouldn’t think they were alone. I sort of get the feeling that some people here are thinking Drew participated in the documentary for fame and/or fortune and so he should reap his just desserts for thinking that he could get away with his “lie” once that was out on the Internet. [I have to say I have no intention of trying to Google this video but I would have no doubt that several readers and commenters have done so.]
a1* February 21, 2018 at 6:17 pm I don’t think I’ve seen anyone say he was seeking “fame and fortune” by being in the documentary. They are just saying that he is the one that made his condition public by appearing the documentary. Therefore since he willingly did this, it’s hard to call it a “secret”. And since we know 2 of his colleagues have seen the documentary, it is quite likely others will even if these 2 say and do nothing about it.
Wannabe Disney Princess* February 21, 2018 at 11:09 am Oof. Yeah, this IS sticky. I completely agree with Alison. I’d definitely loop HR in. If nothing else do it to make sure you’re all on the same page if someone were to bring it up in the future. Not everyone will react as discreetly as you and your other employee.
Luna* February 21, 2018 at 11:21 am I’m also wondering if it would be a good idea to have someone (either OP or someone in HR) speak with Drew just to let him know that at least one of his co-workers has seen this video. I can’t decide if that would potentially create drama or make Drew feel uncomfortable, or if it’s a fair heads up to give him that this information is out there.
Wannabe Disney Princess* February 21, 2018 at 11:26 am I was going to mention that….and then decided to stay out of it. Going on the assumption that it is a mental disorder (and I, personally, see no reason to believe otherwise) I’m not sure you can ever force a discussion about someone’s health. That is something so, so, so outside my wheelhouse that I don’t even want to hazard a guess on that.
Kittyfish 76* February 21, 2018 at 11:45 am I agree with this. Drew HAD to know the potential for co workers to see this video, right?
Bend & Snap* February 21, 2018 at 11:10 am From the very little I know about this, it is a mental disorder. So he’s still handicapped. I don’t know why you would feel the need to do anything about this.
Detective Amy Santiago* February 21, 2018 at 11:16 am Because it’s offensive to people who are actually physically disabled and have to use wheelchairs. Their identity isn’t something people should be playing with for funsies. This is no different than wearing blackface or any other type of cultural appropriation.
Hills to Die on* February 21, 2018 at 11:22 am And that’s where the damage control part of this comes in. I absolutely think going to HR is the right call here.
AnotherAlison* February 21, 2018 at 11:22 am I actually thought of her, too, but thought it was better not to bring that can of worms into the mix. : )
Detective Amy Santiago* February 21, 2018 at 11:24 am Yup. And this has the potential to blow up just as spectacularly as that did.
fposte* February 21, 2018 at 11:26 am I can see that that’s a way this maps, but it’s really worth looking deeper into the experiences and feelings of people like this. We’re at such an interesting cultural place with identity right now in that we’ve allowed gender to shift from externals being prescriptive, but we seem to be granting gender a special loophole rather than considering that maybe externals of all kinds don’t have to be prescriptive.
serenity* February 21, 2018 at 11:29 am I think you raise some good points, but I don’t think they apply to each and every case (for example, I don’t think the greater public and certainly not the African-American community felt kindly to what Rachel Dolezal did, and if you tried to explain away her actions as you are doing here it would likely be seen as patronizing and pretty ill-advised).
soon 2be former fed* February 22, 2018 at 8:51 am Black person here. Can vouch that Rachel Dolezal totally pissed off myself and everyone I knew.
Detective Amy Santiago* February 21, 2018 at 11:34 am Gender is largely a social construct. Skin color and physical ableness are not.
serenity* February 21, 2018 at 11:41 am I’m going to quibble with that wording a bit. Gender *roles* are social constructs, while gender has physical characteristics.
Kj* February 21, 2018 at 11:44 am I’m going to quibble further- Gender is socially constructed, whereas sex is physical traits. At least, that was what I learned in my gender studies classes.
Joshua* February 21, 2018 at 11:53 am To quibble even more, gender in its entirety is a social construct. Biological sex has physical characteristics. But, they aren’t binary – there’s plenty of gray area where sex is concerned. It just so happens our standard social construct of gender is traditionally binary.
Kj* February 21, 2018 at 12:11 pm I kind of love that so many of us know and care about this. Gives me hope for the future being more accepting.
Elizabeth H.* February 22, 2018 at 1:49 pm It doesn’t just so happen; it’s linked to biological sex characteristics.
sin nombre* February 21, 2018 at 12:00 pm Skin color isn’t but race certainly is, I would argue more so than gender.
fposte* February 21, 2018 at 12:01 pm Disability is incontrovertibly a social construct; it’s just that it’s largely the disabled who are aware of the constructs. The notion that the social construct is identical to the physical externals is the exact myth that the trans movement has fought so hard against. I think we’re better rather than worse if we consider that it might be a point that applies to people in various situations.
Nobody Here by That Name* February 21, 2018 at 12:24 pm Thank you, I was just popping in to say this. Disability and health are absolutely social constructs, based on what society has deemed “normal.” Consider that glasses are “disability aids” in much the same way that wheelchairs are, but we do not attach a stigma to their use or consider someone who wears glasses to be disabled in the same way we do a wheelchair user. And this is just one example of many. This then extends to the discussion of mental health, where the prejudice against it even amongst those who have mental illness is harsh. First and foremost, mental illness is very dependent on society’s definition of “normal” – a patient can have a knife through their skull and most would agree that is a situation which requires medical attention, but if a woman does or doesn’t enjoy having relations with her husband is that a mental disorder? Well, all depends on when in history you’re asking the question. If Drew has this illness then he is not putting on a show. His brain is making it so that he acts and feels this way. My mother has schizophrenia and sometimes goes catatonic, which means she can’t move or speak. Does that mean she’s putting on paraplegic blackface because her body is perfectly physically capable of moving? No, because this is just as much a legitimate symptom of her illness as anything else. As with so many things with mental illness – or any illness, really – the answer isn’t “just don’t do that” because not being able to stop the symptoms on one’s own is why it’s called an illness and not a hobby.
Lissa* February 21, 2018 at 1:14 pm ALso…hmm…it seems like we’re saying that people who have delusions/dysphoria/dysmorphia that manifests in a way that is seen as “offensive” because of social constructs, environment etc. should somehow be treated differently or given less sympathy. But they didn’t choose to have it manifest in that way! I can see the argument about lying but it feels like we’re saying “this mental illness is less sympathetic than this other one” as though Drew should tell his mental illness “hey, you’re being offensive to physically disabled people!” and it should listen or be educated.
JB (not in Houston)* February 21, 2018 at 12:06 pm As Countess Boochie Flagrante and fposte commented above, disability is absolutely a socially constructed concept
Victoria Nonprofit (USA)* February 21, 2018 at 12:30 pm Skin color and physical ability aren’t social constructs, but race and what constitutes “able” certainly are.
Jules the 3rd* February 21, 2018 at 11:54 am Mental illness is not the same as conscious appropriation. And if you want to make a case that Rachel Dolezal is mentally ill, then I hope you will bring some compassion to that discussion, rather than scorn.
Fiennes* February 21, 2018 at 11:21 am I don’t think anyone believes Drew *is* doing this for “funsies.” He’s got a mental disorder. Claiming to defend the disabled while scoffing at mental illness is contradictory at best.
Jessie the First (or second)* February 21, 2018 at 11:28 am Agree. That *really* rubbed me the wrong way. I’ve got a young child in a wheelchair so am by no means unaware of the real challenges of being *actually* physically disabled, but someone being mentally ill in a way that has them using the same durable medical equipment that my son does, but for mental rather tha physical reasons, is not offensive to me. It’s confusing, and unexpected, and I’d feel awkward sometimes I bet. I wouldn’t feel offended. But obviously YYMV. If someone is doing it “for funsies” that’s a different scenario entirely. But I don’t list mental illness as “for funsies.”
Lil Fidget* February 21, 2018 at 11:39 am Yeah just the fact that he made this video … it wasn’t “haha I’m fooling people / making them feel sorry for me / benefiting from the (let’s face it, kind of stingy) accommodations that exist for the truly disabled, suckas!!!”
Competent Commenter* February 21, 2018 at 12:21 pm I love your comment, Jessie the First! You really helped me understand my own response. I appreciate that you distinguished between offensive vs. confusing and unexpected and awkward. I too find it the latter, not the former. And “I don’t list mental illness as ‘for funsies’ ” is a great motto. :)
Jennifer Thneed* February 21, 2018 at 5:10 pm Yeah, that caught my attention too. I don’t really have any standing to opine on people’s use of wheelchairs being offensive or not, because I don’t use one. I can mostly walk and run as I choose. I think that people who are reacting badly to this, and who are *not* disabled, are veering into “won’t someone think of the children” territory. I am thinking forgiving thoughts though, because I’ve learned a LOT over the last few years about body dysmorphia and similar mental illnesses, and not everyone is reading what I am reading.
Countess Boochie Flagrante* February 21, 2018 at 11:33 am Ditto. It’s actually a pretty common trope of ableism, in fact — “No, I support real disabled people, but you’re not really disabled so I don’t support you.”
Lil Fidget* February 21, 2018 at 11:40 am Yeah, “if you’re not actually literally Helen Keller herself, then get to work you lazy bum.” This is true.
Elemeno P.* February 21, 2018 at 12:21 pm This. It pops up all the time when people who have mobility issues stand up from their wheelchairs; the instant reaction of “You can stand so YOU ARE A FAKE” is very prevalent and awful.
Nobody Here by That Name* February 21, 2018 at 12:28 pm YEEEEEEEEEESS. Or not understanding why accommodations are necessary and not “nice to haves.” Usually in a conversation like “Well *I’d* love to have flexible hours/work from home/have a bigger monitor/bring my dog into work/whatever too!” Like that’s nice, but we’re asking for these things because they directly affect our health and livelihood, not for funsies.
General Ginger* February 21, 2018 at 12:31 pm Or, “well, you could stand/walk/reach/bend for 10 minutes on Thursday morning, so that means you can do it all the time and don’t really need this cane/reaching device/chair/adjustable desk/mobility device”. That one really gets me.
Lil Fidget* February 21, 2018 at 12:56 pm Yeah I think this is something the non-disabled world (like me) is working on. I do remember having a feeling of discomfort when I watched someone be wheeled to the front of the line, then get up out of the wheelchair and proceed up the stairs in front of me. I was thinking, “hey, I would like to sit not stand too, and I would like to skip this line too!” – not because I can’t understand the circumstances that may make that legitimate, but just in an animal brain, resources are scarce, it’s every man for themselves primitive part of the brain. It’s a good thing for people of privilege to be conscious of and acknowledge in the same way we have to acknowledge that many of us have racist conditioning in our heads and have benefited from racist systems.
PlainJane* February 21, 2018 at 4:37 pm Yes. I watch my husband struggle with this. On good days, he can do quite a few physical things–and he’s a big, strong guy, so people expect that from him. On bad days, he can barely get out of bed, and then he feels lazy and useless. It sucks. Not all disabilities (physical or mental) are consistent all day, every day.
LBK* February 21, 2018 at 1:38 pm I think most people in a wheelchair would also tell you there isn’t anything particularly “funsies” about it, so this would be a pretty inconvenient gambit for Drew to keep up if he could easily choose to stop. I always thought there was something fun about having crutches until I broke my toe, and then I was sick of them in about 5 minutes – getting a handicapped parking space or whatever other minor “perks” you might get as a disabled person are far outweighed by the actual experience of being disabled.
Jessie the First (or second)* February 21, 2018 at 11:23 am If it is caused by mental illness, then it is not “for funsies,” and it would not be cultural appropriation.
Suchlike* February 21, 2018 at 11:24 am A mental health problem is hardly something he’s doing “for funsies”.
bananaboat* February 21, 2018 at 11:26 am he has a mental illness that makes him believe he should be in a wheelchair. He isn’t doing this for fun he is ill.
Elfie* February 21, 2018 at 11:33 am No, it’s not. I actually know a Drew, a guy who’s permanently in a wheelchair even though there’s no physical reason for him to be. If my acquaintance actually worked, I’d swear it was him. My acquaintance, let’s call him Fred, he lives as a disabled person. He shouldn’t be disabled, but it’s got to the point where his leg muscles have atrophied due to years of lack of use. Now, he couldn’t walk even if he wanted to. There are some conditions that are as a result of trauma – your brain can convince yourself that you’re blind, or paralysed (I think the mechanism is similar to amnesia), and you actually *are*. It doesn’t affect you any differently than someone who has a physical reason for those disabilities, and your lack of ability to do things isn’t any different. So this smacks of being judgemental, and IMO we should empathise a bit more with people who through whatever mechanism have their lives impacted in a way that I doubt any of them really want.
Jules the 3rd* February 21, 2018 at 11:58 am Amy, please, take a step back and a deep breath. Examine why this offends you so much. You are usually more compassionate than this. Is there any chance you’re displacing some anger / pain that you feel about your friend’s situation on to this mentally ill person?
Detective Amy Santiago* February 21, 2018 at 12:27 pm I think I probably need to bow out of this post.
KFC dhl fiasco* February 21, 2018 at 1:03 pm Hey, mentally ill person, please knock it off right now because you’re offending someone !
Lil Fidget* February 21, 2018 at 11:16 am I suppose the problem would be a) some other employee requests the parking spot – since you now know that Drew could presumably get from his car without special accommodations, can you give it to someone else? or b) this will become a public thing that will bite your company later, such as people with physical disabilities (either other employees or members of the public) getting teed off at the idea that someone is presumably benefiting from the special considerations granted to people who have physical limitations, without actually having the burden of experiencing these physical limitations. However, it seems a little far fetched that #2 is a real concern.
Bend & Snap* February 21, 2018 at 11:26 am It’s a mental disorder. The OP mentions that this is part of who believes he is. That’s not the same as actively pretending to be something he’s not for fun or sympathy or perks or whatever. I don’t understand being offended by the physical manifestation of someone’s disability. Which is what this is.
fposte* February 21, 2018 at 11:27 am I like those last two sentences, B&S–they’re kind of cutting the Gordian knot here.
Countess Boochie Flagrante* February 21, 2018 at 11:31 am Agreed. Bend & Snap got it absolutely right.
CrystalMama* February 21, 2018 at 11:11 am Empathy, empathy, empathy. I have some experience in this area and know how challenging it can be to approach as a manager and as a Person! A friend of my partners Sister practices intentionality as a way of dealing with her fertility challenges. As part of the practice she truly believes in her pregnancy to help it manifest (I recommend looking up this practice as many women in my family have had amazing successes with it). She request and gets the accommodations of a pregnant woman – since she is in a spiritual way. Several times, she has also become physically aware and then needs further accommodations. I think that requests should be taken with caring and empathy since we never know the combination of spiritual, mental, and physical challenges and practices a person (or Woman) may be experiencing.
The Original Flavored K* February 21, 2018 at 11:15 am Please tell me you’re joking or that this is some sort of satire.
CutUp* February 21, 2018 at 11:43 am A lot of people who are trying to become pregnant give up drinking or sushi or raw cheese before they know they’re pregnant. The language here is a bit odd but a lot of people probably have similar external behavior, and I don’t think we need to judge people’s choices that don’t negatively impact others.
Lil Fidget* February 21, 2018 at 11:44 am Ugh remember when doctors announced they were going to treat all women of childbearing years as “prepregnant”? That really steamed my biscuits, man.
Snark* February 21, 2018 at 11:47 am But there are demonstrable reasons to avoid things like alcohol or bioaccumulative toxins when trying to conceive. It’s not the same thing as performing pregnancy to influence the universe. And I’ll judge what I like, thanks. It’s a ridiculous exercise in cargo-cultism and I’ll not pretend otherwise.
Snark* February 21, 2018 at 11:17 am If you want to believe in woo, go right ahead, but it’s absolutely ridiculous for someone who is not actually pregnant to be treated as pregnant, or to expect others to do so.
Anonyna* February 21, 2018 at 11:21 am God yes. Thank you. This is just enabling an unhealthy delusion and pushing someone further out of touch with reality. Just no.
Hills to Die on* February 21, 2018 at 11:23 am But isn’t that similar to Drew? He believes something about his body that isn’t true, he knows it isn’t true, and wants special accommodations for it.
Tardy* February 21, 2018 at 11:27 am Similar, but not in the important respects. Drew is very likely dealing with a mental health problem. This person is making a deliberately choice. That’s a very different thing.
Snark* February 21, 2018 at 11:29 am Practicing woo because you think it’ll make you get pregnant is a little different from Drew’s (notional) dysmorphia.
LawBee* February 21, 2018 at 11:41 am Well, there is research that indicates there is a brain function issue that leads to BIID. Asking for pregnancy accommodations when you’re not pregnant is – something else entirely. And kind of concerning. The Secret won’t get you pregnant, no matter how much you want it.
Nobody Here by That Name* February 21, 2018 at 12:31 pm If you read a lot of mysteries would that mean the butler did it? If you read a lot of cookbooks would you truly have a bun in the oven? I’ll show myself out…
LBK* February 21, 2018 at 1:44 pm I was about to say that as a man I’m glad I’m safe from unexpected book pregnancies, but I am currently reading The Left Hand of Darkness, so…
Batshua* February 21, 2018 at 4:12 pm Wait, does a book pregnancy mean I’d give birth to books? Because that might be cool, as long as they’re paperback. No way in hell am I birthing a hardcover!
Becca* February 21, 2018 at 1:28 pm I think it could help a bit if it lead to less stress of the “why can’t I conceive??” sort, but it would be a tricky bit of double think and other methods of reducing that stress would probably be easier. At any rate, I do think there’s a distinction in that it’s a deliberate choice whereas Drew is probably a mental condition even if not the one we’re speculating about (according to OP the documentary is on people who *believe* they have a physical disability when they don’t, not just people who say they do for any old reason), so even though it’s not really your employers business that you’re trying to conceive I still feel that if you requested accommodations for this purpose you should be clear that you don’t *need* them, whereas I don’t really blame Drew for saying he was paraplegic (only in passing apparently), whether it’s because he does have a delusion about it to the point where it can’t be considered a purposeful lie (most likely, since he supposedly wasn’t defending his need for accommodation at the time) or because he was worried about the stigma of his actual illness and couldn’t think of better wording.
Fortitude Jones* February 21, 2018 at 11:42 am But again, Drew has asked for no special accommodations according to the OP. It sounds like he got the parking space by default because others saw his chair and decided he needed to park there instead of them.
yasmara* February 21, 2018 at 12:39 pm I have been a pregnant woman twice and asked for exactly zero accomodations. (And, of course, there are pregnancies in which extreme accomodations might be needed, such as full bedrest, but a normal pregnancy usually doesn’t need accomodations within the first few weeks in a job where bathroom access isn’t restricted.)
Manders* February 21, 2018 at 1:10 pm Yes, I’m confused by this because I’m not sure what accommodations a pregnant person would need in the first trimester if they’re working a normal office job. There are some jobs where pregnancy really does mean you can’t be exposed to certain chemicals, lift certain boxes, go for hours without a bathroom break, and so on. But I’m not really sure what a person who’s visualizing being pregnant would need, unless they’re taking it so far that they’re really experiencing symptoms like morning sickness, and in that case they should be treated like anyone else who’s having trouble with nausea.
Tuxedo Cat* February 21, 2018 at 1:24 pm Despite having mixed feelings about Drew’s situation, he’s not asking for special accommodations. Your friend is.
CutUp* February 21, 2018 at 11:21 am Well, there were a million comments yesterday about how pregnant women should lead the charge on perfume bans, so I think most commentators do believe in accommodations that help both pregnant and non-pregnant people. CrystalMama didn’t say anything about what those accommodations were – they could be as simple as changing the cleaning spray. I don’t think we should leap on a commentator because we don’t like her aesthetics.
CutUp* February 21, 2018 at 11:46 am The aesthetics of her comment, ie word choice and the style of her writing, seems to provoke a lot of histrionics when people yesterday advocated for pretty similar policies on the smoking post. It seems like anyone who has a mildly alternative style of writing or lifestyle gets really jumped on around here. People don’t seem to try to parse the content of what’s said, just whether or not it falls into the group think tone. Hence the degradation of comment quality as the tone police go wild.
Anonymouse* February 21, 2018 at 12:01 pm I think you have it backwards, snark. Semantics is the content or meaning of the comment, which commentators are ignoring.
LouiseM* February 21, 2018 at 12:06 pm Right, CutUp’s point was that commenters here all tend to write in the same style and dismiss people who write differently–even if the content of their comments is the same. Now, I happen to disagree with this–I remember CrystalMama’s comments on earlier posts and they have been bonkers even compared to other bonkers commenters. But CutUp is correct to point out the aesthetic differences. And I think this detour into linguistics has been enough of a nitpick/derail session for today, so let’s get back into the question, shall we?
LouiseM* February 21, 2018 at 11:17 am CrystalMama, I usually try to take an empathetic approach too, but this would make me NUTS. Speaking of nuts, that’s what your SIL’s friend is if she “truly believes” she’s pregnant when she’s not. As someone who has been unable to get pregnant in the past, I would be seeing red if I gave someone accommodations based on their pregnancy and found out they were only “spiritually” pregnant. Hell, I would love to get accommodations for pregnancy even though I’m not pregnant! But I don’t because I live in the real world. Frankly, that was also my initial reaction to Drew’s situation (especially because I have MS in my family, so wheelchair use is no joke to me) but since doing a little research on this I’ve developed more sympathy. Some of the people with this disorder have even tried to injure themselves so they would need a wheelchair–they are really sick in the head and deserve pity, not contempt.
Gollum* February 21, 2018 at 11:18 am “She request and gets the accommodations of a pregnant woman – since she is in a spiritual way. Several times, she has also become physically aware and then needs further accommodations.” Just have to say it – thats a bit too woo for me. And that the company goes along with accommodations? Wow. Off to Google pregnancy mental disorders…
Holistic/Holy Stick* February 21, 2018 at 11:24 am So, if she’s “spiritually” pregnant and pees on the stick, instead of 1 line or 2, does she see a crystal or something?
Alli525* February 21, 2018 at 11:33 am Thanks a LOT, now I have water on my keyboard and a mild ache in my sinuses!!
Natalie* February 21, 2018 at 11:30 am There is an actual condition called pseudocyesis (aka false pregnancy) where a person believes they are pregnant when they are not. They can have normal pregnancy symptoms like nausea or missing periods, sometimes even abdominal swelling. It’s a rather interesting condition.
The Original Flavored K* February 21, 2018 at 12:00 pm It’s pretty common in dogs, too, and because people with that condition are having physical symptoms, I would accommodate wholeheartedly. Hell, I’d be willing to accommodate Drew, or at least continue with the accommodations he hasn’t asked for — this honestly sounds to me like it could be in the same family as Capgras and Cotard’s. For someone who is experiencing no symptoms but simply wants to be treated like they’re pregnant because they think that’ll influence the universe? Nope.
fposte* February 21, 2018 at 12:03 pm Yeah, I think historically “belief” has been treated as causal in such pregnancies in human, when it’s just as common that you believe you’re pregnant because you have such symptoms, and I would presume its commonality in dogs would support that theory.
Natalie* February 21, 2018 at 12:08 pm The threading makes it a little unclear but I was responding to Gollum’s aside about pregnancy mental disorders! To be frank I didn’t actually read CrystalMama’s original comment past the first sentence or so.
Gollum* February 21, 2018 at 4:02 pm I had heard about that which is why I went to google. But personally, and this may just be me, I don’t believe that THINKING yourself pregnant, in order to put it out to the universe so that you will BECOME pregnant qualifies as the same type of psychosomatic illness.
Penny Lane* February 21, 2018 at 11:26 am Oh please. Now THIS is the definition of woo that we were talking about the other day. What “accommodations of a pregnant woman” does she ask for and receive? When I was pregnant, because I had an underlying condition making me exceptionally high-risk, my ob-gyn requested that I be granted a close-in spot in my workplace parking lot (it was a huge parking lot) and provided the appropriate paperwork to facilitate that. I had a medical professional “testifying” that I was in physical need of a close-in spot. Does your friend get to request a close-in spot just because she really really really wants to be pregnant? That’s called a delusion.
Lil Fidget* February 21, 2018 at 11:43 am Ooh was this on the smoking one? I felt like I was the minority opinion over there!
(Different) Rebecca, PhD* February 21, 2018 at 11:37 am I ask because I can’t see this flying at any US company I know of.
Anonymouse* February 21, 2018 at 11:59 am Actually, there are a lot of pregnancy accommodations that are pretty simple. Though I’ve never carried to term, I asked for and received – vegetarian lunches instead of sandwiches with cold cuts at catered meetings – no Lysol spray at my desk cluster – a yoga ball to sit on instead of a normal chair – fewer morning meetings to accommodate nausea I think any reasonable boss in the US would let these things through without asking for 10 doctors notes and your pregnancy test.
LBK* February 21, 2018 at 1:47 pm My personal version of this is calling in to meetings that are being held in my building rather than attending them in person because I’m just too lazy to get up from my desk.
Arjay* February 21, 2018 at 2:36 pm I do that so much and get comments sometimes. In the past it was because I wasn’t issued a laptop so meeting in a conference room was essentially down time for me. Even now with a laptop, it’s so much easier to multitask from my desk when I have only a small portion of a meeting that affects me.
(Different) Rebecca, PhD* February 22, 2018 at 7:30 am The way it was spoken about in the letter makes it sound like she’s open about it being a ‘spiritual pregnancy’ rather than a physical one, and that’s the part that I feel would not fly in US workplaces. “I think I’m pregnant” vs “I’m pregnant on a spiritual level.” One would get accommodations, one would get ‘I’msorrywhat??’
Leatherwings* February 21, 2018 at 11:11 am Oof. Poor Drew and poor people around him. This is hard. He’s clearly dealing with stuff that’s really hard for him to deal with and really hard for everyone around him to understand and deal with too. I’d be careful of thinking of this as an awful and abhorrent lie – it seems like it’s not really a lie to Drew. This sort of reminds me of the letter where the woman who was obviously having an hysterical pregnancy (did I make that up?). You just have to deal with it as compassionately as possible, and as long as it’s not significantly interfering with the work you’re doing it’s best to let it be.
sin nombre* February 21, 2018 at 12:08 pm It occurs to me that that’s a very strange term. Aren’t all pregnancies hysterical? /random word musing
Leatherwings* February 21, 2018 at 12:24 pm I hesitated when I wrote it because it felt wrong somehow. I looked up the letter and I should have used the word “phantom” pregnancy. Oops!
Turboencabulator Engineer* February 21, 2018 at 6:42 pm I’m picturing a newborn that comes out wearing a mask and has an unhealthy obsession with opera.
MLB* February 21, 2018 at 12:27 pm I’m generally a skeptical person, but I wonder if it’s possible that he does have a condition in which he needs a wheelchair, and to avoid having to give details he just claims to be a paraplegic? Still a bit odd if it’s true, but just trying to understand why anyone would fake being paralyzed.
Temperance* February 21, 2018 at 5:17 pm He is in a documentary walking and talking about how he doesn’t physically need a wheelchair. So no.
Countess Boochie Flagrante* February 21, 2018 at 11:12 am Here’s the way I would look at it, OP: when it comes to disability accommodation, across the board, the question is never “what are the limits of what this person can possibly physically do” but rather “what specific needs does this person have to help them be as functional and productive as everyone else?” Bodily integrity disorder is, from what I understand it, actually a physical issue rather than a purely psychological one; the brain is missing some links that identify the limb(s) in question as “mine, part of me, these belong here.” It’s a reverse of phantom limb syndrome, and ties into the same structures. Drew is more comfortable in a wheelchair, minimally interacting with limbs to which he doesn’t have all the standard neurological connections. As far as you, as his employer, are concerned, that’s probably as far as you need to go until and unless something arises that makes standard wheelchair accommodations suddenly too onerous to manage.
Hills to Die on* February 21, 2018 at 11:15 am I’ve seen documentaries on this where the person is capable of functioning normally even though they feel more ‘themselves’ to have a physical disability. Obviously we can’t tell where Drew falls in this but I don’t think they always have a neurological block to that body part.
Countess Boochie Flagrante* February 21, 2018 at 11:17 am I never suggested that Drew was incapable of functioning “normally.” As I said in my first paragraph, it’s not about the absolute of whether or not he can stand; it’s about how he functions best.
Hills to Die on* February 21, 2018 at 11:19 am I see. I misread the part about the brain missing the neurological link to those body parts.
Emi.* February 21, 2018 at 11:18 am That sounds different from ” he feels as though he was meant to be a paraplegic,” though.
Countess Boochie Flagrante* February 21, 2018 at 11:22 am It isn’t really. What the brain is signaling to him (as I understand it) is essentially “there’s not supposed to be anything there, those limbs aren’t a part of me, they’re something alien.” People with BID have pretty severely harmed themselves in order to get the offending limbs removed. Again, the comparison with phantom limb syndrome — “I feel like I have a hand there and it hurts” when the limb has been amputated.
fposte* February 21, 2018 at 11:33 am Yes, I think there’s some interesting neurological crossover. My first encounter with this concept was actually with somebody with a clinical birth defect that left him with short arms, and his neurology insisted his arms were too *long*. Because of his physical status he found doctors willing to do surgery, and he was incredibly happy with the result. What I found really enlightening about that, as somebody who was orthopedically able-bodied, is that the “right” body for him was *farther* from the average and not closer to it.
RabbitRabbit* February 21, 2018 at 11:49 am When I think of phantom limb syndrome I’m reminded of a quote from Sen. Tammy Duckworth, who dressed-down a contractor for trying to claim disabled veteran status over having hurt an ankle during military prep school. She asked him if his foot hurt that day (of the questioning), and when he said yes, she said, “”My feet hurt, too. In fact the balls of my feet burn continuously and I feel like there is a nail being hammered into my right heel right now.” She doesn’t have feet, after losing both of her lower legs after the chopper she was flying was shot down over Iraq.
KellyK* February 22, 2018 at 9:22 am It doesn’t, but twisting your ankle while playing football shouldn’t get you set-asides reserved for service-disabled veterans, just because the injury happened at a military prep school. This is a guy who was exaggerating his status severely as a way to make money. He literally referred to a football injury as “crosses that I bear in my service to our great country.” Duckworth, who actually was permanently disabled in actual combat, has every right to call BS on that.
Zillah* February 21, 2018 at 11:31 am I don’t think that it does, though. It’s certainly a more colloquial way of putting it, but I don’t see anything inherently contradictory.
The New Wanderer* February 21, 2018 at 12:32 pm This. The video editors probably chose that line out of dozens that he used in explaining how he feels about his condition because it’s catchy and unusual, but not necessarily more ‘correct’ than the neurological explanation involved with bodily integrity disorder (or whatever is going on).
Thlayli* February 21, 2018 at 4:26 pm I saw a documentary about people with this condition and at least some of them feel very strongly that the specific part of their body isn’t really theirs. One of them likened it to if you or I woke up one day to find a hand missing and a strangers hand sewn on to your body. But its not necessarily purely a mental illness – we don’t really know yet what causes it. I actually have a theory about this disorder based on nothing but a hunch. I suspect that some or all of the people with this disorder may actually be chimaeras. For anyone who doesn’t know, a chimaera is a person that has formed from two separate embryos that fused together. Just like an embryo can split into identical twins (up to about 14 days max after conception), two embryos can also fuse to form one (we don’t know as much about this but I’m guessing it would also have to be prior to 14 days after conceptions). When this happens, individual organs will usually come from one embryo, so for example your liver might be from one embryo but your brain from another. This is common in some other mammals and many insects but was thought to be either very rare or non-existent in humans – until the case of the lady who gave birth to children that were not genetically hers. it turned out her reproductive system had genes from one embryo and her blood from a different embryo. And now we think it is more common than people realise. If my hunch-that-is-based-on-nothing is correct, then for example in this case the muscles in his legs could have come from a different embryo than his brain. So he could quite rightly feel that they are not his legs and not feel right walking on them. (There’s also a theory that chimaerism could be one reason people are transgender. Its easy to see how someone with a brain grown from a female embryo and reproductive organs grown from a male embryo would be transgender. But again this is just a theory though I’ve seen it discussed on at least one message board for trans issues.) So basically, I wouldn’t be so quick to jump to conclusions OP. The human body is a weird and wonderful and fascinating thing and all sorts of stuff is possible. The documentary shows that he isn’t intentionally lying, as Alison says he has an actual condition, just not the one he thinks it is. As another PP said he might hand just said “paraplegic” because he doesn’t feel comfortable telling everyone the name of the condition he does have, due to the stigma.
Thlayli* February 21, 2018 at 4:27 pm Oh, I actually meant this to be a new comment. Oops, nesting fail.
Countess Boochie Flagrante* February 21, 2018 at 4:31 pm Huh, what an interesting theory! I love hunches-based-on-nothing in general — the Wild Mass Guessing pages are my favorite part of TVTropes, too.
Not So NewReader* February 21, 2018 at 8:51 pm Very interesting idea, thanks for sharing this. We just don’t know what it is we don’t know.
Flash Bristow* February 22, 2018 at 10:10 pm Hear hear. There’s the social model of disability and the medical one. The medical model is “you’re broken, how can we fix you?” whereas the social model is “what do you need in order to be able to do the same as anyone else?” Another aspect of the social model is that people can self declare needs and impairments without needing medical assessments. To be honest I don’t know anyone faking a disability ‘for a laugh’ – they might do it to claim benefits, but quietly maintaining the need for wheelchair use in the workplace, without making a fuss, doesn’t ring those bells. Honestly it sounds like Drew just wants to do his job without fuss. Nowadays we just use the social model – at least in UK. So, let’s look at what you need in place so Drew can do his job / access the cafeteria / be safe during an evacuation / any other work related issues, and not the reason why. Thats the best, kindest, most practical and least discriminatory way to handle this. And if it breaks new ground, so what? In future you might have another mobility impaired colleague who will benefit from there being established practices for these issues. Just remember that disability accommodations must be reasonable. So eg they won’t bankrupt the company. But Drew clearly has an issue and so far as we can tell it’s not for attention or as some kind of point scoring prank – so I would continue to accommodate his needs where reasonable.
NCKat* February 21, 2018 at 11:13 am I’m a wheelchair user and I would say give him the benefit of the doubt here. How long ago was the film made? If it was made some time ago, he could have become paralyzed for real since then; you don’t know. Wheelchairs are no fun, I can tell you.
Oryx* February 21, 2018 at 11:22 am Especially with documentaries: just because it may have been released recently that doesn’t indicate when it was filmed. Those films take years to put together.
Ramona Flowers* February 21, 2018 at 11:34 am They also often distort the truth, through editing, coercion or leading questions. I have known people who have been unhappy with their portrayals in documentaries and I would never ever take a TV show as fact just because it shows someone on film.
Ramona Flowers* February 21, 2018 at 11:36 am They also often distort the truth, through editing, coercion or leading questions. I have known people who have been unhappy with their portrayals in documentaries and I would never ever take a TV show as fact just because it shows someone on film. It’s also possible that someone could be able to walk AND need a wheelchair. It’s possible he uses paraplegic as easy shorthand (because when you’re not completely paralysed people don’t really get it – just look at the recent letter writer who said they had a physical disability and had to deal with commenters asking why she could do anything). I agree with those who are focusing on empathy.
(Different) Rebecca, PhD* February 21, 2018 at 11:38 am …most films in circulation have either an IMDB presence, or copyright information directly in the credits of the films themselves.
Penny Lane* February 21, 2018 at 12:37 pm Good grief. Alison has asked repeatedly to take letter writers at their word. If it was evident that what was in the film was Drew-35-years-ago-when-he-still-had-hair-and-wore-bell-bottoms, then the letter writer would have mentioned that. People here twist themselves into such pretzel knots.
Tuxedo Cat* February 21, 2018 at 1:34 pm Some documentaries note when interviews were filmed. A lot of times, you can find the info online too.
Hey Nonnie* February 21, 2018 at 11:13 am Yeah, I agree… it’s a mental health accommodation, rather than a physical disability, but both are covered under ADA. Just loop in those who will need to be aware that this is a mental health rather than a physical accommodation. From there, how Drew handles his health condition is between him and his healthcare professionals. I do wonder if the documentary should be brought up to Drew, though — not in an accusatory way, but to let him know that people in the office have already stumbled across it, and it may be something he needs to deal with if a coworker/client/vendor asks him about it in the future. I’m sure Drew would prefer not to be blindsided by questions in that way… but at the same time, he had to have known that was a risk when he agreed to participate in the documentary, so I don’t know which is the best way to go.
Lil Fidget* February 21, 2018 at 11:18 am This is a good point that didn’t occur to me. You might need to have a conversation with Drew here even if my preference would be not to.
Myrin* February 21, 2018 at 11:13 am Oh wow, that’s an interesting letter for sure; I had no idea an issue like this existed. (Also, I marvel at the OP – and another coworker! – happening to watch this short film with one of her reports in it! Just out of pure curiosity, OP: are there some kind of regional ties between this film and your area or was this really just a huge coincidence?)
Manders* February 21, 2018 at 12:00 pm I think the rise of streaming services has played a part in this–documentaries used to be a fairly niche thing you had to track down in a small theater or catch at just the right time if you wanted to watch them. I think a lot of documentary subjects from the 90s and early 2000s didn’t think about the possibility that the films they were making would be a few clicks away in the future.
Jules the 3rd* February 21, 2018 at 12:17 pm The film got a lot of publicity a few months ago – I saw commercials for it, and 2 – 3 news articles. Maybe on Netflix or a similar streaming thing?
bohtie* February 21, 2018 at 4:18 pm that’s what I was thinking. I think I know what film the OP is referencing because it was a bit of a meme for a while — seemed like EVERYONE had seen it.
TempTation* February 21, 2018 at 5:09 pm There was a minor plot point in a recent Robert Galbraith book similar to this – I wonder if that spurred a lot of documentary viewing? (Granted, in the book one person seemed legit, and the other seemed to be an attention hound.)
AnotherAlison* February 21, 2018 at 11:14 am This is an interesting case, for sure. One thing I wonder is if he can still use his legs with full functionality. My mother had a broken hip, and the rate of strength decline in her injured side and good side was amazing. I assume no one knows if he ever walks or stands outside of work.
Chelsea* February 21, 2018 at 11:16 am I actually wouldn’t alert HR. I can really see this getting out around the office and potentially embarrassing him, and worse, I don’t think it will make him want to change his behavior. All it will do is make everyone really uncomfortable. If he wants to be a paraplegic because of a mental illness, and it isn’t really impacting his work or others, I would honestly pretend like I had never seen the documentary.
Snark* February 21, 2018 at 11:18 am But if it does get out, as secrets tend to, I’m not sure I see the problem with natural consequences.
bananaboat* February 21, 2018 at 11:24 am the natural consequences? He has a mental disorder. He isn’t pretending to have a disability he believes he has it. He is ill he has done nothing wrong other than live his life.
Alli525* February 21, 2018 at 11:34 am I think Snark means the natural consequences of his coworkers finding out and some getting quite upset.
Snark* February 21, 2018 at 11:35 am He may have a real disorder. It is also resulting in behavior that is problematic and offensive, and which will read as bizarre and deceptive when coworkers find out. Both are true.
Snark* February 21, 2018 at 11:44 am To clarify, my issue is with the claim that he’s actually paraplegic. If he had simply stated that he has a condition which makes it more comfortable to use a wheelchair, I think that’s more fundamentally honest.
bonkerballs* February 21, 2018 at 7:21 pm But what right do any of his coworkers have to what his actual diagnosis is? We give people advice on this very website all the time to skirt the truth when it comes to medical issues, especially when it comes to mental health issues. Mental heath issues carry strong stigmas, and this is certainly not your run of the mill depression or anxiety that’s gaining more visibility and understanding. Saying paraplegic because that’s something people understand rather than explaining the actual nature of his disorder and risk people telling him to quit faking it is entirely understandable to me.
Liane* February 21, 2018 at 11:56 am “He may have a real disorder. It is also resulting in behavior that is problematic and offensive, and which will read as bizarre and deceptive when coworkers find out. Both are true.” That too. Alison did answer a letter from a manager who had a report with diagnosed hypochondria and it was creating problems with coworkers because of how he was acting/talking in the office. I think it was if a coworker had a medical issue, either he said he had/once had, or shortly thereafter came down with, a worse case. This is also likely to end in a case of Competing ADA/Accessibility. What happens when there are other employees/customers/clients with a physical disability and a disabled parking permit and Drew is taking the last handicapped space? Yet another reason to let HR know.
Case of the Mondays* February 21, 2018 at 11:42 am I read it as the natural consequences of doing the documentary.
Liane* February 21, 2018 at 11:35 am If Drew agreed to be filmed for this documentary, didn’t withdraw from the project during filming/postproduction, and hasn’t withdrawn his consent to appear since release–it follows that he is okay with the possibility of being embarrassment as well as possibly dealing with whatever feelings/opinions others express about it.
Anon,Anon, Anon* February 21, 2018 at 12:06 pm Honestly, I wonder if that is part of his disorder? I don’t know, but I would wonder. If I was in Drew’s shoes, I’d avoid the limelight like the plague, but he sought it out. That makes me think he’s on some level wanting people to know.
MLB* February 21, 2018 at 12:33 pm That would only be an issue if you had an HR department who wasn’t doing their job properly. If rumors start circulating because the manager went to HR, there’s a bigger problem at hand.
WillyNilly* February 21, 2018 at 11:17 am This doesn’t strike me as so different than hypocondria, which is a very real disorder. Drew has a car with hand controls and a wheel chair – these are not inexpensive items; his disorder, while perhaps not parapalgia, is definitely impacting his life in profound ways. To me, that supports how real this condition is. I think Allison’s advice is spot on.
Countess Boochie Flagrante* February 21, 2018 at 11:19 am Agreed, and wheelchairs are a massive pain in the butt to manage. Whatever his disorder really is, I think it’s pretty clear that he’s willing to put up with all this in order to live his best life as he sees it.
Goya de la Mancha* February 21, 2018 at 1:28 pm Agreed, in which no one is being “harmed”. You can argue the ethics of it yes, but he is not physically harming anyone, preventing them from living their life, or cashing in on their good will. I have a friend who is POSITIVE that she has PCOS, despite several doctors/tests/etc saying otherwise. She hurts no one (in our orbit at least), she is actually very knowledge able about the condition because she’s so concerned she has it, and I’m not a medical professional. It’s just one of those smile and nod type things…not much else you can do. Now if someone with PCOS wants to take her on, that’s their deal and I’m staying out of it.
Countess Boochie Flagrante* February 21, 2018 at 2:09 pm Hah, and as someone who does have PCOS, I’d have absolutely no problem with her saying she has it! I mean, it’s a barely understood mess of symptoms to begin with, so who knows? When I got to the point where doctors were saying that you didn’t actually need to have polycystic ovaries to have polycystic ovarian syndrome, I basically stopped taking it seriously as a diagnosis that some gynecologist plopped on me 15 years ago.
Countess Boochie Flagrante* February 21, 2018 at 4:28 pm I usually settle with “Ugh, this BS again.” But I’m not sure that’s really appropriate for medical literature :)
oranges & lemons* February 21, 2018 at 2:54 pm Yeah, I really don’t think it’s the LW’s place to try to determine whether her employees “really need” any particular medical aids (not that the letter itself implied this! It’s just the sense I’m getting from some of the comments here). That’s between Drew and his doctor.
SallytooShort* February 21, 2018 at 11:17 am Except for alerting HR in case the situation changes, honestly, I’d leave this alone. Drew hasn’t asked for any accommodation. And he’s not “faking” for the fun of it all or to scam anyone. He has a disorder.
SallytooShort* February 21, 2018 at 11:18 am On second thought, I’m not even sure about HR. It depends on how good your HR team is. But sometimes they can be the most gossip fond people around.
Lil Fidget* February 21, 2018 at 11:30 am I do hope that HR won’t be terrible. They’re only humans and I can imagine them totally blowing this situation rather than following Alison’s calm, collected recommendations. Maybe OP can present the situation in such a way – probably by leading with the mental disorder – so they don’t go straight for the torches and pitchforks :( I did also wonder if OP would want to talk to Drew before going to HR in case there is fallout from that decision. I could see HR at the very least denying him his parking spot (and if that happened, people might start asking more questions).
AB* February 21, 2018 at 11:17 am The ADA includes people who do not have a disability, but are regarded as having a disability, so even if Drew did not have a mental condition, this scenario would be covered. I think Allison’s advice is great. I’d follow it. I have an invisible disability and use handicap parking, require some mild accommodations. I receive a very obvious medical treatment while in the office (IV hydration) and my experience has been that employers are unsure how to navigate ADA issues and that because it is an emotional issue it can get very sticky.
BookCocoon* February 21, 2018 at 11:28 am Based on my admittedly brief Googling on the matter, the “regarded as” portion only applies to discrimination, not accommodation. So someone can argue that their rights were violated if they were discriminated against because others believed they had a disability they don’t actually have, but they are not entitled to accommodations if do not have a disability but are only “regarded as” having a disability. I would be very interested to know if there’s legal precedent for providing workplace accommodations for someone with body integrity disorder.
Knights Who Say Knit* February 21, 2018 at 9:38 pm I think the relevant part of the ADA here is that mental health disabilities still count as disabilities. It’s not really relevant that he’s regarded as having a disability, since he DOES have a disability; it just happens to be a disability with a psychological (or neurological) rather than physical origin.
CyberTech* February 21, 2018 at 11:19 am just a few questions 1 – are you 100% positive its Drew in the film? I mean would you would be willing to testify to that kind of level of belief it is him? 2 – are you 100% sure he has no medical issues that may cause mobility issues? Some people often use walking aids and wheelchairs despite being able to walk as their conditions might not prevent them from walking but prolonged activity can be very painful If you are 100% positive in answer to those questions, I’d think a word with a lawyer who can advise you about disability & employment issues may be worthwhile as you are providing accommodations for Drew (parking space) & you need to be sure that those are provided appropriately to the appropriate people and not abused. If your legal advice turns out to be ‘leave it alone’ then at least you’ve made an effort to check it out & if there is any public fallout from this you and your company would be able to point to having taken legal advice about the issue Personal Aside – I really hate people who ‘pretend’ or emulate physical disabilities. You either have one or you dont (IMO) & those who take away facilities or goodwill from those who really do suffer are not very nice people (again IMO)
Amber Rose* February 21, 2018 at 11:31 am Regarding your second question, I kind of doubt that’s the case if the answer to the first is yes, since the film he was in was specifically regarding people who do not have the physical disability they believe they do.
Zillah* February 21, 2018 at 11:41 am Without knowing any other information about the film, I do think it’s possible that “need” was narrowly defined. I’ve seen that a lot, including in pop culture – if you can do anything without it, you’re “faking” it. As someone whose mother has ALS and has progressed from never needing a wheelchair to always needing a power chair in the last 18 months, that’s a pov that really bothers me but is quite common. I’m not sure that that’s the most likely situation, but I do think it’s a possible one.
LBK* February 21, 2018 at 1:54 pm I understand we try to be pretty cognizant of things like this on AAM, but I think this is erring too far on the side of giving people the benefit of the doubt when they have already actively waived it. I assume the documentary crew wasn’t secretly filming these people and making assumptions about their condition – it sounds like Drew, by his own assessment and admission, does not have any physical disability that requires use of a mobility aid. We’re not talking about seeing someone stand up and walk around for 5 minutes at the grocery store and assuming that means they don’t actually need their wheelchair – he himself said he doesn’t actually have the disorder that “necessitates” him using it. It would be pretty weird for him to agree to be part of a documentary where the whole point is to focus on people with BIID who don’t have physical disabilities if he did in fact have a physical disability.
Zillah* February 21, 2018 at 2:54 pm I did say that it wasn’t the most likely situation. However, I’ve seen powerful people use their platform to narrowly interpret disabilities in really problematic ways, use what people say out of context, and make sweeping generalizations based in stereotypes rather than facts too much to not raise it as a possibility. For example: access to better mental health treatment is often portrayed as a core part of addressing interpersonal gun violence, despite the fact that mental illness has been empirically shown to play a role in only a small percentage of interpersonal gun violence. The most powerful people in the United States (in both parties) regularly reinforce this narrative, which further stigmatizes people with mental illnesses. I just don’t give our society the benefit of the doubt when it comes to appropriately representing medical issues when it’s possible to score cheap points and/or consumers.
LBK* February 21, 2018 at 3:33 pm I’m still not really following your concern here – are you suggesting the documentary crew brought him in under false pretenses, eg didn’t fully explain what kind of person they were looking for, and then portrayed his situation in a misleading way?
Zillah* February 21, 2018 at 4:52 pm I’m suggesting that footage and testimonials can be edited in very misleading ways, and that the implications of medical conditions can be misrepresented. I’m not sure why you think it’s so out there – I’ve certainly seen documentaries that took significant liberties in how they approached their subject, and reality tv is notorious for selective editing. And, again, I didn’t say that I thought that that was the most likely situation, so I’m not totally sure why this is a point of contention at all.
LBK* February 22, 2018 at 4:49 pm I think there’s a difference between editing someone’s footage to create a certain narrative vs putting out a cast call for people with invisible physical disabilities and then portraying them as having a completely different medical condition. My point is that Drew had to self-select into being a part of a documentary whose whole subject was people who don’t actually have physical disabilities, so I don’t understand everyone dancing around “well, maybe he does, you can’t tell just because he can walk sometimes.” He said himself that is not the case – you don’t have to give the benefit of the doubt because he already waived it.
Penny Lane* February 21, 2018 at 11:32 am Can we take the LW at her word that she can actually *recognize her very own co-worker* in a film? That this isn’t some blurry Zapruder-like film shot with Vaseline on the lens? And given that the film’s whole intent was to show people who don’t have disabilities but pretend that they do, it would seem evident that if this was really “hey, meet Drew — he doesn’t technically need a wheelchair but he has conditions that make it more comfortable for him to use a wheelchair,” that would have been a) pointed out in the film or b) meant that Drew wouldn’t have been in the film in the first place. Take the LW at her word here.
CyberTech* February 21, 2018 at 11:38 am People do look like others, especially on film & it is possible even when knowing a person well to mis-identify. I’m not disputing the word of the LW, just merely wondering if it has been considered. Also documentary crews and others who make these kinds of films are not above pushing their agenda, many have being caught lying before or hiding issues about people to push one specific line of thought. Again thats not a questioning of what the LW has said or might believe, just wondering if something has been considered. This kind of critical approach should be encouraged if HR and legal advice are going to be considered. The questions of ‘do we know all the facts?’ ‘are all the things we know correct? did we make any assumptions?’ no need to be so attacking Penny
Catalin* February 21, 2018 at 11:51 am I concur with Cyber; people have dopplegangers, people have twins, did the film specifically say, “This is Drew X Smith from Minneapolis, he’s 34 and has…..”? And aside from the point, if the case is that he has conditions that make it more comfortable to use a wheelchair, then yes, he uses a wheelchair.
Tuxedo Cat* February 21, 2018 at 2:21 pm I agree… In the documentaries I’ve watched, unless the people choose to be anonymous (and then they’re shown in the shadows or blurred out), their names and even location are used.
LawBee* February 21, 2018 at 11:45 am “Personal Aside – I really hate people who ‘pretend’ or emulate physical disabilities. You either have one or you dont (IMO) & those who take away facilities or goodwill from those who really do suffer are not very nice people (again IMO)” You should look up BIID. It may change your mind on this – it’s likely he isn’t pretending, but that he has an actual physical brain issue. Read comments upstream as well (fposte is good, as always). I agree in principle, but it doesn’t sound like that’s what is happening here.
Fabulous* February 21, 2018 at 11:21 am I’ve seen a documentary on this disorder following a woman who thought she was meant to be parapalegic. She often went skiing, but otherwise she was confining herself to a wheelchair every day. She was even going so far to look for a doctor who would sever her spinal cord to be fully disabled, but she hadn’t found a doctor to do it. So while it may not be a physical thing, and I can’t imagine what Drew is going through mentally. I agree HR needs to be looped in though to the situation.
Countess Boochie Flagrante* February 21, 2018 at 11:35 am Yep, and I’ve also heard about people with BID who have done things like deliberately given themselves severe frostbite so they could get their feet/legs amputated.
fposte* February 21, 2018 at 11:47 am Yes, I find it really fascinating, and I’m really interested in how we negotiate these things culturally. I can, without much difficulty, imagine a world where this ceases to be called a delusion. I also think one reason why it’s challenging is because of the stigma of disability; it can be really startling for people outside of the community to understand Deaf parents who actively want their child to be Deaf, or little people who want their kids to be little.
Kj* February 21, 2018 at 12:18 pm One of my favorite book addresses ideas about disability and the desire for parents and children to share or not share the having a disability. The book is Far From the Tree and it has chapters on the deaf community and on the little person community. It is really fascinating for anyone who is curious to learn more about this idea.
CMDRBNA* February 21, 2018 at 3:46 pm I love this book – I’ve read it several times and it really helped me understand my mother, who has autism, better.
LBK* February 21, 2018 at 1:56 pm Never seen a real-life example of it but there was an episode of Nip/Tuck about this where a client wanted the doctors to cut his leg off and they wouldn’t do it so he froze it off with dry ice. Didn’t realize that had such a strong basis in reality.
Countess Boochie Flagrante* February 21, 2018 at 4:52 pm Yep. I mean, it isn’t common (nothing about BIID really is) but it is definitely a thing that has happened on multiple occasions.
bonkerballs* February 21, 2018 at 7:25 pm Same on Grey’s Anatomy. Someone wanted their foot amputated and when the doctors wouldn’t, he ended up stealing a chainsaw from someone who had been brought in from a chainsaw carving accident and doing it himself.
A Wheelchair User* February 22, 2018 at 4:51 am As someone who is actually physically disabled, this aspect of that woman’s story really, really bothers me. If someone claims she’s “supposed” to be physically disabled but can nonetheless magically stop being “supposed” to be disabled if it gets in the way of her having fun, that doesn’t sound like “I truly believe I’m supposed to be disabled” so much as “I like pretending to be disabled and talking about how I’m ‘supposed’ to be disabled while still enjoying the privileges that come with being able-bodied whenever I feel like it.” I don’t get to stop being disabled when it’s inconvenient. I don’t have the option to decide that I’m going to be able-bodied today because I want to go skiing. I can deal with people who genuinely completely believe in their “disability” and live accordingly (although I will freely admit that I’d probably struggle with it somewhat if I actually had to interact with someone like that regularly). I cannot really deal with people who treat a major part of my identity, which I obviously did not choose and which forces me to put up with a great deal of exclusion, discrimination, and other mistreatment and marginalization from society, as something they can adopt and remove at will. If she really thinks she’s supposed to be paraplegic, then as far as I’m concerned, she can either try to find ways to accept and cope with the fact that she’s able-bodied or she can actually live as if she were paraplegic, but acting as if she’s paraplegic except when she wants to do things she couldn’t do if she were paraplegic sounds a whole lot less like a genuine issue with how she perceives her body than like some sort of deeply offensive cosplay. (It strikes me as being similar to the difference between a white person who presents themselves as a person of color 24/7 and a white person who puts on blackface and speaks in AAVE on a regular basis but who conveniently becomes white again as soon as they go to a job interview or get pulled over by a cop. I can manage to believe that the former might have a mental illness causing them to genuinely think they are a person of color, but I have a very hard time believing in the existence of a mental illness that causes a white person to genuinely think they are a person of color unless they’re in a situation where they’d rather be white. Drew might be genuinely convinced of his “disability,” but I am thoroughly unconvinced when it comes to someone whose position is apparently “I’m supposed to be paraplegic, but since I don’t happen to know any doctors who’d perform a profoundly unethical and illegal medical procedure that would certainly cost them their medical license and almost certainly land them in prison, I guess I’ll just have to settle for pretending to be paraplegic when I feel like it and enjoying being able-bodied when I don’t!”)
Gadget Hackwrench* February 23, 2018 at 12:38 pm The skiing thing certainly does make her BIID diagnosis seem sketchy to me. Why is it okay with her to have functioning legs when she skiis?
AngelicGamer aka that visually impaired peep* February 21, 2018 at 12:38 pm ^ this is where my mind is too. There are some horrible injuries that come with skiing and a high number end up with broken bones / spinal cords.
STG* February 21, 2018 at 11:21 am Definitely odd but collective shrug from me. The parking space does make me a little uncomfortable though. I don’t think that’s necessary.
Lil Fidget* February 21, 2018 at 11:31 am Might depend on if there’s other who need the space, or if there are enough spaces to accommodate all who need them.
Detective Amy Santiago* February 21, 2018 at 11:22 am I don’t think I’ve ever been so angry at a letter here before. What Drew is doing is wrong, OP, and it needs to be addressed immediately. By pretending to have a physical disability, he is essentially mocking actual disabled people and making their lives harder.
SallytooShort* February 21, 2018 at 11:25 am He isn’t pretending. Nor is he mocking anyone. He believes he is supposed to be a paraplegic. It’s a documented medical disorder.
Snark* February 21, 2018 at 11:32 am Why not both? It can be a legitimate psychological disorder and be intensely problematic for the physically disabled. I’m reminded of the hypochondriac who mirrored his colleagues’ cancer diagnoses from a while back.
SallytooShort* February 21, 2018 at 11:34 am Because a legitimate psychological disorder is still covered by the ADA. And it is not the same as faking or pretending.
Snark* February 21, 2018 at 11:39 am I’m talking about the social ramifications, not the legal ones. Whether it’s covered by ADA or not, the way he’s represented himself is an issue. I’d be much more sympathetic if he’d represented his wheelchair use as honestly as he did in the video.
Detective Amy Santiago* February 21, 2018 at 11:47 am Agreed with this. I am a mentally ill person and I would be a lot more accepting of this being presented as what it actually is instead of co-opting someone else’s experience. My friend who is in a wheelchair has a plethora of physical problems related to her disability and she struggles on a daily basis to do the basic tasks that many able-bodied people take for granted. Drew was in a documentary walking around and talking about how he didn’t really need a wheelchair. That makes me wonder what he does in private. Is his use of the wheelchair performative when he’s out in public, but when he’s home, he does things “the easy way”?
Leatherwings* February 21, 2018 at 11:50 am So you think Drew should need to announce to his workplace that he is mentally ill? That seems like a ridiculous requirement. As someone said above, this is a physical manifestation of his mental disability.
Snark* February 21, 2018 at 11:54 am I think he should represent himself honestly – that he has a condition that makes using a wheelchair more comfortable and pleasant. I don’t think he is entitled to claim that he is a bona fide paraplegic.
Leatherwings* February 21, 2018 at 12:01 pm Hm. I think that maybe he’s attempted to do that? Like, LW said he mentioned once in passing that he’s paraplegic but otherwise doesn’t talk about it at all.
Detective Amy Santiago* February 21, 2018 at 12:08 pm Drew doesn’t have to tell his workplace that he’s mentally ill, but he also shouldn’t be telling them he is paraplegic when he’s not.
JB (not in Houston)* February 21, 2018 at 1:07 pm @Snark I would be hesitant to represent myself “honestly” if doing so would require him to disclose a mental illness. Just by the comments on this thread, one can imagine how well that would go over. And if he just says he has a condition that makes using a wheelchair “more comfortable and pleasant”–then he has to deal with the able-bodied self-appointed disability police who feel they have the right to determine whether he deserves accommodation. I can completely understand why he said what he did, especially since he believes that’s the correct description for him, whatever his body is currently capable of.
Snark* February 21, 2018 at 6:02 pm I have to announce to my workplace that I’m disabled, so that strikes me as less of an imposition than I’m sure you mean to imply.
fposte* February 21, 2018 at 11:35 am I think that’s slightly different from Detective Amy’s characterization, though; it can be problematic without being mocking or pretense. (I’m also not sure I agree, but it’s not really up to me to decide since I’m not a wheelchair user.)
Leatherwings* February 21, 2018 at 11:26 am I feel like this view assigns some sort of intent to Drew that’s missing. It makes me uncomfortable (especially the car and parking spot thing), and I don’t disagree that it makes it harder for people in wheelchairs, but Drew’s brain really believes he’s paraplegic because he has a real mental disorder. I just don’t find it productive for anyone to be angry or furious at something he likely can’t help.
Detective Amy Santiago* February 21, 2018 at 11:42 am In the film, Drew walks and is clear that he is not paralyzed and has no actual need for a wheelchair Drew knows he is capable of walking.
SallytooShort* February 21, 2018 at 11:44 am The disorder makes it so he thinks he should be paraplegic.
Leatherwings* February 21, 2018 at 11:46 am You’re painting this as really black and white – I used this analogy above but someone who is extremely depressed “knows” they are lucky and have an amazing support system but that doesn’t prevent their mental illness from manifesting itself. Drew might logically know when he sits down and talks with someone that he is not a paraplegic, but his mental illness still manifests itself in him believing he needs a wheelchair most or all of the time. Again, I don’t disagree that this is uncomfortable and that the impact is likely harmful for other paraplegics, but I do think it’s much more complex than you’re painting it. Drew is likely not operating under the same logic you and I are.
Rat in the Sugar* February 21, 2018 at 12:03 pm The same way that someone with an eating disorder may know that they only weigh 85 pounds or whatever and still believe they are fat, Drew may know that his legs can move and still believe that he is disabled. Or the same way that I with my paranoia know very well that people are not secretly watching and judging everything I do and yet still believe that they are–and that cognitive dissonance makes my brain feel like it’s ripping in two sometimes. If I could have something like a wheelchair to make that “brain and reality don’t match fix it FIX IT” feeling I would absolutely get one.
General Ginger* February 21, 2018 at 3:05 pm Canceling the reply I just started to type, because you phrased it so much better. Thank you!
bonkerballs* February 21, 2018 at 7:27 pm And I know my anxieties are not founded on rational thinking. Doesn’t make them any less real.
Ask a Manager* Post authorFebruary 21, 2018 at 11:27 am Drew does (probably) have a disability. It’s just not the one the OP originally thought he had. If he has a mental disorder that leads him to believe he needs a wheelchair, he’s not mocking anyone. I get where your feelings are coming from, but I think if you reframe it as a different type of disorder, it will read differently to you.
Statler von Waldorf* February 21, 2018 at 12:06 pm Nope. Even through the lens of viewing it as a mental health disorder, I still would want to beat Drew with the cane I’ve needed to walk for the last 20 years until he actually was a paraplegic. I have personally seen more than one person admit to faking a disability merely for the sympathy, and I wouldn’t be able to believe that Drew isn’t doing it at least in part for that reason.
Leatherwings* February 21, 2018 at 12:26 pm That’s… violent. I find it odd that you would steadfastly refuse to believe in his mental disorder.
Statler von Waldorf* February 21, 2018 at 1:46 pm It’s a 100% pure emotional reaction. Logically, I am aware that it is very jerkish attitude to have and I should be empathic to someone suffering from mental illness, especially since I have mental health issues myself. However, emotionally it just feels like he is making a mockery out of a lifetime of pain and suffering that I have dealt with due to my disability, and I wouldn’t be able to work through it. I wouldn’t actually beat him with my cane, but I would quit my job on the spot rather than work with him again once I found out, the feeling is that strong.
Leatherwings* February 21, 2018 at 4:30 pm Well, part of being professional is to reign in your emotions when you know they’re not logical… This feels like a you issue, not a Drew issue.
Leatherwings* February 21, 2018 at 4:45 pm I’m realizing this sounded more hostile than I intended. What I’m really saying is: you’re entitled to your emotions, of course. But the way you responded to Alison as if she were objectively “wrong” and used fairly violent rhetoric to describe why you’re angry at a person with a mental disability doesn’t feel that productive or helpful for people reading it. Not everyone has to have the same emotional reaction in order to be a decent or fair person.
Statler von Waldorf* February 21, 2018 at 6:15 pm I feel that sharing the fact that some people will have an overwhelming negative emotional reaction and quit when (not if) they find out is useful information to the letter writer. I do believe that Alison is objectively wrong with her statement “if you reframe it as a different type of disorder, it will read differently.” Alison is not physically disabled, I am, and she flat out does not know what it’s like to emotionally deal with the transabled as a physically disabled person. Thank you for reminding me why I don’t comment here anymore.
Thursday Next* February 21, 2018 at 6:48 pm @SvW: I agree it’s important for the LW to have this information, and I’m sure you wouldn’t be alone in having a strong reaction. I hope you won’t be discouraged from commenting here.
A Wheelchair User* February 22, 2018 at 6:58 am I just wanted to say that, while I don’t have the “beat him” part of the reaction, I definitely do have the “this is incredibly offensive to me and feels like it makes a mockery of what I have to live with” part, so you’re not alone there. I kind of feel like some of the able-bodied people here aren’t really getting why this can be viscerally upsetting to people living with physical disabilities. I also have mental health issues. I’m genuinely sympathetic to mental health issues. I get that that makes things a whole lot more complicated than if Drew was faking a disability in order to scam people out of money or something. But to me, this reminds me of both the bird-phobia guy and the guy with hypochondria from a while back. In both cases, I understand that their illness is real, isn’t rational, and isn’t something they can control, and I *also* understand that it’s really not okay to deal with even the most real of mental disorders by shoving your colleagues in front of moving cars, insisting to them that you have every serious illness they or their family members are dealing with, or accusing them of spreading the plague. Similarly, I can accept that Drew may have a real mental disorder, but even if he truly does, that doesn’t change the fact that his behavior crosses a line for me and that I find it really upsetting. I think I’d manage to deal with it if he were honest about his condition and didn’t ask for or accept any accommodations that came at the expense of people with actual physical disabilities (which, to be clear, I’m not saying he does, although the parking space is concerning on that front – I’d very strongly suggest the OP make sure Drew isn’t parking closer than anyone with actual physical disabilities who needs the closest spaces more than he does, both because it’s the right thing to do and because the situation is way, way more likely to boil over if Drew is perceived as not just “using accommodations he doesn’t actually need” but “taking accommodations he doesn’t actually need away from people who do need them”). Seeing him use a wheelchair because he believes he’s “meant” to be disabled when I’d give almost anything to have the luxury of deciding that I was “meant” to be able-bodied would still bother me, but I could probably get over it enough to be civil and work with him as long as those two conditions were met. If not, though…that’d be seriously hard. I do get why he’d be hesitant to say “I have a rare mental disorder that makes me think I should use a wheelchair even though I don’t physically need one.” But I don’t really see a good reason why he ever needed to say more than “I use a wheelchair” and perhaps something like “eh, it’s complicated – but I don’t really want to talk health stuff at work” if someone asked why he used the chair. Instead he lied and explicitly claimed a disability he doesn’t have (and since he apparently acknowledges in this documentary that he’s not paraplegic, I do think that constitutes a deliberate lie). That, to me, is worse than the hypochondriac guy telling people that he really did have cancer and dementia and so forth, because at least he presumably actually believed it rather than thinking he was “meant” to have cancer – and people quit over that, because it’s really freaking upsetting to have someone falsely claim to have a serious health problem that you actually have. And I feel like in the rush to make sure we’re not unfairly stigmatizing the mentally ill (which is a good goal, to be clear!), people are kind of glossing right over the fact that it’s possible to sympathize with someone’s mental illness *and* sympathize with the fact that physically disabled people are justified in feeling upset about this sort of thing, just as many people of color were to feel upset by Rachel Dolezal. I suspect she’s mentally ill to much the same degree that Drew is; she seemed to have the same sort of belief that she was “meant” to be something she isn’t. That doesn’t change the fact that claiming a marginalized identity that isn’t yours is likely to be very offensive and upsetting to many people who actually belong to the marginalized group in question, and that we really ought to be allowed to feel that way without being told that we’re the problem and we should just get over it.
Statler von Waldorf* February 22, 2018 at 2:19 pm If I was less of a cranky jerk, (I’m slowing working on it) I’d like to think I’d write something like this. Very well said, thank you.
Rat in the Sugar* February 21, 2018 at 11:33 am He’s not mocking anyone if he’s got a genuine mental illness. There are people with this disorder whose brains have so strongly convinced them that certain limbs don’t belong to them that they actually get amputations to “correct” their bodies. This isn’t something that he’s just pretending about, it’s real to him and his brain.
Penny Lane* February 21, 2018 at 11:34 am He’s not mocking them IMO – but if handicapped parking spots are limited at this facility, he is taking away a spot from someone who is more deserving. It’s outside the scope of a work question, but he’s undoubtedly taking away handicapped spots from people who are more deserving when he’s using those spots at the grocery store, mall, etc.
fposte* February 21, 2018 at 11:37 am “More deserving” isn’t how accommodation works, though. And while he may not have a disabled parking tag (the current arrangement sounds merely like a workplace accommodation), I’d just as soon people with wheelchairs parked closer to the store to minimize the chance of being hit by cars anyway.
envirolady* February 21, 2018 at 11:57 am I think folks are also forgetting that in many states you can get handicapped car tags for many mental disabilities — depression being one example. Yes, you can still walk, but you are considered “disabled” enough by the government to warrant a spot. Even someone with a wheelchair can’t take it away from you. Or if you have a temporary disability like a broken leg: you aren’t less deserving of a spot than someone who has it “worse” than you. Legally no one cares *how* disabled you are, only that your accommodations are reasonable and are being met.
Becky* February 21, 2018 at 5:38 pm In some states, I could qualify for a handicapped placard/tags based on the fact that I am an adult under 5 feet tall.
hbc* February 21, 2018 at 12:58 pm My mom qualifies for a handicapped placard for physical reasons, but I would argue that she’s less in need of a special space than Drew. I think this particular argument is only worth having if, say, there are only 2 spots anywhere close to the entrance and 3 employees whose situation would benefit from using them.
lisalee* February 21, 2018 at 11:35 am He has a mental illness. That’s a lot different from mocking anyone. Also, even if he were “deliberately” pretending to be disabled, I’m loathe to say that we should start questioning people using mobility aids about whether or not they really need them. Many disabled people are able to walk some days and not others, or switch between using different mobility aids. No one should have to prove to strangers that they really need their aids. That doesn’t help normalize disability. In the end it doesn’t seem to actually be impacting anyone for him to use a wheelchair.
Zillah* February 21, 2018 at 11:52 am This. I’d rather have a few people “fake” disability to get accommodations they don’t need than closely police based on whether people who present as disabled “really” need accommodations. (I’m not saying the OP is doing the latter, just that I agree with lisalee.)
Jessie the First (or second)* February 21, 2018 at 11:38 am I don’t understand this anger. I don’t feel as if my family is being mocked, and he’s not making it harder for my son (as I said in a comment above, my son is disabled, and profoundly so). Plenty of things DO make life harder. Someone with a mental illness acting as if his disability is physical rather than mental has approximately zero impact on my son, though. I would be right there with you if he were actually just pretending – as in, he had no physical or mental disability, but wanted a close parking space or some other accommodations just because he thinks it’d be easier and he’s lazy. Then, yeah, I’d be ragey. But…. this does not appear to be in that category at all.
Countess Boochie Flagrante* February 21, 2018 at 11:41 am Consider that it’s really ableist to decide that someone is managing their disabilities differently than you think they ought to.
Thursday Next* February 21, 2018 at 5:46 pm Although there have been several letters at AAM that have led to discussions of managing disabilities, and whether it’s been done “appropriately” or not—usually these are letters about employees with mental illnesses. I’m thinking of the letter about the man whose hypochondria led him to say he had the same conditions as coworkers, for instance. Commenters discussed at length whether he was managing his hypochondria appropriately.
Observer* February 22, 2018 at 9:21 pm True. But that’s generally in the context of when it hits other people. Even the hypochondira person, who didn’t physically harm people, was pushing his illness into people’s faces in a way that was disruptive across the board. If he was just taking off way too much work, then it would have been only management’s issue – and then it would also not have been their decision as to whether he was managing appropriately, but only whether giving him the time off he needed was an appropriate accommodation.
Jules the 3rd* February 21, 2018 at 12:31 pm Amy, I’ve grown to respect you a lot, and I hear a lot of pain in this comment. Please take some time to dig down and unpack your anger and pain before you do more commenting. Is there some specific incident of someone’s reaction to your friend, or your friend’s struggles to get accommodation, that leaps to your attention when you think of Drew? Is there a chance you’re projecting the pain of ‘my friend can’t walk anymore’ onto ‘but Drew can and it’s not fair!’ ? Because this post is ableist as all get out, and that’s not like you. Drew isn’t making people’s lives harder. How *other people* react to Drew or other people in wheelchairs may contribute to problems, but it’s not Drew’s fault that some people suck. It’s also not Drew’s fault that his brain doesn’t work in quite the same way as everyone else’s. The way he’s described as managing it doesn’t make other people do more work; harm to others is hypothetical. I didn’t even get any ‘he plays it up for sympathy’ vibe from this letter.
tusky* February 21, 2018 at 1:20 pm Even supposing that he is knowingly pretending to have a disability, how is he making the lives of “actual disabled people” harder by doing so? And I fail to see how using mobility aids mocks disabled people (unless he is flagrantly displaying that he is faking, or using them in an obviously buffoonish manner, which doesn’t seem to be the case)–does it mock people with physical disabilities when an apparently able-bodied person uses an elevator? Frankly, there isn’t always a sharp line between able-bodied and disabled, and putting forth rigid boundaries around who is allowed to use assistive devices serves only to reinforce the notion that disabilities have to look a certain way, which (as lisalee points out below) may actually do more harm than good to disabled folks.
Lissa* February 21, 2018 at 1:32 pm Even if he IS making the lives of “actual disabled people” harder, it’s not like he can tell his mental illness to just knock it off for being offensive any more than he could tell it to knock it off so he wasn’t seriously limited in his daily activities, had to buy expensive equipment, and risk alienating his coworkers. Man, I started off reading this post feeling a bit skeptical towards Drew but the comments here have really made me feel far far more sympathy for him, both because I’ve learned more about the disorder I have and because the angry/offended reaction to his illness seems so unfair for something he didn’t choose any more than “actual” disabled people chose it…
Blue* February 21, 2018 at 5:55 pm So, Amy, as a physically and mentally disabled person, who can walk a little but often uses a wheelchair, I’m finding your behaviour in this post incredibly offensive and upsetting. I don’t find that anyone managing their own disability in the way that works best for them ‘offensive’ or ‘mocking’ or in any way damaging to me. What does impact my life and make it harder every single day is people presuming to know better than I do how my disabilities should be managed. As a person with concrete, provable physical disabilities, I still have to deal with people attacking my decision to manage my chronic pain, fatigue, and unstable joints with the use of a wheelchair – I am technically able to walk, albeit slowly, painfully and at risk of falling and injury, so in some obscure way I don’t ‘qualify’ for a chair. Drew’s decision to manage his incurable condition in the way that best minimises his suffering and maximises his functioning does not harm or offend me in any way. Self-appointed gatekeepers like you do.
The German Chick* February 21, 2018 at 11:25 am I strongly disagree with us trying to arm-chair diagnose this person. There are many possible diagnoses, and there is also the possibility that this patient is mentally fine. At college, I took a class with a renowened psychiatrist specialized in sexuality (and sexual disorders), who told us about a person who used a wheelchair 24/7 because this was what got him off at night. Yes, it was outside the norm, but it wasnt a disorder – this guy was just fine. I agree with your advice Alison to proceed like he may have a mental health disorder, but please, let’s stop trying to diagnose him.
SallytooShort* February 21, 2018 at 11:25 am The documentary was about people with a specific disorder. No one is arm chair diagnosing. His having that disorder is why he was in the documentary.
The German Chick* February 21, 2018 at 11:35 am The OP stated that it was “a short film online about people who believe they are disabled but are actually not”. Where do you take the information from that it was about people with a psychiatric disorder?
Countess Boochie Flagrante* February 21, 2018 at 11:37 am Because Alison mentions a specific disorder in her reply.
mf* February 21, 2018 at 11:41 am The OP never said Drew has that disorder–Alison brought it up to suggest that it’s possible Drew has the disorder. We don’t know whether he has any sort of mental illness. The OP didn’t confirm it so we’re actually only speculating that he does.
a1* February 21, 2018 at 3:37 pm Agree. He very likely has a mental disorder, and it very likely may be this, but we don’t know. However most people are commenting as if this is a fact.
Emi.* February 21, 2018 at 11:45 am Yeah, but that was based on her own googling, not from the OP’s description of the documentary.
SallytooShort* February 21, 2018 at 11:46 am The word choice describes a very specific disorder. She didn’t say it was about people pretending to be disabled for their own reasons. But people who believe they are. That’s a specific disorder.
Ask a Manager* Post authorFebruary 21, 2018 at 11:43 am “People who believe they are disabled but are actually not” is the definition of that disorder.
The German Chick* February 21, 2018 at 12:19 pm I want to be a nice guest in your virtual living room, so I just want to add why I believe we as laymen are not able to diagnose anyone with this specific disorder: a) Neither ICD-10 nor DSM-V provide diagnostic criteria for the classification of this disorder. b) The main symptoms stated by scientific publications on the matter that patients with this disorder have a persistent desire to be amputated or acquire a physical disability. We don’t know if this person has any of these symptoms. I think your advice of treating this guy as potentially having a disorder (who knows what) is spot on, and I also wanted to offer the alternative reading that he may be mentally fine and just likes living like a paraplegic, which is weird but not unheard of. In any case, I’m excited for the update!
serenity* February 21, 2018 at 4:12 pm Thank you, German Chick, for your thoughtful comments. It’s helpful for us to take a step back and to realize that, despite hundreds of comments on this page declaratively stating that Drew has a mental illness, we don’t know that for sure at all and so much of this is pure speculation. I’m a little alarmed that dozens and dozens of commenters have leapt to that conclusion, solely based on Alison’s conjecture that this *may* be BIID. We don’t know that.
Ask a Manager* Post authorFebruary 21, 2018 at 5:36 pm We don’t know with certainty, but he appeared in a documentary about people with a condition that matches up awfully precisely with BILD.
SallytooShort* February 21, 2018 at 11:46 am Like how I watched a documentary about people who have periods of depression and periods of hyper mania. But let’s not say it’s about bipolar people!
Snark* February 21, 2018 at 11:25 am Tough one. I firmly believe in not second-guessing how an individual chooses to define and embrace their identity – such as for LGBT+ folks. On the other, this is the kind of secret that gets out, and when it does, it’s going to be explosive – and he’s not going to look good. Alison’s advice is spot on, but I’d like to raise the issue of what happens when there’s a bona fide paraplegic in the workplace. Does Drew still get the closest parking?
Iris Eyes* February 21, 2018 at 1:01 pm I was thinking in the same vein. I’m not sure how this is fundamentally different than someone who is transgender. I remember back during the whole Caitlyn Jenner transition many people complained about her advocating for woman’s rights as she had had the benefit of white male privilege to make her fortune, she wasn’t really a member of the disadvantaged group. There are lots of ways people live as something they are not, almost everyone does to a certain extent. IMHO the OP and their employee need to get firmly in their mind why this is a problem and evaluate if this problem is something they need to address within themselves or something that actually needs to be addressed.
JB (not in Houston)* February 21, 2018 at 1:15 pm That’s a bit of a derail, though. It’s not an issue for the OP, who has given no indication that this might be an issue now.
Marie B.* February 21, 2018 at 11:31 am I read an article once about individuals with this disorder. People have gone so far as to blind themselves or self amputate a limb. There was one woman who was actively looking for a doctor to sever her spine.
dr_silverware* February 21, 2018 at 11:32 am I don’t know whether this is disability drag, and I don’t know whether it matters; in any case I would argue that the related accommodations problems–if they come up–are far above OP’s pay grade. As commenters and onlookers we don’t know if Drew is cackling evilly about owning a van with a handbrake; performing disability for whatever obscure pleasure he may derive from it; performing disability due to neurological or psychological conditions that make it necessary; or performing greater disability when he has a slighter physical disability. Those distinctions matter socially and HR and a lawyer must decide if they matter professionally. I’d make the argument that OP simply shouldn’t bring up having seen the documentary, and at the very least should attempt to divorce this knowledge from how they interact with Drew professionally; but it would be worth consulting HR.
nnn* February 21, 2018 at 11:37 am Putting aside for a moment any speculation on Drew’s situation: Some people who use wheelchairs can walk. Maybe they can walk some days but not others, depending on what kind of a day they’re having. Maybe they can walk for a short period of time but not long enough to get through the day. Maybe they can walk a short distance but not long enough for the day’s tasks, so they take their wheelchair so they don’t get stranded far from home immobile. There are all kinds of variations. So how you handle this may well set your company’s precedent for how people who use wheelchairs but are also physically capable of walking – for any number of different reasons – are treated by your company in the future. Do you want them to have to justify every detail of their medical situation, or do you want them to be able to simply roll in and get the job done? Do you want management and colleagues and HR speculating on whether they really need their wheelchair, or do you want them to be treated like any other employee?
Gabriela* February 21, 2018 at 11:42 am This is a really good point. People with invisible disabilities may take note of how this is handled.
Eh? Non Y. Mouse* February 21, 2018 at 12:48 pm I 100% based on the title of this post (before reading what was actually going on) was prepared to come in and yell this from the rooftop
Daffodil* February 21, 2018 at 1:43 pm Yeah, same. nnn has a great point that how the office treats this guy is going to affect how much scrutiny the office gives others with mobility issues. Erring on the side of graciousness is definitely the way to go here.
Thursday Next* February 21, 2018 at 12:56 pm It’s different, in that this person didn’t ask to be accommodated through official channels. I don’t think second guessing him is a slippery slope toward the undermining of accommodations obtained through official processes. The accommodation processes I’ve gone through have been standardized so that once the medical provider offers the requested documentation, the accommodation is granted without stipulation. For example, my daughter gets to use Access A Ride on her “good” days when she’s be able to walk three blocks as well as days she wouldn’t. I thought HR departments have to follow similar processes, so that once the accommodation has been approved, it can’t be questioned bc someone with a disability is having a “good” day, or “doesn’t seem” disabled.
lisalee* February 21, 2018 at 1:06 pm I don’t think this is so much about the formal process of requesting accommodations as it is about the day-to-day treatment of people using aids. If there’s an environment where people start questioning the extent of Drew’s disability, and if he really needs a wheelchair, and maybe he’s faking it, etc then it will impact how other disabled people are treated. Even if HR doesn’t allow people to outright question someone’s disability, it doesn’t mean that a disabled person wouldn’t be treated with general suspicion. And honestly, just the idea that you have to reach a certain threshold of disability to “need” or “deserve” a wheelchair and it’s wrong to use one unless you absolutely can’t walk strikes me as kind of ableist on its own. It doesn’t actually change anything for Drew to use wheels instead of legs–he’s not taking anything from anyone or getting anything special (the LW said he hasn’t even asked for accommodations).
Thursday Next* February 21, 2018 at 2:44 pm To be clear (and I say this in a longer post) I don’t think anything should be done to question whatever workplace accommodations Drew has been receiving, and I don’t think any should be taken away from him. I do think HR should be looped in, because this is an unusual situation, particularly because of the existence of the documentary.
hbc* February 21, 2018 at 1:07 pm But doing such a minor unofficial accommodation isn’t a slippery slope either. I’m comfortable saying that I’m willing to arrange a closer parking space for anyone who’s willing to spend the entire day using their arms to wheel themselves around. I’m pretty sure it’s a rare parking situation where that sounds like a worthwhile tradeoff.
Desker* February 21, 2018 at 11:38 am I would operate under the assumption that everyone in your office in short order will see the documentary. I can’t imagine seeing one of my coworkers in such a documentary and not showing it to my other coworkers – if not for the simple reason that it’s fascinating. People are going to respond in different ways. But that may be your biggest, actual concern. I’m just imagining the total chaos that would break out in my office if this happened here – and I work in a fairly normal place where I imagine most people would be totally okay with accepting it as another type of disability.
Zillah* February 21, 2018 at 11:57 am Idk – I can’t imagine seeing a documentary about a coworker like that and spreading it around work. I think there’s a wide range of normal human reactions here.
Happy Temp* February 22, 2018 at 1:02 pm I agree! Imagining myself as a coworker of Drew, my first reaction would be anger–a purely emotional reaction based on my father being paralyzed by a series of strokes which made his life and his caregivers’ lives very difficult. I would have a hard time thinking kindly about someone who is “pretending” to be paralyzed. HOWEVER, that being said, this thread (and site) has taught me that other people’s situations and accomodations aren’t my business. As a manager, I would think you have to be prepared for Drew’s coworkers to see the documentary and have varying reactions, including confronting Drew personally. I would assume a good script–based on input from HR and any legal constraints–would be something along the lines of “We are aware [of whatever a coworker brings up about it] and the situation is being handled appropriately and legally” or something like that.
KimberlyR* February 21, 2018 at 11:38 am I wouldn’t say or do anything to Drew right now, but I would give HR a heads up if you have a real HR, not just some random admin people who function as HR. Maybe even consult an attorney about ADA just in case? I would think the company should have a unified answer if a bunch of coworkers start to question things. If someone else with actual mobility issues starts working there, I think the most reasonable ADA accommodations give the mobility-impaired employee the closest parking spot. I think Drew’s reasonable ADA accommodations would move him to a spot farther out. I can’t tell if there is anything else that the company has done that should be addressed but that would be the start.
mf* February 21, 2018 at 11:38 am Agreed that the OP should alert HR but otherwise leave this situation alone. I can see this getting out and damaging Drew’s relationships with his coworkers, but frankly, I don’t think there’s anything the OP can (or should) do about that. That’s the risk Drew took when he lied. Instead of saying he’s paralyzed, he could’ve just have easily said, “Due to a chronic health issue, I function better in a wheelchair than without.”
CatCat* February 21, 2018 at 11:45 am I think this is a good point, mf. He’s been lying to people. I would be pretty frosty toward someone telling these kind of lies.
Lil Fidget* February 21, 2018 at 11:47 am As others have noted, it might be more helpful not to think of this as a conscious lie meant to mislead you, but rather a delusion he’s suffering or at least his effort to express what is legitimately true to him.
CatCat* February 21, 2018 at 11:55 am But it is a conscious lie. Dude has insight into his own disorder. He was in a documentary about it. That he chooses to carrying on lying to support his delusions does not make them unconscious lies. I’d find it sad and baffling, and would lean on icy civility at work.
fposte* February 21, 2018 at 12:07 pm I think that’s too black and white, and it undersells the complexity of identity.
SarahKay* February 21, 2018 at 1:03 pm But this doesn’t address the fact that metal illness is still very stigmatised. When I had depression and someone asked me how I was I lied, and said I was fine. For many reasons, not least the fact that I didn’t want my employer to know I was suffering from depression because I worried it would negatively affect my career. I knew I was not fine. I knew I was lying. But it felt like the least bad choice at that time.
LBK* February 21, 2018 at 2:03 pm Yeah, I did this too, to an extent – I was having weekly therapy sessions during work hours at one point and I always glossed over the details. I never specified anything beyond “recurring medical appointment,” which you could argue is a lie by omission. When it comes to mental illness, sometimes part of managing it is gliding over the truth a little.
LBK* February 21, 2018 at 2:01 pm Perhaps he’s decided it’s simply easier to tell people he’s paraplegic than explain the whole situation and live his entire life facing the kind of vitriol being spewed in the comments today calling him a faker, a liar, an insult to “real” disabled people, saying they’d ice him out at work, etc.
Thursday Next* February 21, 2018 at 6:21 pm I think (hope?) there’s some middle ground between telling people he’s paraplegic and “explaining the whole situation.” The comments here have by and large been supportive of Drew—even some of the ones that have taken issue with some of his actions.
bonkerballs* February 22, 2018 at 12:34 pm And then there’s also the comment someone made where they said if Drew was their coworker they’d beat them with their cane until Drew became a paraplegic for real, so…
KellyK* February 22, 2018 at 9:48 am Yes, definitely. There’s tons of stigma around physical disabilities, but even more around mental ones. It totally makes sense to want to keep a mental/neurological illness hidden at work if you can, especially one as poorly understood and controversial as BIID. Ideally, he’d have found a way to skirt the truth without actually lying, but nobody owes anyone the full truth about their medical situation.
Jessie the First (or second)* February 21, 2018 at 12:12 pm Yes! Or that he just didn’t have the presence of mind to think of the “best” way to explain. I can think of a half dozen better explanations he could have given, but I can *also* imagine it must be hard to figure out how to explain his wheelchair use in a way that doesn’t invite nosiness/follow-up questions/prying into what might feel embarrassing or stigmatizing to him. Yup, saying he has condition “x” when he doesn’t is not ideal, but I can see how it happened. A little empathy goes a long, long way. Someone telling me they have a particular disability when in fact they have a different particular disability is just nowhere on my list of reasons to get angry at a coworker.
Zillah* February 21, 2018 at 1:17 pm I think that what you’re suggesting is really problematic, regardless of how you feel about Drew specifically. People with disabilities or health shouldn’t have to be super specific about what’s “wrong” with them, and while I think you only mean it for this situation, the reality is that that’s a pretty pervasive sentiment in our society, and adding fuel to the fire has the potential to hurt everyone with a disability, not just Drew. I have used “I’m not eating here because I have a lot of allergies” as a shorthand for “I have some environmental allergies that trigger asthma attacks and some relatively mild food allergies and lactose intolerance and also I’ve been a vegetarian for long enough that meat makes me sick, and also wheat screws me up, it was an intolerance but it may be actual celiac right now, who knows, just please don’t give me anything with wheat because I will get really really sick.” The latter is more accurate, but it’s also way more detailed and invasive for me to want to share every time food comes up. It’s not reasonable to expect people to be specific and explicit about intimate health details if they don’t want to be. We don’t have a right to know.
Jessie the First (or second)* February 21, 2018 at 1:55 pm We don’t have a right to know, and I am also distressed at the number of people who are saying they would be angry at Drew because he said he was disabled with “x” when really he’s disabled with “y.” This is about a thing that makes no functional difference in the workplace – either way, he can use his wheelchair; either way, he’s disabled. He’s not being disabled *at* anyone.
KellyK* February 22, 2018 at 9:49 am It’s not reasonable to expect people to be specific and explicit about intimate health details if they don’t want to be. We don’t have a right to know. +1
nnn* February 21, 2018 at 11:44 am It might also be useful to perform a thought experiment: How would you feel if an employee were walking with a cane that you believe they don’t need? How would you feel if an employee were wearing glasses that you believe they don’t need? How would you feel if an employee were wearing a bandaid that you believe they don’t need? Would you feel that these situations require some sort of stance or intervention or position by your company? If so, why? If not, why is Drew’s situation different?
Lil Fidget* February 21, 2018 at 11:47 am Yeah I suspect that some of the outrage, deep down, is that people felt sorry for Drew or tried to be kinder or nicer to him, and now they feel “tricked.” But a) it doesn’t sound like people actually had to do that much different for Drew – he didn’t require any special accommodations except *maybe* this parking space that sounds like it wasn’t being used – and b) he never really asked for your pity. And do we begrudge a little kindness now? So even though I empathize that there’s a moment of discomfort around this, I think Alison’s advice is spot-on.
fposte* February 21, 2018 at 11:49 am That’s a really interesting point there. This may be about that old problem of the “covert contract”–people gave Drew something that he didn’t ask for on the understanding that he was disabled the way they perceived.
Countess Boochie Flagrante* February 21, 2018 at 11:59 am I find that happens a lot when it comes to disability. People have a kind of unstated assumption that accommodations for PWD are really super special shiny privileges and get really upset when they think someone who doesn’t blatantly qualify for those accommodations gets them. How many times have we heard someone say “Oh, I saw someone who was OBVIOUSLY TOTALLY HEALTHY using a handicapped spot!” There’s a lot of outrage there, way more than the situation deserves.
jm* February 21, 2018 at 12:14 pm Not sure about that. In some instances, like parking spots, there are limited resources to accomodate those who have disabilities. For example, my office parking lot has 3 spaces marked for those whose cars have handicapped placards/tags. Once those spaces are taken, someone with a handicapped placard/tag must park in one of the regular spaces, with no ramp, so extra room, potentially far away from the building. So yeah, since the resources are limited, I do get super frustrated when my co-worker, who has no diagnosed disabilities, parks in a handicapped parking spot — which she gets away with doing because her car has a handicapped placard for her husband, who is disabled.
JB (not in Houston)* February 21, 2018 at 12:20 pm Your situation doesn’t take away from Countess Boochie Flagrante’s point, though. Sure, if there’s someone who you have an actual reason to know doesn’t need a close parking space is taking advantage of the ability to use the space and thereby actually depriving a disabled person of the space, sure, get frustrated. But Countess Boochie Flagrante was talking about the many, many, many real instances of people assuming people are not disabled. Ask any person with a disability who doesn’t look like what many people think a disability should look like what kinds of experiences they have had parking in a handicapped parking space or sitting in a reserved seat on public transit. Most will tell you they’ve had push back from people accusing them of faking to take advantage of a “perk.”
Countess Boochie Flagrante* February 21, 2018 at 12:59 pm Or all the people who told me that I didn’t have a disability, I was just using mobility aids because I was too fat to walk (!) Thanks, but the screaming pain in my feet begs to differ. (Happily, I had a really wonderful healing of that issue, but I’m still low-key mad about those folks.)
jm* February 21, 2018 at 1:10 pm I must have misinterpreted this — “How many times have we heard someone say “Oh, I saw someone who was OBVIOUSLY TOTALLY HEALTHY using a handicapped spot!” There’s a lot of outrage there, way more than the situation deserves.” I thought Countess was saying that there’s WAY MORE outrage than necessary for people who are wrongly using handicapped spots. At my office, there’s not enough outrage. I really wish one of the managers would talk to the employee who is not disabled who still uses the handicapped spot. And yes, I’ve mentioned my concern to my manager. I definitely understand visible vs. invisible disabilities and would NEVER try to judge whether someone is disabled. I just know for sure that my co-worker is not…and yet she still uses that handicapped spot!
Countess Boochie Flagrante* February 21, 2018 at 1:26 pm Yep, I was talking about invisible disabilities that attract ire because obviously if the disability isn’t visible it’s not real. People who actually don’t need to use a handicapped spot but do anyway are inconsiderate as hell.
PlainJane* February 21, 2018 at 5:04 pm There seems to be a subset of people who are very preoccupied with what other people do and don’t “deserve.” It comes up with disability accommodations, as you say, but also with any form of public assistance and sometimes with health care too. I’ve met a few people who are way more offended that an occasional person gets something they “don’t deserve,” than they are when a bunch of people being denied something they desperately need.
Murphy* February 21, 2018 at 11:55 am I don’t disagree with Alison’s advice, but the situations you’re naming there are speculating on things that are none of your business (and don’t affect you at all). The information OP has about Drew isn’t speculative (though there may be more to it).
Natalie* February 21, 2018 at 12:05 pm Of course its speculative, that’s the point of a thought experiment…?
Murphy* February 21, 2018 at 12:19 pm No that’s not what I meant at all. In the three situations that nnn describes, they mention “you believe they don’t need”. That’s speculation. OP isn’t speculating about Drew’s physical abilities. They have actual information about them, which isn’t the same thing.
nnn* February 21, 2018 at 12:40 pm The thought experiment could also be done with “they don’t need” rather than (or in addition to) “you believe they don’t need” – whatever the person doing the thought experiment feels most reflects the situation. The point is to identify and process any internal feelings that are biased/hypocritical/unreasonable and therefore shouldn’t be informing LW’s approach to HR. This would also be helpful for LW’s credibility if the HR person they go to says “And this is a problem…why?”
Tea* February 21, 2018 at 4:30 pm Some more thought experiments: – How would you feel if an employee claimed to be Japanese but was actually white, but believed they were transracial. – Or claimed to be deaf, but wasn’t actually deaf. – How would you feel if an employee requested accommodations for a mental illness– let’s say they were relatively minor accommodations you were happy to grant, but you later found out that they do not have the illness. Would it make a difference to you if they requested accommodations because they regarded them as “perks” they were also entitled to? Would it make a difference if they had Munchausens and merely believed they had the illness?
Triple Anon* February 21, 2018 at 8:16 pm If someone wore glasses and told me and other people they worked with that they were far sighted, but had also been in a documentary in which they said they have 20/20 vision but choose to wear glasses, I would have questions about their honesty and judgment. Just like in this situation. Although I think the glasses analogy doesn’t completely apply. Using a wheelchair tends to have a bigger impact on one’s life. There are more limitations that come with having a mobility impairment. More accommodations are needed. And the social stigma is a lot greater. I’m on the fence about it and I’d want to hear from the person making that choice. I respect people’s choices, and I get that mental conditions can be hard for other people to understand. On the other hand, if it’s really a choice, then it sort of makes a parody of the real thing, or creates the potential to use the advantages while going back to presenting as able bodies when there are disadvantages. But I think that is sort of a can of worms and I’d want to talk to the person, have a real conversation about it.
Cait* February 21, 2018 at 11:44 am What happens when someone comes in who really does need the closest parking spot? What then?
fposte* February 21, 2018 at 11:50 am Whatever would ordinarily happen if you have two wheelchair users. It’s not a promise of the closest spot evah–just that you don’t have to schlep in from the Outer Mongolia of regular parking.
Thursday Next* February 21, 2018 at 11:47 am Wow. I’m impressed with the evenhanded, thoughtful advice Alison gives here. Two possible analogies were raised by other commenters: transgender identification and cultural appropriation (e.g., blackface). To me, this seems like cultural appropriation. The idea of choice plays out in particular ways for culturally disadvantaged minorities: in really broad terms, majorities can appropriate minority cultures, but the reverse is not possible. My daughter can never be anything other than “disabled.” She may be other things *in addition*, but disability is not a chosen identity for her. She will never be able to choose to avoid the struggles that come with her disability. As much work as this employee is putting into living life as a “disabled” person (or how he perceives that life), I guarantee that a medically documented paraplegic has to work harder. I don’t think this employee can “earn” the right to claim a disability status simply because he’s practicing it so consistently. All that said, I wouldn’t challenge him—I’d do as Alison advises. But privately I’d feel angry.
Lil Fidget* February 21, 2018 at 11:51 am Yeah I think that’s the issue, is that for Drew, presumably, he has the option of being disabled at some times and not at others (as OP states he was walking in the video). Presumably, if he got to a hotel that couldn’t accommodate him, or needed to take the stairs in a fire, or whatever, he has other options. So it’s painful for people for whom this isn’t a choice. However, a) it’s probably a mental illness anyway, so he’s not really “chosing” any of this as far as we need to be concerned – I don’t jump on my depressed friends if they laugh or smile ever and say “AH HA, you’re not really depressed, I knew you were just faking it!” and b) in this case, it’s hard to quantify what if any benefits Drew actually got from this, or who he injured by living this way.
fposte* February 21, 2018 at 12:12 pm Though “choice” gets interesting with all kinds of disability. Some people are disabled because they engaged in risky or deliberately self-destructive behaviors, which involved some element of choice. Do they get treated differently from those with congenital challenges? (I’m always intrigued by the way discussions about fat people on airplanes always involve somebody fulminating about obesity being a choice, but apparently the person with a broken leg from crashing while driving drunk gets a free pass.)
AMT* February 21, 2018 at 12:37 pm I’m a social worker at a hospital and have had people on my unit with various disabilities and disorders stemming from self-destructive and/or attention-seeking behavior. I have also worked with countless people whose problems stemmed largely from their own choices, or whose behavior and personalities have caused them to drive away the people who have helped them in the past. It gets murky sometimes — like, how much time should I take out of my day to help someone who is screaming at me and probably won’t follow through anyway, versus the person who is easy to work with? My responsibility is to help everyone, of course, even people who are rude and abusive, but I also sometimes fall into the trap of giving certain people 90% of my attention just because they’re demanding and difficult (while potentially neglecting the politer ones). I only have 8 hours in a day. It’s tough to allocate resources — for example, does this person’s difficult personality mean they’re more “in need” and I should feel okay allocating a lot of my time/resources to them, or should I be telling them (in so many words) to sit down, wait, and let me help other people? I think these are questions that society grapples with in a lot of ways. You hear it during elections, usually in the form of “why should the taxpayer help people who make bad choices?/what conditions and life circumstances deserve the most help?/is X thing a real disability?” It goes back to the English poor law of 1601 that set the standard for the “deserving” (elderly/infirm) poor versus “undeserving” people who were considered to have the ability to get by on their own. I don’t think the debate has been anything close to settled yet.
fposte* February 21, 2018 at 12:47 pm And when you bring in hospitals it becomes relevant for the physical care too–there are definitely people who want only “innocent victims” to get medical care, period.
Goya de la Mancha* February 21, 2018 at 1:37 pm From what I know (very little, I assure you ;) ) – Organ transplants often operate on the “innocent victim” idea.
fposte* February 21, 2018 at 1:44 pm That’s ringing a bell–I’m thinking mainly of liver transplants and alcohol use, and I bet there’s a drug use component too.
fposte* February 21, 2018 at 2:23 pm Oh, good point. And while I have some support for the view that if you are currently engaging in behavior that means this valuable donation will be quickly too damaged to work we will prioritize patients who will get longer use out of it, I still think that’s sticky, and it gets a lot stickier when we’re talking about people who are no longer engaging in the behaviors.
Goya de la Mancha* February 21, 2018 at 3:05 pm It’s a greatest good thing and reducing human beings to numbers. My economy major self geeks out on stuff like that, but it’s hard when you have to attach a name/face and say – sorry, you’re not worthy enough.
query* February 21, 2018 at 6:03 pm Isn’t that also a matter of sheer practicality, though? Like, an alcoholic who needs a liver transplant but is also unlikely to give up alcohol long-term is going to damage their new organ.
Thursday Next* February 21, 2018 at 5:51 pm Organ transplants are unique in that transplantable organs are a finite resource with an unpredictable supply. This probably makes the leap to “deserving recipients” much easier.
Penny Lane* February 21, 2018 at 12:42 pm I’m not sure I agree that the person with a broken leg from crashing while driving drunk gets a “free pass.” I think most people absolutely *do* distinguish between the person with the broken leg who drove drunk and the person with the broken leg who was in the vehicle that the drunk person hit. I think there’s plenty of judgment that one is “less deserving” of sympathy, etc. than the first. I get that the medical professionals who treat both people have to treat them equally regardless of the situation, but as for those not involved in their medical care? Guess what? We can be judgmental. Somehow on AAM this notion has arisen that we can never be judgmental about situations. Odd.
fposte* February 21, 2018 at 12:49 pm I’m just reporting on discussions I’ve been involved in. Some disabilities get prejudged negatively, some positively, some neutrally.
Natalie* February 21, 2018 at 2:42 pm Well, the employer probably shouldn’t be judgmental either – they can’t provide different accommodations to two wheelchair users based on their personal opinion of how each person ended up using a wheelchair.
AMT* February 21, 2018 at 12:25 pm Exactly. I can speak to this from a trans perspective, too — I can’t exactly stop being trans or switch between identifying/presenting as a man or a woman when it’s convenient (and it’s be pretty horrible if I *had* to conceal it or live as the wrong gender, as some trans people do). Being trans is just a biological reality for me. However, I also acknowledge that Drew’s identity/mental illness/whatever is probably not something he can change or control, either. I’m uncomfortable with the idea that he’s taking scarce resources (parking space) that could be used for someone who is in true need, but I’m also sympathetic to the idea that his need to be recognized as disabled is “true” in some sense. I hope the company figures out a way to accommodate him without inconveniencing anyone with a mobility impairment who might need the space. In some ways, it’s a bit like that letter from the person who got major headaches (allergies? can’t remember) from strong scents, but whose coworker was treating her medical conditions with smelly essential oils. It’s like, whose condition should take priority? On a visceral level, I felt like the scent sufferer should have prevailed just because of the dubiousness of the “treatment,” but I also know that I shouldn’t be in a position to tell other people what treatment is and isn’t effective for their condition.
Lil Fidget* February 21, 2018 at 12:46 pm I also personally think you’re probably already on the wrong track if you’re trying to figure out “how disabled” someone “really” is. This is just … not a great question for you as an employer to be thinking about. I understand there’s an instinctive response – “is so and so faking it?” – but in general you probably want to defer to the person with the limitation’s own account of what they need, and just think about what you can reasonably provide.
Zillah* February 21, 2018 at 3:01 pm Presumably, if he got to a hotel that couldn’t accommodate him, or needed to take the stairs in a fire, or whatever, he has other options. So it’s painful for people for whom this isn’t a choice. It’s worth pointing out, though, that there’s a wide range of how “disability” impacts people. There are people who have physical disabilities who could also take the stairs in a fire. I understand what you’re saying, but I think that when we define disability as “worst case scenario,” things can get really problematic really quickly.
Beep* February 21, 2018 at 12:05 pm I understand where you are coming from, my brother is mentally disabled and it would strike a nerve with me if i knew someone had a normal IQ but was acting/identifying as a person with down syndrome. However, I have watched a few things on the internet (i’ll admit, i was looking for Drew) and individuals with BIID will do just about anything to make their bodies feel like their minds’ amputating arms or legs, blinding themselves, etc. I think drew’s situation is just stickier because he HASN’T made any action to sever his spinal cord making him legitimately paralyzed. Also, side note, in one of the clips a BIID blind woman came out to her friends that she purposely blinded herself, and while there was initial shock (understandably) her blind friends accepted her because even though she may not have become blind or been born blind like the rest of them, she still goes through similar if not the same adversities.
To your point* February 21, 2018 at 12:12 pm Several things: 1. Blackface is straight up racist, it’s not cultural appropriation. 2. He is disabled (assuming he has BIID). People with BIID will literally do anything to make their bodies reflect how they feel they should be. They will make themselves paralyzed, perform self-amputations, poison themselves, etc to make their outsides reflect how they feel they should be. It is, in some sense, analgus to being transgender though it clearly isn’t the same thing.
Thursday Next* February 21, 2018 at 1:16 pm 1. I was quoting the earlier comment that cited blackface as an example of cultural appropriation. I agree that it’s racist. 2. Drew is manifesting BIID in an especially complicated way for this point bc he says he “should” be paraplegic. And he is shown to be walking in a video. That makes this less straightforward than the examples you mention. There are two issues that are getting debated in the comments: how should LW handle this? And the larger question of the different ways we’re responding to Drew. For the first, I have my “workplace hat” on, and agree completely that there’s no reason for LW to challenge this, and also that Drew may well have a documentable disability–it’s just not paraplegia. But the second is extremely complex and some of us bring our own personal histories and struggles to bear upon it. I think many of those are equally deserving of empathy as BIID.
Jessie the First (or second)* February 21, 2018 at 2:11 pm “Drew is manifesting BIID in an especially complicated way for this point bc he says he “should” be paraplegic. And he is shown to be walking in a video.” I’d love to see the video, honestly. I tried looking for it online but I can’t tell which shows “Drew.” I don’t think we know much of how Drew’s illness is manifesting based on the LW’s account of the video – because “he was meant to be a paraplegic” could mean, I suppose, he just thinks “yeah, this is me!” or it could mean he feels “I was meant to be a paraplegic because I just can’t make sense of my legs, I have to remind myself they are there, it’s like they are these foreign, alien objects and aren’t a part of me and it is SO HARD to make them work.” (Not that LW’s description of how she saw the video isn’t accurate, but just that it was vague, and in addition, documentaries come with agendas and editing, and we have not actually heard at all from Drew about any of this).
Saby* February 21, 2018 at 12:22 pm Yes, this is about where I line up as someone who works tangentially with disability accommodation. And I would definitely loop in HR. if you later end up hiring someone who is actually a paraplegic or an amputee (two of the most common identities “borrowed” by these “transdisabled” folks) they may feel strongly about this subject for the reasons Thursday Next outlines.
Lady Glitter Sparkles* February 21, 2018 at 12:00 pm As soon as I read this, I immediately thought of Chloe Jennings. Just google “Chloe Jennings Body Integrity Identity Disorder” and you can see her stories. I think the most recent update was like 2016. She tells how she saw a psychotherapist who diagnosed her with BIID. It’s very interesting.
Spider* February 21, 2018 at 12:02 pm Just throwing this out there — Multiple Sclerosis can manifest as “remitting/relapsing,” which means someone’s symptoms will periodically come and go. (For example, I have a family member with MS who periodically goes blind in one eye for months at a time, and then her vision will return for a few months.) MS can cause paralysis, extreme muscle weakness, etc., so it’s at least within the realm of possibility that Drew could legitimately need a wheelchair now, when he hadn’t needed one in the recent past, and in the future may not need one again.
Leatherwings* February 21, 2018 at 12:04 pm I mean, if he wasn’t in a documentary about people with BIID that’s plausible. But I think it’s probably safe to assume here that’s not the case
Spider* February 21, 2018 at 12:05 pm Ah, jeez, I’m embarrassed — I totally blipped over the line in the OP about the nature of the documentary that Drew was in!
Goya de la Mancha* February 21, 2018 at 1:39 pm It’s ok Spider :) I was thinking the MS thing too when I read it. Had a co-worker at old job who has MS, broke her leg, all sorts of complications – end result, She’s in a wheel chair for the rest of her life because the muscles basically atrophy’d from the poor state they were in to even worse. I’m not sure of details, but that’s how she explained it to me.
Sometimes yes, sometimes no* February 21, 2018 at 12:04 pm I am seeing echoes of commentary from previous letters covering mental health issues. It’s as distressing now as it has been in each of those instances. No one’s a doctor of either the medical or psychological sort who has Drew as a patient, so there is no value in and no service done in trying to assume things about Drew, his condition, and his relationship and disclosures with the office or HR. A lot of comments have gotten caught up in the idea that Drew is lying because he said he *is* paraplegic rather than *believes himself to be* paraplegic. Given even the judgmental comments in this post, can you argue why it is better for him to disclose a mental health condition (assuming he’s diagnosed with one) over the presenting physical condition? What difference would there be in accommodation? From my own experience as someone with a mental disorder (one not at all involved in physical presentation), I can tell you for absolute certain that I am extremely cautious about disclosing to anyone, HR or otherwise, for fear of receiving *worse* treatment rather than necessary accommodation. “Get over it,” “don’t they have pills for that,” “why do you get to leave early twice a month [for doctor’s appointments],” “I don’t want to work with her, what if she goes off on me?,” “We can’t trust her with this project, it’s too delicate to handle any instability,” etc., etc. Allison’s suggestion is definitely my preference, as someone who would be in Drew’s position. Do not make judgments, share with the people who most need to know of any changes (or suspicions) so they can manage it as is necessary, bring Drew into the conversation or ask HR to do so so that he does not feel like the office is gossiping behind his back, and continue to accommodate where possible. Work with HR to find a suitable accommodation and meet the legal and business needs dictated by the situation. Please, for the love of your fellow human beings, *work with* Drew. He is a coworker, someone you manage. If what you need is an employee that does good work, help him do good work and talk with him if anything is slipping. If it doesn’t pertain to his productivity or that of the office, it doesn’t really matter, does it?
Goya de la Mancha* February 21, 2018 at 1:43 pm I agree with your post. But it’s also completely natural for those who are affected with such disability on a personal level to be upset and see this in a different light. Their feelings about him are valid.
Sometimes yes, sometimes no* February 21, 2018 at 1:48 pm Yes, definitely. I am not trying to dismiss their feelings, I simply want to ask for empathy by presenting another perspective. I also admittedly have a personal stake in the types of feelings expressed in this post, and in other AAM posts, about mental illness, legitimacy, disclosure requirements, and other related judgments.
Daffodil* February 21, 2018 at 2:06 pm On one side we have people saying “I’ve gotten crap because people think my disability isn’t bad enough/doesn’t look like they expected, please don’t do that”, and on the other side are people saying “Look, I have to fight to get accommodation and care for this very conventional, serious, well-understood problem, why should that person who doesn’t have to risk bed sores get the resources that I need?” And the underlying problem all the way around is that our society has a hang-up about people getting “undeserved” help and makes people fight over limited resources for dealing with disability. Which isn’t how it has to be, but it’s also incredibly hard to change, so if anyone knows how to do that, get back to me. :-)
Goya de la Mancha* February 21, 2018 at 3:02 pm I don’t know if the hang up is some much on the “undeserved” part in business, I’d put more credence in the limited nature aspect. As in limited funds, limited space, limited knowledge. When a company questions an accommodation, I’m doubting (based on my own experience, there’s definitely some arses out there…) that the people asking are really thinking I or anyone else don’t deserve that accommodation. Their mindset is on the business and the bottom line. If they have to spend X number of dollars to accommodate me, then that is X dollars that aren’t available for other things (needed equipment, employee pay/raises, etc.). It’s a cost of doing business, but I would doubt (do not know) that most companies don’t put an ADA accommodation in to their budget line items unless they already have an established employee there.
Volunteer Enforcer* February 21, 2018 at 12:05 pm OP, Drew could be transabled. This means someone who isn’t disabled but identifies as such. However, this is a difficult mental health condition to tackle with as it makes the person feel like they would be better off disabled, and like self-harming in a way that would make them disabled. Mental health is still a disability so I’d agree with Alison’s advice.
Secretary* February 21, 2018 at 12:09 pm Oh wow I didn’t consider that. I wouldn’t want Drew trying to make his body paraplegic.
Secretary* February 21, 2018 at 12:08 pm If I were in the OP’s shoes, I would treat this like something about Drew that should be accommodated for a different reason than it was being accommodated for originally. As an example, I personally don’t understand why some people want to use they/them/their as pronouns. I know they don’t identify as she or he, but I don’t understand the need for the pronouns. I don’t need to debate it with them or anyone else, **I just need to respect their wishes as best as I can and accept them for who they are.** Drew is a different situation, but I think just because the OP doesn’t understand this doesn’t mean it’s not something that should be accepted. I don’t think Drew is in a wheelchair AT other people, he just genuinely believes that’s where he should be. I don’t understand that, but I can respect his wishes and accept him for who he is. ***Please don’t try to explain they/them/their to me, I already have done a lot of reasearch and asked a lot of questions on it, I’m OK with not understanding and just accepting.
Jade* February 21, 2018 at 12:11 pm A few things to consider when addressing a situation like this: 1. Not all disabilities are visible. 2. Paralysis and complete inability to walk or stand are far from the only conditions which require a wheelchair. 3. A large percentage of people with one major medical condition have at least a few others, so there can be a lot of complex factors in play. 4. Sometimes it’s easier to give a more common diagnosis in answer to questions rather than try to explain a rare or complex condition. 4. Speaking both as a person with a usually-invisible disability and as a manager, I think the safest course of action is to pretend you never saw the video. Your employee is disabled: this is a fact and the diagnoses do not actually matter. You did great in allowing him to define the accommodations he needs! It sounds like you’ve established your door as open if his needs change in he future. Again, great job! Leave it there. If another employee comes into your office complaining that they saw the video and how dare he fake a disability, correct them that he is disabled, and shut it down: discussing ANYONE’S disability or medical status is highly inappropriate and they must cease immediately. Any discussion at any level about faking is just begging for a lawsuit. It is NOT worth it.
thesoundofmusic* February 21, 2018 at 12:11 pm I like this advice. I’m an HR person, and this is just what we would suggest as well The only thing you might want to think about is to offer handicap or preferential (i/e reserved) parking only to those who qualify for a handicap sticker through state requirements or provide other documentation.
Borne* February 21, 2018 at 2:12 pm That’s a good point about whether the individual qualifies as handicapped according to state/municipal requirements, to ascertain whether they are entitled to use the handicapped parking.
NW Mossy* February 21, 2018 at 12:18 pm OP, it’s good that you’re thinking about this well before it becomes The Hot Topic in the office, because it’s arming you to be prepared for the questions you’re likely to get from your other employees and fellow leaders. Alison’s suggestion of a very neutral, judgment-free script is pivotal, because it sets the tone that you ultimately want others to follow – treating Drew respectfully and focusing on Drew’s effectiveness at his job. There will likely be a lot of chatter in your office similar to what’s popping up in these comments – anger at Drew for “faking,” concerns about appropriation, the possibility of Drew having some form of mental condition informing his behavior, and so on. For you as a leader, it’s really important not to engage that and to gently steer people away from this when it happens. Reinforce the point that you and the organization are committed to providing accommodations to help people be successful and productive at work, without interrogation or value judgments about underlying conditions or treatments. You should model treating him professionally (doesn’t seem like that’ll be a stretch, based on your very even-handed letter) and expect the same of your other employees. You may get pressure to “do something about Drew,” but being supportive without judgment is a something to do that’s quiet but valuable. Others will see how you handle this and learn that you’re the sort of leader they can trust not to second-guess them if they need an accommodation and extend them compassion for being a not-always-perfect human at work. People want to work with and for leaders like that, and the hard situations are where you get to demonstrate your managerial skill for others.
Jules the 3rd* February 21, 2018 at 12:38 pm +1 I think you can see how all of this might play out, if you work through the comments. Certainly getting the spectrum of responses you might see in your office.
Laura* February 21, 2018 at 12:19 pm Several years ago, I broke my left arm. Yeah, I know you’re all thinking “at least it was your *left* arm” but I’m left handed *and* my car has a manual transmission. It’s not fun trying to steer with an arm in my cast and shift with the other (and for driving, it was “thank God it was my left arm). Anyway, I couldn’t dress myself; do anything with my long, naturally curly hair; do my regular job (which involved lifting 300-500 pound rolls of paper); or a myriad of other things you do without thinking. I had always had a great respect for handicapped people, but that experience turned it into awe…and, since my arm was pinned, I had full mobility back in 5 weeks. People who don’t have mental illnesses don’t understand that mental illness often manifests itself through physical symptoms. It’s not “all in your head.” Drew isn’t in a wheelchair for fun, or to make his life easier. There isn’t an *easy cure.* With BIID, if he were forced to get out of the wheelchair, he might try to actually become paraplegic (yes, it can be that bad). As long as the accommodations made for him aren’t causing problems for another handicapped person, I think he should be given what he needs. If you hire another handicapped person, you can work out the best way to accommodate both of them.
Countess Boochie Flagrante* February 21, 2018 at 1:08 pm “Mental illness often manifests itself through physical symptoms.” Yes, yes, yes! This is incredibly true, and the source being mental doesn’t make the physical symptoms any less real.
Owlette* February 21, 2018 at 12:19 pm At my old job, I had a coworker who used a wheelchair she didn’t need. I don’t want to armchair diagnose her having this mental illness, but she genuinely wasn’t physically disabled. No one wanted to say anything because obviously it would open a whole can of worms and the accommodations she received were already in place: things like wide doors and elevators and ramps. My manager redid the layout of the office so that she could move her wheelchair around easily, and that was that for a while. But then she started accusing my manager of being ableist and discriminating against her for having a wheelchair (despite there being other physically disabled people working in our office and no one every had problems with my manager). Things got sticky and luckily I moved on a short while after that, but this letter is making me wonder the legality of all this and how my old job should have navigated a situation where someone that isn’t actually disabled is accusing someone of being ablelist?
Jules the 3rd* February 21, 2018 at 12:41 pm At that point, it becomes far too technical and situational. The only universal advice would be get HR looped in and document. Everything else is up to the country (legal requirements), company (policy), accommodations requested, and people involved.
Manders* February 21, 2018 at 12:56 pm Yes, it’s hard to give universally applicable advice on something like this because it’s just not possible to tell how disabled someone is by looking at them. I used to work in a field that quantified people’s disabilities so they could get compensation or disability benefits, and multiple doctors with full access to someone’s medical records, exam results, and even surveillance videos won’t always come to the same conclusion about how disabled someone really is. It’s really, really complicated and not something a boss should try to call someone out on.
hbc* February 21, 2018 at 1:31 pm I don’t think there’s anything to do differently than if it’s a “real” disability. As in, your management could point to (and document) the history of not discriminating against disabled people, or have a meeting where there’s discussion of what accommodation both sides think are reasonable, or show that this payscale applies to everyone in that role, or whatever. The trick is to avoid making the defense “I’m not Xist because you’re not X.” Instead, it should be “There’s no evidence that I’m Xist and there’s actually evidence that I’m not Xist.”
suzygreenberg* February 21, 2018 at 5:29 pm Interesting. Did the manager/office know that she did not truly need to use a wheelchair when they widened the doors and installed ramps and redid the office layout? Or did they find out afterwards?
IForgetWhatNameIUsedBefore* February 22, 2018 at 6:23 am It looks like the wide doorways, ramps etc were already in place and the only thing the manager changed was the office layout. But so what? Would it be a bad thing for the workplace to be made wheelchair accessible even if they had originally done it for a person that may or may not actually be disabled?
Undine* February 21, 2018 at 12:22 pm Drew’s condition is very real to him. Just because he is physically capable of walking under some circumstances doesn’t mean that he can control whether or not he can walk. The neurologist Oliver Sacks writes extensively about people who have neurological issues where, for example, they don’t recognize half their body as their own. Sometimes these people can be induced to do things unconsciously that show that certain connections are there, but the movement is not under their full conscious control. I have a functional neurological disorder, which in my case means I make involuntary movements. They can be affected by stress. Other people are paralyzed in parts of their body or have seizures where they lose consciousness. For many people, symptoms can be lessened or made to stop temporarily if you can really distract the person. But unless I had a specialist to follow me around constantly to distract me, I wouldn’t be able to stop them myself. In addition, my experience is that when I successfully inhibit these movements for a brief time, they come back with more force. I’ve never gotten a diagnosis and I’ve recently decided against going to the doctor for the very reasons I see on this thread. These types of illnesses are very stigmatized, even by health care professionals. I’ve found an online support group and some participants have stories of being verbally abused or treated as less than by EMTs and nurses. These are people who are really freaked out by a life-changing diagnosis, who lose their jobs, who have to drag themselves across the floor to get to the toilet. They are not faking or performing disability. When my arms and legs are jerking up and down like a needle on a sewing machine, it doesn’t really matter whether it’s “psychosomatic” or there’s a region in my brain that’s being overactive. I am not faking or performing disability. I think of my disorder as analogous to fibromyalgia or chronic fatigue. There’s something there, the symptoms are real, but the cause is completely mysterious. Drew’s disorder is real, it’s just not the disorder you thought it was. I would just call it a neurologic disorder and leave it at that. He is not faking.
Jules the 3rd* February 21, 2018 at 12:44 pm Internet hugs if you want them – really sorry that you and others face this. The stigma is not ok, but it is definitely there.
Undine* February 21, 2018 at 9:11 pm Thanks. I am so much better off than so many people who struggle with this.
Erin* February 21, 2018 at 12:25 pm Anyone else reminded of Career of Evil, the third Cormoran Strike book? :) I agree with Alison’s view. I think it would be helpful to reframe this in your mind as accommodating a different kind of medical condition than what you thought, because that’s basically what’s happening.
MicroManagered* February 21, 2018 at 12:27 pm I am concerned the company may look bad if anyone finds out and says something. This probably gets into territory most of us aren’t qualified to speak on, but I wonder if the issue in my quote is where this starts to really get tricky. If Drew has any interaction with clients, the public, etc. then there’s a risk that one of them will see the documentary. Could it be unreasonably damaging to the company to employ someone like this? I have no idea. This sentence just jumped out at me and I didn’t see much discussion on it.
Sometimes yes, sometimes no* February 21, 2018 at 12:34 pm I think a lot of commentary is happening in tangent to it — i.e., your coworkers/I/you feel X about him saying one thing but being another can be extrapolated to meaning any client or the public. The moment it becomes unreasonably damaging to hire an employee with a disability that poses no threat is the moment we’re all doomed.
MicroManagered* February 21, 2018 at 1:52 pm That’s not at all what I meant. I am completely on board that this person has a mental health issue (rather than a physical disability as he’s presenting) and that employers have an obligation to accommodate that as much as they can. However, he participated in a documentary about it, and we’ve seen lots of examples on this site of people being fired over things they participate in in their personal lives if there’s potential damage to the company. We’ve also seen examples of people with mental health issues that cannot be reasonably accommodated by their employer. I’m asking about how the visibility of the documentary about the mental health issue fits into that conversation. Not in any way suggesting anything about not hiring people with disabilities. Hope that’s clarified! :)
Sometimes yes, sometimes no* February 21, 2018 at 2:17 pm I jumped on “employ someone like this” and took it to follow after the documentary’s content. I saw your comment as focusing on that aspect rather than on the publicity of a documentary. I apologize! Is it the visibility of the documentary because it is about a mental illness that makes it a potential liability, or the visibility of a documentary about non-work issues at all, or…? I know it always makes things sticky when public image and reflection on the company comes in to question so I can only imagine how deeply it complicates things for the image to be over what is (unfortunately) a very divisive subject.
Natalie* February 21, 2018 at 2:21 pm IANAL but my understanding is that client complaints or perceptions are not considered an “undue burden” for purposes of accommodation, so it wouldn’t really matter if clients could or do see the documentary.
The Car Crash Victim* February 21, 2018 at 12:34 pm This may not even be the mental health issue that Allison is suggesting. After being in a horrible car crash, I’m able to walk but it’s painful. Because the crash-related injuries driving the pain are internal, I’ve had a ridiculous amount of aspersions cast against my mental health and character. It’s shit like this that makes me scared to request a wheelchair for the occasions in my life that will require a lot of walking.
Jules the 3rd* February 21, 2018 at 12:48 pm Internet hugs to you too, if you want them. Sometimes people just *suck*. The aspersions you face are, I think, why some people are so unhappy with Drew, because they think he gives validation to the jerks, but like your situation, I think he’s facing real, invisible problems, however people want to label them. If it helps, my kid’s school (4th grade) is actually discussing things like this, and I think the additional awareness will reduce the stigma, eventually.
Lil Fidget* February 21, 2018 at 12:51 pm I think there’s increasing awareness that a) not all disabilities are visible, and b) someone might require accommodations but still be able to do physical things *sometimes.* I think your situation sounds very different to Drew’s, and if any of the comments about him being a “liar” are painful to you (not that I think those comments are correct, but) – please don’t assume they are also speaking to someone in your situation :(
Hmm* February 21, 2018 at 12:49 pm except that the documentary was specifically about how he DOESN’T need a wheelchair and how it’s a mental issue, so this doesn’t apply here.
Delphine* February 21, 2018 at 12:53 pm Drew was in a documentary about people who believe they were “meant” to be physically disabled, but aren’t really. We don’t need to speculate about him possibly having an invisible disability. I’m also frustrated by people’s inability to realize that not all disabilities are immediately visible to outsiders, but people like Drew are part of that problem, and not victims of it.
Lil Fidget* February 21, 2018 at 1:03 pm YYMV, I would argue that Drew’s mental illness *is* an invisible disability. I don’t believe he’s doing this for the lulz.
Jessie the First (or second)* February 21, 2018 at 3:03 pm A little bit of unintended irony there, Delphine? If Drew has a mental illness (like BIID, a neurological condition that affects how he sees, relates to, feels, and coordinates his body), then he has an invisible disability – that you are dismissing as invalid because you don’t see it or understand it.
Zillah* February 21, 2018 at 3:14 pm I don’t think it’s fair to put the broad societal tendency to dismiss invisible disabilities as nonexistent on Drew personally, especially since it seems like he probably does have a mental illness. Regardless of Drew’s situation, the issue isn’t that everyone who presents in a certain way isn’t perfect, it’s a pervasive “gotcha!” mentality where people are happier to take the exception as the rule than to readjust the way they think about other human beings.
The Car Crash victim* February 21, 2018 at 4:19 pm Thank you for the Internet hugs. To be clear I’m not sure Drew has BIID. I can totally see someone in my life trying to catch me in a “gotcha” video. Ie, running and lunging to snatch my child from running in a parking lot is something I’ve done (adrenaline/fear/circumstances) but it didn’t mean it wasn’t painful or that I didn’t pay for that exertion for awhile. The “I saw you act out of character because your small child was in imminent danger – you’re faking” was frustrating, painful, and damaging but a selective video clip can twist the truth. I live in a particularly abusive hell hole, so I can see someone even threatening Drew into making a false confession. As someone with actual physical limitations they’re just not interesting to discuss.
AngelicGamer aka that visually impaired peep* February 21, 2018 at 12:44 pm I have thoughts about this, as a disabled person, and… most of them are pity. I feel bad for Drew, thinking he needs to be disabled, and I hope he’s in treatment. Being disabled sucks, even with good accommodations, and I wouldn’t wish it on my worst enemy. OP, I would take Drew aside and use the script that a previous poster gave a lot up thread. It feels like the kindness thing that could be done. I’m not sure about looping in HR, because this is a disability (mental disability is still a disability!), but I might after talking to Drew. Just to say – hey, this is what’s happening, I talked with Drew, but we might need to be aware of fallout. Or maybe not HR but your boss if you feel your boss is cool enough to help you with it? But this is sticky and you need to be careful that he isn’t fired because of what others might find as lying. It’s not. It is a real mental disorder that has just as much weight when it comes to disability as anything else. Side note – fTo be honest, I wish that we could pair up people with this to other disabled people to make both sides feel whole if they wanted to be. The bleach lady reminded me of that – I’d give anything for one good eye – and the lady could have mine or none. She’d be blind, I could see, and all would be well.
RUKiddingMe* February 21, 2018 at 12:45 pm Alison how would this play out in terms of accommodation? Drew thinks he needs a wheelchair and therefore gets the ‘perks’ (ugh!) that someone with limited mobility would be entitled to. That’s fine, mental illness, got it. But what happens to someone with real, not imagined/perceived physical limitations needing the closer parking space, etc? Say you are another employee with an actual physical (as opposed to mental) disability. Not in a wheelchair but with limited mobility, chronic pain, etc. and Drew gets the closer(est) parking spot because of a wheelchair he does not actually need. Meanwhile you have to walk, with your legit physical issues/pain farther instead of you having that spot. How tolerant would you feel if you found out that Drew’s issues are mental and not physical? You actually need to do less physical exertion while Drew just thinks he does.
Jules the 3rd* February 21, 2018 at 12:51 pm Well, they could add a second handicapped spot… It’s not a zero sum game, we can be supportive of both physical and mental disabilities when the issue is resources. It gets more complicated with competing needs like the scent-sensitive person whose office mate was treating something with aromatics, but pure resource mgmt is easy.
Sometimes yes, sometimes no* February 21, 2018 at 12:55 pm This could have been a fairly neutral comment so I’ll pretend it was. Allison has written about what it means to accommodate a disability in the past, I’m thinking specifically of “when does an employer need to make accommodations for a disability” if you want to look that one up. The short answer is that ADA is not prescriptive about resolution, merely that a dialog needs to come up with regards to appropriate accommodation. Were the situation you described to come up, someone needing a disabled space when all were full, it would need to be handled as part of that particular circumstance and the needs of the company and the employees involved at that moment.
anon4now* February 21, 2018 at 2:32 pm Drew has not asked for any accommodations for his mental disroder and I’m not sure ADA extends to those who wish they were physically disabled.
Natalie* February 21, 2018 at 2:44 pm The ADA covers any condition that “substantially limits” one’s life, including mental disorders, and it doesn’t necessarily require Drew to say “I am requesting ADA accommodations” to be in play here.
anon4now* February 21, 2018 at 3:06 pm So a perfectly health person can request accommodations for a wheelchair and paraplegic benefits, and as long as they’re delusional to want/believe this and a doctor states that they truly have this delusion/metal disorder, the accommodation must happen? Or it’s illegal? It just doesn’t feel right to me, and a huge slap in the face of someone who truly needs this accommodation.
Zillah* February 21, 2018 at 3:16 pm Someone whose life is being significantly impacted by a severe mental illness is by definition not a perfectly healthy person.
Zillah* February 21, 2018 at 4:42 pm That’s a false dichotomy, and I’m not sure why the distinction is so significant to you in the first place.
Natalie* February 21, 2018 at 4:17 pm More or less, but there is no “accommodation must happen” in ADA. The employer and the employee enter into an interactive process to determine what kind of accommodations are needed and how the business will provide them. In many cases this is a fairly easy process – installing an automatic door paddle, for example, or moving some furniture around so somebody has a wide enough path to maneuver their chair. In other cases the business feels they cannot accommodate, and that gets trickier. For an employer to say no, an accommodation has to be an “undue hardship”, which is a particular legal term of art.
Countess Boochie Flagrante* February 21, 2018 at 1:11 pm In my experience, there is rarely only one good, close spot that can be made into a handicapped spot at need.
hbc* February 21, 2018 at 1:39 pm I dunno, what would you do if you had one employee in a wheelchair for “real” reasons and then another employee got in a car accident? Or you have only two employees in a position where they need to lift heavy things and they both get pregnant? I’m pretty sure you don’t test who’s least disabled or tell the person who’s due two weeks later that they’ve got to keep lifting things. Accommodate both disabilities. The occasions where you really, really can’t are pretty rare.
anon4now* February 21, 2018 at 2:33 pm This is not the situation. Drew is physically healthy. He has a mental disorder where he wishes he was a paraplegic and he is being accommodated as such.
Jessie the First (or second)* February 21, 2018 at 3:08 pm We are assuming he has BIID or something similar, right? If that’s the situation, you are massively oversimplifying and trivializing that disability. As for accommodations, he has a close parking space. That’s all. Unless the building and parking lot are structured unlike any other building and parking lot in the known universe, there is more than one close space. Also, this comment and a few others make it *really* clear why Drew may have chosen to say he is paraplegic, rather than letting out that his disability is mental or neurological. Sheesh.
anon4now* February 21, 2018 at 3:28 pm I’m “oversimplifying” because we don’t have a ton of information except that Drew appears to be physically healthy and is faking appearing paraplegic as an accommodation to his mental disorder. I’m not trivializing the disability, just wondering why you think he deserves the same benefits as someone who is actually paraplegic? I’m hoping he gets treatment and is cured…someone who is truly paraplegic will not get that same opportunity.
Natalie* February 21, 2018 at 4:20 pm For whatever its worth, lots of people who use wheelchairs aren’t paralyzed. They may be physically capable of walking but experience pain while doing so, or it is quite exhausting, or slow, or some other issue. Some of them may even end up having their condition mitigated someday. And yet they are still entitled to use wheelchairs and ramps and accessibility stalls in the bathroom.
anon4now* February 21, 2018 at 4:35 pm Absolutely. I know this. But I don’t think this is the situation with Drew. If he is in any way physically disabled, I would feel terrible. But I was operating under the assumption he was able-bodied, and a mental disorder was causing him to want to become disabled, and to temporarily accommodate this disorder (until he actually paralyzes himself??) he is pretending he needs to use a wheelchair and telling others “I’m paraplegic”.
IForgetWhatNameIUsedBefore* February 22, 2018 at 7:12 am Your assumption is incorrect. BIID has an actual diagnosis, and that’s not it.
Jessie the First (or second)* February 21, 2018 at 7:30 pm “faking appearing paraplegic as an accommodation to his mental disorder” No. From what we know, feeling he should be paraplegic *is* part of his mental disorder. That’s not an accommodation for it – that IS the disorder. If he has BIID, then it’s not a “Hey! Cool! I wanna be paralyzed! That’d be awesome!” It’s a far more complex neurological or psychological issue than simply “wishing” he were disabled because he thinks it’s neat. That is how you are trivializing it. If, instead, he is mentally ill and has something similar to body dysmorphia, then he’s got a disability and disabilities are entitled to reasonable accommodation – because mental illness is entitled to accommodation. That’s what the law actually says. It is not a contest to see who is the most disabled and only those people who rank as “most disabled” get accommodations.
Sylvan* February 21, 2018 at 1:41 pm I’m wondering about this, too. I actually have a chronic illness that occasionally, rarely makes it hard for me to walk, although most of the time it’s just no problem at all. If there were limited resources when I was having a bad day (only one accessible parking spot, for example), I would assume that a paraplegic coworker needs them more than I do. I have no idea what I would think if this kind of situation came up!
Countess Boochie Flagrante* February 21, 2018 at 2:13 pm For a long time, I had a disability that made it hard to walk. A coworker in the same area of my building used a walker. I didn’t use the handicapped spots by the access aisle, because for me, it just meant walking an extra 7 or 8 feet, whereas she needed the extra space to be able to maneuver the walker. The 7 or 8 feet twice a day was negligible (and I came in very early, so I could usually take the spot right next to the handicapped spots) for me but vital for her.
CrazyJ* February 21, 2018 at 12:48 pm Is this not an integrity problem if and when other coworkers/clients find out about it? (And most likely “when” if it’s online and two people in the office already know.) To the extent Drew has a genuine mental health condition, any accommodation of the wheelchair use is actually an accommodation for the mental health issue. So I can see the virtue of Alison’s and OP’s lie-low approach. Especially if Drew isn’t asking for any accommodation other than use of a handicap parking space. But…if that’s so, Drew has been misleading his colleagues and clients about the nature of his disability in a pretty big way, describing himself falsely as a “paraplegic” when he’d have been better off saying even something a little vaguer such as “Oh, I just need to use a wheelchair” that would have encompassed his true condition. This is going to look like a major violation of trust once word gets out, and there I sympathize with OP’s concern about the company’s reputation. I’d be very curious to hear from lawyers about how the ADA would treat a situation where an employee may legitimately need an accommodation but lies (unnecessarily?) about why.
voyager1* February 21, 2018 at 12:54 pm I would fire the guy assuming he partipated willingly in the documentary. If it was some kind of hidden camara thing then I don’t know, probably leaning towards firing. But either way this issue needs to be addressed and AAM is right this is so far out there HR needs looping in. One thing to consider though, LW you mention he isn’t taking gifts or anything… but is he on your company health insurance? I am having a hard time feeling any empathy for this employee…
Sometimes yes, sometimes no* February 21, 2018 at 12:58 pm This comment saddens me deeply. 1) Why would you fire him? 2) Why would it matter if he’s on the company health insurance? 3) Why are you finding it difficult to empathize?
Lil Fidget* February 21, 2018 at 1:05 pm Also you may not legally be able to fire someone on a basis of a medical condition. Even one you dislike or don’t believe in.
Countess Boochie Flagrante* February 21, 2018 at 1:12 pm ADA doesn’t require “recognized” medical condition. It requires ‘has, had, or is perceived to have a disability.’
Lil Fidget* February 21, 2018 at 1:19 pm I only knew this because of Alison, to be fair, from the post where one person thought essential oils had cured her cancer and a coworker was getting headaches from the smell. The fact that one treatment was dubious wasn’t really fair grounds for consideration, IIRC.
Delphine* February 21, 2018 at 1:20 pm I’m not sure the ADA defines a disability as “whatever you say you have” without any documentation.
Sometimes yes, sometimes no* February 21, 2018 at 1:27 pm I would not be sure Drew is without documentation. At the very least, he has evidence of disability in the form of medical devices, which is enough to start the conversation. ADA “disability” is a legal definition, not a medical one. So in a sense, it kind of is “whatever you say you have” as long as you’re willing to back it up (or the other is willing to challenge it) with a lawyer. I can’t imagine HR would treat this case as anything other than an ADA-eligible disability because the risk seems really high for losing a lawsuit regarding it. Disclaimers: IANAL, don’t work in HR, and haven’t pursued ADA recognition/accommodation for my own disability.
fposte* February 21, 2018 at 1:39 pm It is allowable for an employer to request medical documentation, and it can involve a question about the nature of an impairment. I wouldn’t do it without checking with a lawyer, because such requests can be used in a discriminatory fashion, but this isn’t like seeing a service dog walk into your store where you’re never allowed information about the disability.
Sometimes yes, sometimes no* February 21, 2018 at 1:44 pm fposte – Yes, but documentation is not some verifiable certification registered with some ADA agency or other central authority. Papers are only as good as the doctors that wrote them, and the lawyers that argue about them, and if NOT furnished that does present more cause for the employer to seek action… but again, in this case, there is a lot going against them what with the medical devices in daily life over a period of time plus appearing in a documentary about a medical condition that presents as exhibited.
fposte* February 21, 2018 at 1:47 pm @Sometimes–I won’t disagree with you there–it’s just that medical documentation hadn’t gotten mentioned yet, and it does exist.
Delphine* February 21, 2018 at 1:16 pm I don’t think he ought to be fired, necessarily, or that using company health insurance is an issue, but I too have trouble empathizing with this employee. If the employee has a mental illness which makes him want to be paraplegic, that’s one thing, and I can certainly empathize with that as a person who has experienced mental illnesses and how irrational they can be. However, nothing is making him use that wheelchair except his desire to do so. It would be helpful for people to read up on the “transabled” community from the view point of people who are physically disabled, have been marginalized due to their disabilities, and then have to face a world where there are people who see them and say, “I would like nothing more than to sever my own spine so I can be like you.” It’s humiliating, it’s demoralizing, it makes you feel like a fetish for another person and not a human being.
Sometimes yes, sometimes no* February 21, 2018 at 1:33 pm > However, nothing is making him use that wheelchair except his desire to do so. This assumption is the crux of it. Who says? Other comments have cited studies and websites showing that there are neurological issues that literally make it impossible to move limbs even though the connections and functions should be there. They’ve also mentioned intermittence, where it’s sometimes active and sometimes not. On top of that, this comment is grossly dismissive of mental disorders — it’s very close to saying someone with depression has “nothing making him die by suicide except his own desire to do so.” In other words, you’re ascribing a layer of intention and agency that is simply impossible to observe from the outside. I can definitely empathize with the physically disabled who feel marginalized and fetishized by non-physically disabled individuals yearning to join their ranks. I am sure that is incredibly demoralizing and humiliating. But neither they nor you can say whether Drew has any intentions in that direction, feels he *is* a member of that community, “wants” anything about it versus feeling he “is” it, and so on. Again, it’s ascribing a layer of intention and agency that is impossible to observe from the outside.
fposte* February 21, 2018 at 1:34 pm Though very different opinions are noted upthread, so I think this is one of those “the community is not a monolith” things.
Sylvan* February 21, 2018 at 1:44 pm Thank you for pointing to the opinions of disabled people here. Seriously.
voyager1* February 21, 2018 at 2:34 pm Wow I didn’t think my comment was that far out there. I guess I find the idea of what this employee doing so deceitful that I couldn’t trust him ever again. And yeah I would probably recommend firing someone if it got to that point just like if someone stole or was harassing others etc. It would be different if he said he had a documented mental condition and the wheelchair was part of therapy or something.
LBK* February 21, 2018 at 2:45 pm I guess I find the idea of what this employee doing so deceitful that I couldn’t trust him ever again. Having a mental condition is not being deceitful. He’s not pretending to have a disability just so he can get a better parking spot or something.
Jessie the First (or second)* February 21, 2018 at 3:17 pm You could get in a world of legal hurt if you fired someone because they didn’t accurately disclose the nature of their disability even though the nature of the disability had zero impact on work and did not involve any accommodations. It would look and smell like you were firing someone for having a mental illness. You also mention insurance in your first comment – I am totally confused about why you think that’s relevant. Do you think he is committing insurance fraud? Trust me, his doctors will be well aware he is not actually paraplegic, so really, that’s not an issue. Any other “red flag” you think you see about the employee’s use of the insurance benefit he pays for is not a red flag.
LBK* February 21, 2018 at 2:16 pm Hmmm, this gets a little too much into TERF territory for me – someone with BIID obviously doesn’t go through the same experience as someone who’s genuinely physically disabled, but technically being able-bodied doesn’t mean they have an easy life that they’re willingly giving up out of some sort of idealized fascination with being disabled. They still have a severe mental illness that they’re not choosing to have and that clearly impairs their ability to live the same life as other able-bodied people – I really don’t think anyone would choose to be in a wheelchair if it were as simple as not using one. I think the scorn targeted at people with BIID from physically disabled people is a pretty sweeping erasure of mental disabilities.
PlainJane* February 21, 2018 at 5:26 pm I was just thinking about the parallels to TERF – thanks for pointing that out. I can understand why someone who is marginalized being frustrated that someone else seems to “want” to take on that identity, but of course it isn’t as simple as, “want” or “chooses to.”
Observer* February 21, 2018 at 12:56 pm This guy definitely DOES have a problem, whether or not he’s PHYSICALLY disabled. Yes, he gets a close by parking space. But, even with that and a car with hand controls, he’s clearly limiting his life in some fairly odd ways and expending a lot of effort. And he’s not even getting much, if anything, out of it on the one hand, and you are not out any real expenses on the other. You’re not paying him anything extra, you’re not even providing costly accommodation, etc. So, I don’t see the need for you to address this. Of course, HR should be notified. But if others come to you with this Allison’s text is perfect.
Delphine* February 21, 2018 at 12:58 pm Body integrity identity disorder is a proposed disorder. It’s not officially recognized, and it’s unclear what kind of illness it is (if, in fact, it is an illness). Research is ongoing. I agree that it’s abhorrent to pretend that you’re physically disabled because you “want” to be, and make use of accommodations disabled people actually need and often have no choice but to use.
overcaffeinatedandqueer* February 21, 2018 at 1:09 pm I wouldn’t take away any current accommodations, but I certainly wouldn’t give Drew any more than he has, or spend money to do so. And if someone with a physical disability needed his parking space or otherwise competed with Drew’s accommodations, they would have priority. Personally, this makes me angry. It’s an appropriation! Honestly it reminds me of a few people I know who falsely claim to be LGBT for college and grad school applications and demographic advantage. I’m aware I may have got a diversity advantage in admissions by outing myself; but I can’t pretend to be gender conforming or straight (well, maybe, but I’d be miserable and it would be about as effective as in the movie Mulan. Where she fakes being a man and goes “I see you have a sword…so do I…it’s very manly! I have a name….um….and it’s a boy’s name too!”) People lying can be straight where it’s not safe to be otherwise. They get to pass on by, while my defenses would have to be screaming and jabs to the nose and balls.
Grayson* February 21, 2018 at 2:07 pm Oh I’m absolutely upset about this. Transabled is just Rachel Dolezal for the disabled community. *fumes*
IT is not EZ* February 21, 2018 at 1:25 pm My concern is this: What if you gain another employee who really is paraplegic? Is it it appropriate that Drew keep the parking spot closest to the door? (assuming there aren’t already several spots such marked, but the OP’s intro implies there are not). Mental health issues need to be acknowledged and support just like physical health issues. But if I have an employee with a phobia about wasps, and another employee who’s deathly allergic to them, I know which one is getting moved farthest away, first.
Countess Boochie Flagrante* February 21, 2018 at 1:31 pm I think that’s treating it as more of a zero-sum game than it really is. Especially because the hypothetical paraplegic coworker doesn’t exist! When and if one does, then saying “okay, how can we get these people both accommodated” becomes an issue, but for the moment, I don’t see the benefit of treating Drew as though someone who doesn’t even work there yet has priority on resources.
tusky* February 21, 2018 at 1:50 pm What if they gained two employees who needed close parking spots? Any number of accommodation requests could arise, so this is a potential situation the employer needs to be prepared to address (or at least consider as a possibility). Consider that making buildings with accessible features (e.g., bathrooms, ramps) is now common practice, in order to maximize accessibility to a wider array of people. Ideally, employers would do their best to proactively make spaces as accessible as possible, rather than implementing the bare minimum of accommodations.
IT is not EZ* February 21, 2018 at 1:25 pm My concern is this: What if you gain another employee who really is paraplegic? Is it it appropriate that Drew keep the parking spot closest to the door? (assuming there aren’t already several spots such marked, but the OP’s intro implies there are not). Mental health issues need to be acknowledged and supported just like physical health issues. But if I have an employee with a phobia about wasps, and another employee who’s deathly allergic to them, I know which one is getting moved farthest away, first.
LawBee* February 21, 2018 at 1:41 pm Honestly, the company would just allocate another space, just as they would if Drew was visibly missing a leg and the company hired another person who needs a space.
TGIF* February 21, 2018 at 1:34 pm A lot of people are saying that maybe he really does have a physical disability that needs the wheelchair. Based on the brief description given of the documentary the OP saw, Drew said directly in the video that he does not have a physical disability and uses the wheelchair anyway. Just a few weeks ago, I saw a documentary about a guy who is obsessed with putting fake casts on himself and pretending to have broken bones. He does this without needing the medical support of a cast, he just likes the feel of it and the attention with his fake stories about how he got hurt. So I’m guessing Drew is the same way, that it was a documentary about people who have the mental disorder that they act physically disabled even when they don’t need it.
anon4now* February 21, 2018 at 2:24 pm Thank you! +1 Some many comments about how Drew may really be physically disabled, when the OP blatantly states the documentary is about physically-healthy people who want to be disabled because their brain aren’t functioning correctly. It may be this disorder persists because of all the excuses and denials others give and the willingness to accommodate this (for some, it never goes away even after their paraplegic or amputated so completely pointless).
Jessie the First (or second)* February 21, 2018 at 7:37 pm Seriously? A mental illness exists because people coddle the ones who have it? What do you tell people who are depressed – to shut up and stop complaining already?
IForgetWhatNameIUsedBefore* February 22, 2018 at 7:29 am Because people coddle them to the point that “their paraplegic or amputated”! Not because they have a neurologically based mental disorder or anything.
Undine* February 21, 2018 at 1:35 pm Talk to Drew. He’s made a decision to appear in a documentary about a little-known, stigmatized condition. He may very well have a lot of information about the condition and clear opinions on how he wants to present it to people. I would tell him that some of the staff have seen this and that “we” need to get out ahead of the gossip. Ideally, you, he, and HR could work on what to say, and how to announce it.
Argh!* February 21, 2018 at 1:37 pm I’d much rather have a “Drew” than an employee who thinks they’re competent but isn’t. That mental condition is unfortunately very common.
anon4now* February 21, 2018 at 2:25 pm Let’s hope you don’t get a real paraplegic employee, then Drew rolls on in. Then you may see why this is a real problem and these people should not be encouraged or considered “competent”.
anon4now* February 21, 2018 at 2:46 pm Wanting Drew (an individual with a mental disorder that makes him want to become, or be perceived as paraplegic) to be your employee over an employee you consider “incompetent” makes no sense. They’re both incompetent, except once rolls around in a wheelchair he doesn’t need. My comment was to illustrate if you got Drew a as worker (as your original comment stated you’d rather have over an “incompetent” one), and then got a new worker/client/whatever that is actually paraplegic, you’d realize extending competency to Drew is ridiculous and that accommodating this mental disorder is very strange in a work-related environment.
Natalie* February 21, 2018 at 2:55 pm They’re both incompetent Where on earth are you getting that from? And regardless of what you consider strange, mental disorders are protected to the same extent physical ones are, and they are accommodated in work environments all the time.
anon4now* February 21, 2018 at 4:08 pm I said “this mental disorder”. I was being specific. Because an employer accommodating someone who is able-bodied as physically handicapped because of a mental illness is not what ADA was intended for and, IMO breaks the spirit of the law.
Ask a Manager* Post authorFebruary 21, 2018 at 4:10 pm I don’t actually think that’s true. The ADA was intended to accommodate both mental and physical conditions and takes no stance on what type of accommodations are appropriate in general, as long as they don’t cause undue hardship.
anon4now* February 21, 2018 at 4:25 pm Ok, I had thought BIID wasn’t considered a “real” metal disorder, just a “proposed” one. I thought ADA accommodations were limited to physical and mental disabilities that have been accepted universally in the medical community. Good to know, thanks!
IForgetWhatNameIUsedBefore* February 22, 2018 at 7:43 am Oliver Sacks and other prominent doctors, researchers, and so on have written about this and similar neurologically based disorders. Whoever said it’s like the opposite of phantom limb syndrome described it pretty well. Instead of your brain insisting that a healthy, working, feeling limb that no longer exists is still there, your brain is insisting that a perfectly good, healthy limb isn’t there, doesn’t work, or does not belong to your body. It sounds like something that would be terrible to experience, not something to be treated like dirt for.
Countess Boochie Flagrante* February 23, 2018 at 10:55 am @IForget Yeah, agreed. Especially when it comes to feet/legs — it may be some personal bias, since I’ve had plenty of unfortunate experience with not being able to rely on those appendages the way I’d like, but the thought of walking around, trusting my balance to limbs that don’t properly feel like they’re a part of me, gives me the heebie-jeebies.
Jessie the First (or second)* February 21, 2018 at 3:28 pm Drew is in fact a competent worker, according to the LW. No one is “extending competency” to him that he does not deserve. The LW says he does good work. I don’t know why you want to insist he is incompetent when the LW has said the opposite. And so you know, the ADA does apply to mental illness as well as physical. It’s not “strange” to accommodate either.
Argh!* February 21, 2018 at 4:20 pm Yes, a competent person who is faking a disability is better than an incompetent one who is trying to fake competence!
arcya* February 21, 2018 at 1:39 pm Honestly I slightly disagree with Allison here, in that I don’t think the OP should say anything to Drew or HR or anyone else about what she knows. Drew isn’t really obligated to disclose his personal physical or mental health struggles with the OP or anyone else – that he was able to appear in a documentary is frankly immaterial to his obligations to his co-workers. It doesn’t matter if he uses a wheelchair because he is physically paraplegic or if he has some other disability (including any psychiatric disorder) which makes wheelchair use more comfortable for him. All this weird hand-waving about “what if clients find out??” is more about people’s own feelings regarding disability. Clients haven’t found out. Cross that bridge if you come to it, but don’t start an office wildfire over a hypothetical (for real, how sure are you that HR would keep this completely to themselves? they won’t. we both know they won’t). He isn’t taking anything from you or anyone else, he’s just using a mobility device that makes him more comfortable. If you hire someone else who uses a wheelchair get two disabled spots, this isn’t rocket science. OP, tell the coworker who showed you the documentary that this is Drew’s personal business and you don’t want to hear that she spread it around the office. And then stay out of it.
Goya de la Mancha* February 21, 2018 at 3:28 pm If something happens that this comes up and HR finds out that you as manager knew about this possibility without telling them, ethics of whether it’s “personal business”, that doesn’t necessarily put you in a good spot as an employee either.
arcya* February 21, 2018 at 6:52 pm what on earth does everyone think is going to happen that justifies HR immediately knowing the details of Drew’s private medical condition? Clients find out? “we don’t discuss the health conditions of our employees” Another coworker has a fit? “we don’t discuss the health conditions of our employees” Hire a second disabled employee? “we don’t discuss the health conditions of our employees” This is not that hard. Everyone involved here can safety mind their own business.
Sometimes yes, sometimes no* February 21, 2018 at 7:32 pm HR needs to know about potential liabilities. An employee who is presenting as paraplegic and, for all intents and purposes, is believed to be paraplegic is treated one way. As you can see from the variety of vehemence of these comments, the alternative explanation for his presentation is causing a fair amount of consternation. Is it a “real” disability? Are people going to trust Drew less because they feel he’s been lying this whole time? Is the environment going to become hostile to Drew because people choose to take out that anger on him, putting the company in the line of fire for an ADA-protected discrimination lawsuit? While it is preferable that everyone minds their own business and does their work professionally, and our private lives are our private lives, it does not generally work that way in practice. In Drew’s case, especially, because he has public information that exposes his private life in a way that would not normally come up in conversation, it gets all the more complicated — in an HR, company liability sense — both internally and externally.
arcya* February 21, 2018 at 11:43 pm Except… everyone’s over-top responses are honestly kind of their own problem? I honestly cannot even begin to imagine what kind of “liability” problems you’re anticipating. If people decide they can’t trust Drew because his disability does not meet their own internal standards that is frankly on them. One of my coworkers wears glasses even though she doesn’t need them, should I scream about it to the office and start an HR file on her? Because we can’t trust her now? If people become hostile to Drew because of his disability that is illegal and their managers need to put a stop to it, it makes no difference if they are hostile because Drew actually is paraplegic or if they are hostile because he isn’t paraplegic enough. All the over-the-top responses here really more of a symptom of people’s feelings re: disability and has nothing at all to do with Drew. Like, people are mad because they think they get to decide when another person is allowed to use a mobility device? Nothing is being taken. Drew seems to be navigating the world as best he can. Literally this entire problem does not exist if the OP minds her own business.
Sometimes yes, sometimes no* February 22, 2018 at 12:56 pm As I said, it would certainly be a lot easier if everyone minded their own business, but that rarely ever happens and things have already been set in motion in this case by LW. You mention others creating a hostile environment being on them, and the responsibility lies with their managers in managing that, and I agree! But that is a big concern for HR to be aware of: a hostile environment is enough grounds for legal action, but adding in a disability compounds the problem. Your analogy about the glasses is bizarre and not at all equivalent to what’s being discussed here. There are comments all over this very post with people saying they would no longer trust Drew, might fire him for lying, and so on – this isn’t an imagined scenario.
arcya* February 22, 2018 at 4:24 pm I mean the glasses comment is absolutely relevant – my coworker does not need glasses to see, she wears them for purely cosmetic reasons. They are an assistive aid used by people such as myself for nearsightedness. Is she lying by making people think she is nearsighted? Should we start an HR file because I don’t think she truly needs glasses? What if we hire a second person who actually needs glasses? No one should trust her, because she is lying by using a device required by some with a disability. Obviously this is ridiculous, but generally the same. Drew has a personal health – related problem, just not the one people thought he had. The overreactions by people in this thread has a lot more to do with the general cultural idea that people with disabilities are ‘getting away with something’, and a lot of the posters here are mostly glad to have a safe, not-real-to-them target on which they can project their own anxieties. HR does not ‘need’ to be aware unless there is an actual issue. Their response should be the same anyway. But involving HR in Drew’s personal health because other people might later behave in a way that is illegal is truly unnecessary. If I know one of my coworkers secretly has a disability, should I alert HR so they know in case my coworker’s manager tries to illegally fire them for disability-related reasons? No. Because it is *not my business* to involve HR in someone else’s health problem. This was not, and remains, none of OPs business. Involving HR immediately creates more problems than it might potentially solve. OP needs to focus on Drew’s work and leave it alone.
Goya de la Mancha* February 22, 2018 at 9:26 am “we don’t discuss the health conditions of our employees” – ABSOLUTELY, when you’re talking to employees or clients. However, that rule doesn’t necessarily apply when you’re talking HR and Execs of the company. It is their JOB to know and handle all and any possible liability issues that may arise in their business. A heads up doesn’t mean that anything will happen or be done, it just means that we’re aware of it and will continue as normal unless something were to arise. Not giving said heads up, and them finding out later you had information that may have curtailed some possible issue will leave a mark on your own record.
arcya* February 22, 2018 at 12:00 pm Spreading Drew’s personal health business to HR doesn’t help him, or HR, or the OP, or anyone. Their response, legally, should be the same no matter when they knew it. All this does is create even more of a potential for office drama when HR, inevitably, leaks this juicy gossip. Drew’s health problems aren’t HR’s business unless he wants them to know. He uses a mobility device, his reasons absolutely do not matter, and to insist HR be involved when it is unnecessary just increases the chances of the sort of ridiculous office drama the OP should be trying to avoid.
Also Alison* February 21, 2018 at 1:43 pm I’d be fascinated to learn how he ended up in this documentary. Presumably he consented to it at some point.
Countess Boochie Flagrante* February 21, 2018 at 2:15 pm I’d also be fascinated to know how the documentary was pitched to him. As it’s been pointed out above, documentarians can sometimes be really sketchy in what they disclose or how they present stuff. Obviously, without being able to see it, I can’t know if Drew was straight-up like “oh yeah I can totally walk but it feels kinda weird” or if it was like that bit in the Simpsons where the interview is cut to make Homer look like a psychopath (and you can see the hands on the clock jumping around during the cuts).
Loose Seal* February 21, 2018 at 2:39 pm OP, how dare you?! It is not for you to judge if someone needs a wheelchair or any other assistive device. I use a wheelchair on occasion. I am on disability now but am working with Voc Rehab to get some kind of job that will accommodate me. When I do go back to work, I plan on using my wheelchair every day regardless of how I strong I feel each morning. And here’s why: Using any of my assistive devices is a visible sign that I don’t feel as well that day and, since people rarely know what to say to disabled folk, I get a lot more comments about my health on those days. To prevent that, I would rather use the same assistive device every day so that people leave me the hell alone about it! In a few months, once I get placed in a job, this could be me you are talking about. I already feel nervous about trying to go back to work with accommodations and having it possibly not work out. Now I get to worry that my future co-workers will be judging my decisions that I make for my own mobility and my mental health. So thanks for that. And, perhaps a little insight for you: I am not paralyzed but I would take that in a minute if it would mean my pain would be gone. Is that indicative of poor mental health? Try walking around on knives all day long and you might feel that it’s reasonable to both use a wheelchair and to not-so-secretly wish the pain were gone, even if you could never walk again. Is it possible that’s what your employee meant in the video? Was the video made for the audience of other people in Drew’s situation? I’ve heard that wished by a lot of people that I meet in my doctor’s appointments so I wouldn’t find it unusual that Drew thinks so.
anon4now* February 21, 2018 at 2:48 pm Did you participate in a documentary where it was stated you were physically healthy, and acknowledged not needing a wheelchair but wanting one to accommodate your mental disorder? Look at what body integrity identity disorder is. Do you have that Loose Seal? If not, please don’t attack the OP and instead look at the facts.
Loose Seal* February 21, 2018 at 3:35 pm First of all, the OP never said a thing about BIID. Alison did. And, while she may be correct, she also may not be. I don’t see where I have to have BIID to comment on the rage I feel knowing someone is questioning their employee’s right to use a wheelchair.
anon4now* February 21, 2018 at 3:54 pm Would you feel kindness and sympathy at watching someone with BIID in a wheelchair fall out, get up, brush themselves off, and then casually climb back into the wheelchair? Your bias is blocking you from seeing the OP saw a documentary where Drew admitted he did not need a wheelchair. The documentary was about physically-able people pretending to have a physical disability, as an accommodation to their mental disorder. “He is not a paraplegic and does not need a wheelchair. In the film, Drew walks and is clear that he is not paralyzed and has no actual need for a wheelchair but uses it because he feels as though he was meant to be a paraplegic.” You obviously do not fall into this category. You may feel you straddle the line, because you may not always need a wheelchair, but that is not at all what anyone of us are talking about.
Loose Seal* February 21, 2018 at 6:01 pm I guess I don’t see what you’re aiming at because if I tipped over my wheelchair, I’d get up, dust myself off, right the wheelchair, and get back in it (not casually for me as I would be in a lot of pain but it might appear casual to an observer especially since, out of embarrassment, I’d try my best to minimize other people rushing over to help me so I’d hop up as quickly and unobtrusively as I could). Does that mean I don’t need it? Do you think paraplegics are the only people who use wheelchairs? I get that the documentary was presented as what you say. But you are acting as though Drew is pulling one over on everyone: 1. Need to use a wheelchair. 2. Be offered an accommodation even though you didn’t ask for one. 3. ???? 4. Profit? I hope I would feel kindness and empathy toward anyone regardless of their diagnoses. It seems obvious from these comments that not everyone feels the same.
Murphy* February 21, 2018 at 2:52 pm You’re assuming a lot of things that the OP didn’t say and ignoring things that they did.
Loose Seal* February 21, 2018 at 3:41 pm I find this comment odd since Alison’s answer assumed the most: a mental health condition that was in no way mentioned in the letter. I am not ignoring the most important statement in the letter. Did you see where the OP said that work was not affected by Drew’s accommodations? That’s where it should have ended. By writing this letter, it seems like OP is trying to find a way to take away Drew’s ability to work there and that’s particularly concerning. Perhaps they will come and say that that’s not what they are doing but I doubt it. Plenty of people seem to think that disabled people are getting away with some sort of perks and don’t mind being vocal about that.
Loose Seal* February 21, 2018 at 3:37 pm I read the entire thing albeit through rage-filled eyes. Do you use a wheelchair, Marie B.? Do you have people questioning your use of anything you need to do to get through your day? Do you fear that people will do so? Can you imagine what Drew might feel if he read this letter?
Marie B.* February 21, 2018 at 3:52 pm I have had need for a mobility aid in the past (although not currently). I have never told anyone I’m a paraplegic, then walked around on camera and admitted I don’t need a wheelchair while appearing in a documentary with other people who think they were meant to be disabled but actually are not.
Loose Seal* February 21, 2018 at 4:13 pm So your use of a mobility aid was justified but Drew’s isn’t, is that what you are saying? Did you read Alison’s response?
Countess Boochie Flagrante* February 21, 2018 at 4:24 pm Loose Seal, I previously used mobility aids (and in short bursts, a wheelchair) and I absolutely agree with you. It is not an employer’s job to police what assistive devices an employee needs. Obviously, workplace accommodations are a somewhat different matter, but the words “Oh, you don’t need that wheelchair” should basically never come from anyone’s lips. The number of times I heard “You’re too young to need a cane!” in the three years I had one still pisses me off to this day.
Loose Seal* February 21, 2018 at 6:03 pm OMG, I had a nurse practitioner say the “you’re too young” think to me the other day. My response, “Obviously not.” Plus, I was grumpy for the rest of the appointment.
fposte* February 21, 2018 at 9:58 pm I had an orthopedist say that to me recently. Turns out he misread my chart and thought I was twenty-five years younger :-).
MV* February 21, 2018 at 2:58 pm I agree with Alison’s suggestions for the OP – this is a very sticky situation. However I do have a disability and do everything in my power to keep moving. If it found this out I would never trust this person again. I get that this (may be) a mental disorder and that (maybe) this guy cannot help it, but that doesn’t change how I would perceive this. I would feel like Drew was mocking people with disabilities and it would make him less believable and trust worthy. I would wonder what else he has used his poor judgement with at work that I might need to check.
Triple Anon* February 21, 2018 at 3:17 pm That would be my reaction too. Not because he uses a wheelchair without any kind of physical reason for it (to each their own), but because he’s telling everyone something different than what he said on film. But there could be an explanation. I would tell him I saw the film and give him a chance to explain it. Then go from there. See how honest he sounds while talking about it.
Manders* February 21, 2018 at 4:08 pm Yes, I think this is the real heart of the issue. Drew does feel the need to do this for whatever reason, and the company doesn’t seem to be having any issues accommodating him, so it doesn’t really hurt him or the company to continue things as they are. But some of his coworkers and clients are going to be deeply weirded out if they come across this documentary, and those reactions will be personal and not sometime Drew or the OP can control. That’s not OP’s problem or responsibility to solve, it’s something Drew’s going to have to deal with on his own.
Nerdling* February 21, 2018 at 2:58 pm A lot of the comments here sum up why, even (seemingly) knowing that what he’s dealing with is a mental/neurological disorder rather than a strictly physical one, Drew said he’s paraplegic: It meant nobody questioned whether or not he’s “disabled enough” or “needs” the wheelchair or “deserved” the accommodation he didn’t even ask for simply because the dysfunction is in his brain rather than in his spine.
Countess Boochie Flagrante* February 21, 2018 at 3:17 pm Very much agreed. Including on the part of the people who are cloaking their response in a lot of social justice language.
Sometimes yes, sometimes no* February 21, 2018 at 7:35 pm 100%, with conviction increasing with every other comment.
only acting normal* February 23, 2018 at 10:23 am Given how people frequently obfuscate with wording when their illness is mental/gynaecological/otherwise embarrassing to avoid unwanted judgement, I’d be intrigued to know exactly *how* Drew “said he’s paraplegic”. E.g. “Why do you use a wheelchair?”, “Oh, paraplegia.” = technically true, it’s just not actual physical paraplegia, it’s a mental disorder that means he feels compelled to live as if he had paraplegia.
Triple Anon* February 21, 2018 at 3:06 pm So . . . Evidently, he agreed to participate in the documentary. He went on record explaining his situation to the public. The problem is that there is a publicly available film in which he states things that contradict at least one thing that he has told his co-workers (that he’s paralyzed). He’s lying to you. And maybe this is understandable in the context of the condition and the way people tend to react to it. Maybe he thought about it and decided that lying about that one thing was the lesser of two evils . . . But it still raises some questions about his integrity, given that the documentary is available to the general public. I’m not sure if this is for his manager to handle or if it should be handed over to HR or PR. But I think someone should say something to him about it. Give him a chance to tell his side of the story. There could be an explanation, like the one I suggested above or the circumstances surrounding his participation in the documentary. Sometimes people get coerced into doing things on film that they don’t want to. They’re told that the film is about something different, or the intended audience is different, or they’re under the influence / going through a crisis or something when they sign the release. People get talked into signing broad released that cause them to relinquish a lot of control. So it could be something like that. In any case, someone needs to talk to him privately, in a kind and nonjudgmental way, and ask what the story is with the discrepancy. Worst case scenario, it points to a larger pattern of dishonesty. Best case, there’s an understandable explanation, and it would be best for the company to be aware of that should it come up with anyone else who might see the doc and take issue with it.
Countess Boochie Flagrante* February 21, 2018 at 3:20 pm The thing is that a lot of people do make statements that are not altogether true when it comes to their health. That’s common, and generally really okay! If my coworker tells me he has Disease X, when what he really has is Disease Y which is super obscure and complicated but on a practical, day-to-day level means roughly the same accommodations/limitations/needs/etc as Disease X, that’s absolutely his prerogative and I don’t have any ground to stand on being upset that he didn’t tell me about Disease Y.
Merida Ann* February 21, 2018 at 3:49 pm Yeah, I think that’s a good way to look at it. For a non-health-related comparison, I think it’s sort of like saying you’re from Big City halfway across the country, when you’re actually from Small Town about 40 minutes away from Big City. Yes, technically, I’ve never lived in Big City, but the people I’m talking to are far more likely to have heard of Big City and have a general idea of where that is than if I just say Small Town right off the bat. If they’re familiar with the area or want to know more, I’ll clarify that I’m actually from Small Town, but I don’t think it was a *lie* to say that I was from Big City, even if it’s not the most accurate. It still got the general idea and conveyed basic information faster than getting into the specifics right off the bat.
TempTation* February 21, 2018 at 5:05 pm aka saying you’re from Chicago when you’re really from Naperville. :D
Triple Anon* February 22, 2018 at 9:41 am Right, but it can raise the same kinds of questions! Sometimes the smaller town has a reputation for being either very poor or very affluent and the person gets accused of misrepresenting themself. And sometimes they are. Sometimes they aren’t. You can’t really ascribe motives to other people. You can just take things at face value and consider the impact on others.
KellyK* February 22, 2018 at 10:20 am Absolutely! This is super common and totally reasonable. If you have something that’s rare, misunderstood, stigmatized, or all of the above, it’s reasonable not to want to explain it in detail. I know several people with intolerances to certain foods who will describe it as an allergy when they’re in a restaurant. The upshot is the same: “This will make me sick. Please make really sure you don’t put it on my food,” and it spares them from trying to explain what IBS is, or how being raised in an Orthodox Jewish household can leave you without the enzymes to digest pork. Heck, sometimes lying about your health is pretty much a social requirement. Like the way so many people freak out at any mention of periods. If you’re puking and wrapped around a heating pad due to an extremely painful period, it’s totally reasonable to say you’re “sick to your stomach” even though you’re actually sick to your uterus.
Countess Boochie Flagrante* February 23, 2018 at 9:07 am Yep, or how any temporary GI issue is ‘food poisoning’ regardless of the actual problem. No one needs or wants details.
only acting normal* February 23, 2018 at 10:07 am Yep. I get migraines, just sometimes they’re “migraines” in my uterus instead of migraines my head. My overwhelmingly male workplace doesn’t need to know which is afflicting me on any given day. (From experience the ones that push for details go green when I proceed to give them the *full* details in *all* their technicolor glory… well they asked for it.)
puzzld* February 21, 2018 at 3:10 pm This is fascinating. As we are dealing with something just the opposite. My mother has been a full time wheelchair user for 10 years now. (MS) She progressed from using a cane, to a walker, to the chair sometimes being able to transfer herself, to having to be lifted into the chair. She can’t stand or even shift her foot. She does have the use of her hands, one more than the other. The interesting thing is she believes she can walk. She’ll tell me she walked to the kitchen and put soup on, but needs me to turn the fire off. She’s entirely sane and sensible about most of life, but absolutely believes she can walk, just, not right now. It’s mind blowing. But I can certainly understand how Drew can believe in his disablitly. Also, anyone who’s ever had to deal with a wheel chair first or second hand must now how far it is from being “the easy way”. I’ve used a wheel chair for a couple of hours at different times as part of the caregiver sessions the therapist does… ain’t nothing easy about it.
Triple Anon* February 22, 2018 at 9:52 am Adjusting to a mobility impairment is a mindfork. I have one that comes and goes. It is really weird. I’m often tempted to identify with one state or the other (no impairment or consistently unable to do XYZ). But then I would be misrepresenting myself. People deal with things in odd ways sometimes. Losing mobility can come with a greiving process. And, yeah, mobility aids aren’t easy to use. They tend to cause other physical problems. It’s sort of like being on a medication – it solves one problem but has side effects.
KayEss* February 21, 2018 at 3:19 pm A lot of the reactions to this make me so… I don’t know, sad? Because we’re coming at it in a culture and with an assumption that “accommodations” are a grudgingly-provided deviation from the “norm” that cause the provider hardship and are therefore a limited resource to be doled out only to the most deserving, when they really needn’t be.
Countess Boochie Flagrante* February 21, 2018 at 3:20 pm Yeah, agreed. The grudging attitude so many people have toward disability accommodations really saddens me.
Lil Fidget* February 21, 2018 at 3:59 pm Yeah I think this is something everybody needs to sit with a little. I said above that it’s similar to have most people are raised in systems that are racist, and benefited from those, and probably absorbed racist beliefs despite the best of intentions: ableism is the same. I suspect most of us struggle with wanting things to be easier – not in a way that’s necessarily legitimate, just in an emotional, visceral reactions way. All of us want to be able to rest when we’re tired, or have a reduced work schedule, or not have to wait in line – but we’re not allowed to, we have to maintain external standards that don’t conform with what we want / need. So sometimes there’s an instinctive, childish *that’s not fair!* reaction when we see somebody else getting something we would want. I think that’s why it’s harder in situations as described in these comments, where the disability is invisible, or it comes and goes. Now, I think we need to overcome this lizard-brain reaction and realize that people are coming from different places, have different challenges, and that people’s struggles are often deeply unequal. But sometimes we have to sit with this feeling for a minute and say, “yes, I’m having these feelings, but that doesn’t mean X doesn’t deserve Y or that X getting Y is keeping me from getting it, or that there’s anything unfair going on here.”
Sometimes yes, sometimes no* February 21, 2018 at 4:33 pm I agree with this (and the top comment as well). That some comments here have implied or literally said that Drew is reaping the benefits of a paraplegic (!) without any disability of his own (!!) really hammered that home. The crabs in a bucket mentality is really destructive. How about instead of pulling someone down when it looks like they’re getting ahead, or stepping on them when they’re already down just so we can get ahead, we help each other up?
Observer* February 21, 2018 at 6:17 pm What makes this so much sadder and odder is that Drew is actually not even asking the company for accommodations. He does his work well and is apparently a productive employee. And, he’s not taking “the easy way”, whatever else is happening. And I’m betting that all of the stuff he has – wheelchair and car with hand controls- all came out of his own pocket, because the insurance almost certainly would NOT pay for it. None of this stuff is cheap. I have no idea what his diagnosis is, or even if he HAS a diagnosis. But, I have no doubt that he has a real mental illness – his behavior is simply out of his own self interst.
KayEss* February 21, 2018 at 6:47 pm To elaborate a bit: I don’t envy OP having to deal with this situation, because the reality is that it’s going to make people look at Drew differently. Even if none of the accommodations made by the office are onerous or costly, his colleagues have probably done things like fetch him a coffee or a document from the printer–not because he asked them to or HR has demanded it, but because they’re decent human beings who understand that it’s easier to navigate the office area walking than it is using a wheelchair. Even if everyone maintains the best intentions of treating Drew well, there are going to be complicated feelings going forward because humans are complicated. I hope OP, HR, and Drew’s colleagues can maintain compassion, and reach an understanding that avoids bitterness. I’m just really sad because I want a world where accessible design is so universal that using a wheelchair is like wearing glasses–utterly negligible in terms of interfering with navigating the world and day-to-day tasks, to the point that people can have them for no other reason than they feel like it–and situations like this and the way people react to them remind me of how far away that is. If every apartment, office, desk setup, bathroom, process, etc. had accessibility baked in at a such level that it wasn’t even questioned… but unfortunately our society worships the capitalist god of efficiency, instead. (I wanted glasses so badly as a kid, even as eye exam after eye exam came back with no problems. When I found out you could get them with non-corrective lenses, I resolved to do so once I was an independent adult. Turns out independent adult me is too lazy to follow up, and still has 20/20 vision. But I still could if I decided to.)
Birch* February 22, 2018 at 7:13 am I think it’s a really universal thing to just want to be noticed by others and get attention, which is where I think a lot of that childhood envy comes from. Most kids want a broken arm to get a cast at some point in their life, but once an illness or injury happens, we get over that because we realize it’s not actually fun to have your life made harder. I have to admit that I get very slightly annoyed when people who don’t need them wear glasses (really, only if they make a big deal out of it). It strikes home because as you said, corrective lenses are probably the easiest accommodation to have in your life, and yet they are actually a huge pain if you really need them. I literally cannot get out of bed without glasses–I can’t see faces, I can’t read, I can’t walk to the bathroom. Even with lenses, my night vision is terrible. I pretty much always wear contacts because glasses don’t work in the rain, slip down my nose, I can’t lie down sideways, they have an awful glare, they don’t give me accurate depth perception, and I have no peripheral vision at all. The few times something has happened–my glasses broke, or I forgot to bring a spare and lost a contact, I’ve been utterly debilitated and had to go home in the middle of work etc. Not everyone’s issues with corrective lenses are so bad, but I’ve had tons of people tell me “oh you wouldn’t believe, I have such terrible eyes” and they are a fraction of my diopter correction–you just can’t tell by looking at someone what they’re dealing with, exactly how bad it is, or how it affects their individual life, even if there is an external sign that something’s wrong. Which is my point–I totally agree with you that we should have more compassion in general, and more accommodation, and also that there will be really complicated human feelings going on when these things are discussed in the workplace. I guess I think it’s similar to the idea of, how sick do you have to be to “deserve” to call off work? Does it make you a bad person for calling in when someone else comes to work with an objectively(?) worse problem? I don’t think these things can be judged, so the only answer is just to trust the person telling you x is wrong with them, so they need y. We are not all capable of living life the same way, and what is debilitating for one person may be workable for someone else, but that’s not a quality judgment on either of them. Anyway, thanks for these thoughts!
IForgetWhatNameIUsedBefore* February 22, 2018 at 8:01 am I am mega short sighted, like you. Without glasses or contacts, I can see about six inches. I’ve had all the glasses struggles too, and am baffled when people want to wear them for fun or fashion. But I don’t really *care* if they want to wear them. None of my business!
Countess Boochie Flagrante* February 23, 2018 at 9:10 am Personally (as another glasses-wearer) I’m pretty understanding of people who wear them as fashion. My visual issues are a pain in the butt (wildly different prescriptions means that I essentially have a sort of double-vision without correction) but I’ve always thought I looked better with glasses than without, and I can understand others feeling the same.
Stellaaaaa* February 21, 2018 at 3:33 pm This isn’t just about Drew and OP’s manner of processing the information. It’s possible that Drew’s coworkers have been going out if their way to assist him or even unofficially take on some of his duties because they assume he’s being honest about having a physical disability. It’s going to be awful for morale if these employees found out that they’d been doung extra work to help someone who was perfectly capable of doing it himself. There’s an impact on other people beyond the question of whether the entity of the company provides accommodations or decides to honor Drew’s belief in his physical disability. OP can’t let employees think that they need to keep helping him if that’s what they’re currently doing. Has anyone ever helped Drew push his wheelchair through a rainstorm? That can’t be allowed to happen again.
LawBee* February 21, 2018 at 4:08 pm You are making a ton of unfair assumptions. There’s nothing in the letter to indicate that Drew’s coworkers have been taking on any of his work – as a matter of fact, the OP explicitly states that the only accommodation he asked for was a parking space. (And the pushing the chair through the rainstorm is particularly baffling – so what?) “That can’t be allowed to happen again.” <– this is too far. One cannot "out" a person's mental illness (if that is what's going on) and one cannot dictate how individuals treat their illnesses of any sort.
anon4now* February 21, 2018 at 4:15 pm So faking a physical handicap is okay and totally not offensive, as long as said individual is mentally ill enough to believe/want/desire it? And a doctor cosigns on this? And the only “treatment” is to project the physical illness (and all the benefits therein) so said individual can maintain this mental disorder. And no one should question this? Or be angry at it? No one is saying one parking space is a some crazy accommodation. But when the accommodation happens because a mentally ill employee wants it, not because they physically need it…it defeats the purpose and can be highly offensive to actually physically disabled people.
Countess Boochie Flagrante* February 21, 2018 at 4:19 pm Have you missed where a bunch of PWD on this post have said they aren’t offended?
anon4now* February 21, 2018 at 4:29 pm I’m not trying to be antagonistic, but the readers on this site with disabilities do not make up the majority of disabled folks in the world. I’m not sure we can use those comments as inference that a paralyzed person wouldn’t be offended by a able-bodied person using a wheelchair in the same capacity they are.
Countess Boochie Flagrante* February 21, 2018 at 4:35 pm Yeah, but you are talking about the “benefits” of being disabled, which says to me that you’re not a great one to be speaking for PWD.
anon4now* February 21, 2018 at 4:41 pm ? I spoke of the “benefit” Drew is using, even though he doesn’t need it (a close up parking space) up above in another thread. I have not mentioned “benefits” in this thread. I’m also not trying to speak for all people with disabilities, as I have one myself.
Loose Seal* February 21, 2018 at 6:17 pm You may not be trying to speak for all people with disabilities but you’re doing a great job of minimizing the statements of those of us with disabilities commenting here. Also, really you have a disability? I find that hard to believe given your behavior. What disability is it? How long ago were you diagnosed? Was it by a real doctor or just something you read about on the internet? Do you use accommodations or assistive devices? No, I don’t expect you to answer those questions as no one should ever have to (except to their treatment providers). I’m just hoping you’ll see that asking you to prove your disability as an entry to comment is as bizarre as asking Drew to prove his.
anon4now* February 22, 2018 at 4:57 pm Loose Seal- I really don’t understand your comment (or why it’s not being seen as a violation of Alison’s commenting rules). You literally say in your comment that I’m not trying to speak for PWD here, then you actually say I’m minimizing every PWDs statements here (in turn, you are saying you speak for all disabled people here- you don’t). I also never asked Drew to provide or prove any disability. My comments are reflective of what I believe from what I read. We are allowed to disagree and have different opinions. I’m not really sure how to address the rest of your comment.
LawBee* February 21, 2018 at 4:46 pm @anon4now – I guess I keep coming back to my earlier question – what would you have him do? If therapy and meds don’t work (which they don’t always, and it is never an immediate fix), and what he is doing now is allowing him to live a functional and happy life, he is productive at work, and not asking for anything at all beyond a parking space, would you really rather that he stop? Does his ability to function and be happy with himself not matter? And knowing that there are people who *have* self-amputated or self-blinded because of this illness – would that be preferable to you? Because then he would be “actually physically disabled”. Most doctors won’t do voluntary amputations/paralysis/etc., so – be miserable on the daily, or do what you need to do to be happy? Happiness over suffering.
Jaguar* February 21, 2018 at 5:03 pm What’s the consequence of being offended? People have to change their behaviour to suit that? People get offended when I say “God damnit.” People get offended when others eat at Chick-Fil-A or buy Nestle products. You can be offended, and certainly Drew can be made aware that using a wheelchair when he doesn’t need it will offend people, but being offended doesn’t necessitate any correction.
LawBee* February 21, 2018 at 4:29 pm I don’t think it is my place to question how someone treats their illness, and I’m DYING to know what benefits you think Drew’s getting – seeing as many PWD above have talked about how hard it is to navigate the world in a wheelchair. Literally the only “benefit” we know about is a closer parking space. Oh, the horror. But if you don’t believe that mental illness can be a disability worthy of accommodation… well. ok, then.
Zillah* February 21, 2018 at 5:07 pm This. The existence of one or two small-but-visible “perks” do not negate the mountain of barriers that people with limited mobility face. Literally no one would choose to use a wheelchair just for a closer parking space, because the closer parking space doesn’t balance out literally everything else.
Lissa* February 21, 2018 at 5:33 pm Yeah, here I just feel like mental illness is the WAY more likely explanation that that he has decided to live his life in a way that is majorly inconveniencing him, potentially offending people, very likely having physical negative consequences for him (muscle atrophy is no joke) in exchange for…a parking spot?
Ask a Manager* Post authorFebruary 21, 2018 at 5:41 pm Yeah, it’s the far, far more likelier explanation.
Becky* February 21, 2018 at 4:47 pm What extra work do you think people have been doing for Drew? He has not asked for any accommodation and so if people in the work place have been doing extra work for him out of sympathy that he is disabled, then it is misplaced paternalism. I would be offended if I found out people in the office were silently taking on extra work because they assumed that because I was disabled I couldn’t do the work I was assigned, it is infantilizing and inappropriate.
Tea* February 21, 2018 at 4:09 pm There are a lot of even handed and compassionate comments about mental illness and the important of but I have to admit, my first reaction, and lingering feeling is still… some degree of anger. What is an acceptable level of “trans-something” and what is appropriation? These definitions change over time, of course, and also in reaction to oppression and power. What is a matter of identity and what is a matter of a member of the majority group claiming and co-opting the identity of a minority group like a mask, one that can be put on or removed at any time. But honestly, I’m also reminded of Rachel Dolezal, and the real anger and hurt from the black community when she was exposed. Was Rachel “taking something away” from black people by pretending she was black for all those years? Making a mockery of their lived experiences? Is being “transracial” an identity that is fair for her to lay claim to, or would mental illness excuse her actions? Could she/can Drew help what they did and how they feel? Maybe, maybe not. But I can’t deny that it still leaves a bad taste in my mouth.
Leatherwings* February 21, 2018 at 4:53 pm Well, I think you can acknowledge mental illness in this case without it having to be transableism. IMO Rachel Dolezal is particularly despicable because she benefitted professionally and financially from her lie (not to mention the fake death threats she sent herself); and there’s not a documented mental disorder for her ish the same way that BIID is documented (like, people with this disorder cut off limbs. It may not be fully defined as a disorder, but I think there’s standing to acknowledge that it’s real if-complicated). So I think these conversations are interesting and relevant, but I don’t think they’re a pre-requisite to saying “Drew seems like he’s really sick and we don’t have to think he’s despicable and disgracing and mocking all disabled people with his illness” you know?
Countess Boochie Flagrante* February 21, 2018 at 5:00 pm Yeah, the fake death threats were a really amazing touch on that particular clusterfudge. And it was a pretty strong indicator that she was doing this for the attention points rather than for any desire to simply live in a body that suited her better.
Turboencabulator Engineer* February 21, 2018 at 6:38 pm The two things aren’t mutually exclusive. A person can have a totally legitimate illness and still be the type of asshole who sends themselves fake death threats.
Zillah* February 21, 2018 at 5:02 pm I think another distinction between Rachel Dolezal is that she explicitly made herself a spokesperson for African Americans under false pretenses. It doesn’t seem like Drew is trying to do that – it seems like Drew is just living his life.
Leatherwings* February 21, 2018 at 5:04 pm Yep exactly, she professionally spoke for black people as a (supposedly) black woman. If Drew were giving speeches on ableism or seeking leadership in organizations that supported the issue based on his disability status this would be a different conversation on my end. But OP specifically says multiple times that he doesn’t mention it or talk about it.
Tea* February 21, 2018 at 5:44 pm That’s kind of the thing though– where’s the limit on whether people treat him and his perception of his disability as “legitimate?” Always and forever? Only if he requests further, more difficult to account for accommodations? Until he tries to speak up as a member of the disabled community? To be clear, this is purely conjecture and I actively don’t want to make any assumptions or stretches about what Drew does, because OP makes it sound like he’s handling this about as well and considerately as any person in this kind of situation could handle it. But I think it is unrealistic and also honestly a little offensive for people, in general, to say that he should be treated exactly the same as he would if he were really paraplegic, because that’s just not true.
Zillah* February 21, 2018 at 6:22 pm Since we’re moving to a broader level of conjecture, I’ll say this: I think the cultural norms surrounding the way we treat disability – physical and mental, visible and invisible – are fundamentally toxic and harmful to everyone. There’s an artificial but widely accepted cultural narrative that casts any and all accommodations as a limited resource rather than an integral part of a functional society, and that’s often what the tendency to judge the “legitimacy” of disabilities is based on. It’s ridiculous that the onus for allocating resources falls on people to police themselves and each other about whether or not their disabilities are “worthy” of accommodation rather than on broader organizations and policies to take comparatively small actions to make sure that people’s needs are met. The former is almost universally the case (to varying extents), and it creates enormous and unnecessary barriers for people with disabilities to jump through when being disabled often already means that they’re perpetually climbing uphill. We shouldn’t be coming at this from the perspective of, “What’s the maximum you can do?” We should be coming at this from the perspective of, “What will allow you to perform at your maximum ability?” For Drew specifically: it doesn’t seem like he’s hurting anyone, and it also seems far more likely that he has a serious mental illness than that he’s just using a wheelchair every day for the lolz. The only accommodation he has is a parking space, and he may not be able to get out of his van without that parking space. There’s no indication that the company is short of accessible spots in the letter, and if the company doesn’t have enough spaces for people who need that extra space/closeness, they need to find a solution that isn’t “fill up all of our accessible spots and hope no one breaks their leg.” Policing whether or not Drew’s disability is legitimate when he is in a wheelchair all the time sets a really awful precedent, especially since there seems to be very minimal impact on anyone else. I just don’t see what the OP’s company is losing by giving Drew these very minor accommodations.
Tea* February 21, 2018 at 5:32 pm There are a lot of people rightfully(!!) protesting disability accommodations as an entitlement or a “benefit” of being disabled– it’s intended to be something to make even the playing field, like affirmative action, something intended to help correct many years of harmful oppression. But you can’t deny that Rachel Dolezal benefited professionally and economically from assuming a black identity, and that people can and do lay claim to identities they aren’t part of in order to reap the perceived benefits, or in order to be heard in a way they wouldn’t be otherwise. I think that’s there’s a lot of discomfort there based, rightly or wrongly, on the question of “Are you really who you say you are?” And most of the time, the answer is “Yes! Please do believe people when they say they’re of X ethnicity, Y gender, have Z illness, and treat them accordingly” and it is actively harmful when people feel the need to interrogate people on their identity. But the flip side of that means that people have to be truthful when they describe themselves (overcaffeinatedandqueer above describes an instance where people lay claim to identities they’re not part of and how that impacts them), and also on the basis that identity is a clear-cut matter. I’m not saying that Drew is some kind of despicable person capitalizing on his lies, and yes it’s very likely that he does suffer from a debilitating mental illness, but also… he’s Not paraplegic. That’s a fact. Where does it cross the line from his own personal mental matters into mockery and appropriation? If Drew speaks up about accommodations that could be made to the office buildings to better suit people with wheelchairs– maybe that’s a fair and helpful suggestion regardless of the validity of his disability. Or maybe it’s actually completely off base and has no reflection on the experiences of people who actually are disabled in the way that he claims to be, because he’s not disabled and (as he himself has demonstrated), doesn’t actually need the wheelchair. Similarly, if Rachel Dolezal speaks up about the racism faced by black women, maybe her experience holds some validity… and also, very possibly not.
Zillah* February 21, 2018 at 6:44 pm I think that “mockery” in particular carries really specific undertones of intent, and that it’s important to use it carefully. On a broader level, though, I agree that it’s a tricky line to walk, and I think that a lot of it comes down to whether one feels that there’s a greater moral imperative behind stopping anyone from exploiting the system or making sure that people who need the system can access it. We can (and presumably do!) want both, but ultimately, we have to come down on one side or the other, and there are a lot of ways in which those sides are mutually exclusive. I would rather see two people purposefully exploit the system to get accommodations they don’t need than see two people who need those accommodations not get them, in part because I think that the latter is the far more common scenario. Others disagree. Regardless, I don’t think that companies typically provide accommodations that require significant modifications on existing environments without doing any research. Ultimately, the onus is on the company to evaluate requests fairly and responsibly, which would be true no matter why someone was in a wheelchair. I think that the most productive way to deal with situations like this is to look at impact as well as our own subjective moral sentiments. If there are competing interests in which someone is definitely going to be harmed, it becomes trickier, but if it’s a situation in which no one is facing substantive harm, I feel like there’s a limit to how much outrage it’s reasonable to feel.
Tea* February 21, 2018 at 7:14 pm I really agree with you on the rest of your response and it also gives me a lot to think about in terms of accommodation not being a zero sum game, and what we can all as a business/society can do to make accommodations seem like the standard everyday, not something begrudgingly afforded to those who are “deserving.” One thing is that I’m not so sure about is how much outrage is “reasonable” in a situation like this. I don’t think that mockery has to be intentional to be felt or to cause harm. I think someone deliberately choosing to “put on” an identity has a very real possibility of coming across as mockery to people who actually belong to that group, no matter the reason behind it. Someone who is paraplegic doesn’t have the luxury of just getting up from their wheelchair and participating in a documentary about it. A hypochrondriac who thinks that they have cancer doesn’t have to go to radiation. An Asian person doesn’t have the ability to wipe away their face and be free of racist assumptions or treatment the way someone doing yellowface does, no matter how they ~really feel they’re Chinese on the inside~ or whatever (an actual real thing I have encountered.) It’s the privilege to do so that feels like mockery, not necessarily the intent, because the end consequence is the sense that “I can put on and take off your identity like an old coat, and ape the life you live.” That’s not a real world impact, that’s not accommodation that can be requested or denied, but it is a real feeling that’s shapes people’s lives and the ways they respond to people like Drew.
A Wheelchair User* February 22, 2018 at 8:14 am Thank you for this comment. This is an excellent summation of why this upsets me (and why it also bothers me that people keep saying it’s unreasonable or unfair for people like me to feel upset by it).
IForgetWhatNameIUsedBefore* February 22, 2018 at 8:13 am I think one of the main problems here is also the over-arching societal myth that there is a huge amount of disability (or welfare) fraud going on at all times and it’s a gigantic problem that needs “measures” to keep the undeserving from “getting any.” When in reality, benefits fraud is extraordinarily low, and the rewards quite few.
Countess Boochie Flagrante* February 21, 2018 at 4:58 pm A lot of the issue with Rachel Dolezal was that she took major leadership roles in black activism — so it wasn’t just a matter of her quietly living as a black person (which probably no one would have really cared that much about) but that she was trying to make her voice heard over and above actual black people.
Tea* February 21, 2018 at 5:59 pm Rachel Dolezal’s lying and public position definitely made the whole situation blow up enormously, but would it have been okay, not racist, or not offensive for Rachel Dolezal to have gone on living her life quietly as a white woman pretending to be black? Honestly… I don’t think so.
Zillah* February 21, 2018 at 7:04 pm I agree with you, though I’m struggling to articulate why. I think that part of why I’m more sympathetic to Drew is that disability isn’t necessarily something you’re born with. As I’ve mentioned elsewhere in the comments on this letter, my mother has ALS – but she didn’t have ALS ten years ago. I’m bipolar, but I wasn’t having wild mood swings when I was eight. There are obviously many disabilities that one is born with, but Drew isn’t claiming to have any of those, nor does he seem to be portraying himself as someone who grew up facing barriers than he didn’t actually face. If either of those things were true, I’d see this as much more analogous to the Rachel Dolezal situation.
Oliver* February 22, 2018 at 9:07 am I agree. This is a sticky distinction to articulate, but I think there’s a difference between claiming an identity that is mostly to do with your body/person expression vs. claiming a cultural experience you didn’t have. Drew isn’t saying he’s Disabled, he’s saying he feels a strong need to not use his legs, which in our society falls under the umbrella of disability. He’s not trying to overtake conversations about disability rights or, as Zillah said, claiming to have experiences he didn’t. With Dolezal, she was really into the idea of being Black in America in the 21st Century, and had sort of stereotypical idea of what that entails. She was trying to take a culture that she wasn’t a part of and didn’t actually understand.
Student* February 21, 2018 at 7:59 pm An alcoholic also has a legitimate mental health problem. That doesn’t mean you provide an alcoholic with special accommodations to drink at work. I share your feelings on this. I don’t think it’s “wrong” to both (1) accept this type of behavior as a legitimate mental illness and simultaneously (2) reject that his wheelchair use is a reasonable accommodation for his illness; it’s instead a manifestation of his illness. There’s a big difference between people who have non-binary gender/sex self-identification, and things like this; they shouldn’t be conflated. A huge part of identifying this type of issue as a mental illness and NOT labeling things like trans people and gay people as mentally ill is the recognition that trans folks and gay folks are not hurting anyone, including themselves; whereas mentally ill people are suffering and/or harming others. If Drew just loved using a wheel chair and never represented himself to others falsely as paraplegic, that’d be quirky instead of a mental illness – but that’s not what is going on. This also reminds me of the letter where an obsessive-compulsive co-worker wanted all the other employees to line up by gender at a bus stop after work. Letter: https://www.askamanager.org/2017/01/our-company-is-making-us-do-unreasonable-things-to-accommodate-a-coworkers-mental-health.html The big difference is that Drew is generally not asking management for anything unusual at work, so you don’t really need to do anything. You don’t need to pretend it’s a physical disability when it’s really a mental illness, though. You do need to tell your employees that you expect them to treat Drew respectfully and professionally if they gossip about him – just like any other employee, but it sounds like that’s not currently an issue. An exception would be the reserved parking spot – if his doctor won’t sign off that he needs special parking, then he doesn’t need special parking, and giving him special parking is indulging his illness rather than accommodating it. It’s important to be compassionate to mentally ill people. Pretending to believe in their delusions created by their mental illness is not compassionate; it’s a cop-out from a hard and awkward conversation.
IForgetWhatNameIUsedBefore* February 22, 2018 at 8:22 am “Pretending to believe in their delusions created by their mental illness is not compassionate; it’s a cop-out from a hard and awkward conversation.” Do you really think mental illness- or it’s symptoms- can be cured or mitigated by “a hard and awkward conversation”?!! And unless you are a psychiatric/neurological health care professional, and familiar with this disorder, AND personally treating Drew? Then you don’t get to “reject that his wheelchair use is a reasonable accommodation for his illness”. You don’t actually have any idea whether it is or not! And it’s not an “accommodation”, it’s how he lives his life!
Observer* February 22, 2018 at 9:05 pm You’re making a distinction without a difference. His disability is not papraplegia, it’s a mental illness whose name we don’t know. How do you know that allowing him the use of the spot is not an accommodation. As for your claim that people with mental illness are harming others is both immensely offensive and simply untrue. Some people with mental illness harm others, others don’t. The case with the worker who had OCD is totally not relevant here. Not only were the accommodations not reasonable, they were not even appropriate to the condition! Here, despite your certainty, we have no idea of whether the accommodation is appropriate, but we DO know that it’s in the reasonable range.
Emi.* February 21, 2018 at 4:41 pm I think it’s really, really weird that Alison said “based on a quick Google search, it seems plausible that Drew does have a medical condition” and now most of the comments are working from the assumption that Drew definitely, totally does have that particular (proposed and not-well-understood) mental disorder, and that it definitely has a certain etiology.
Zillah* February 21, 2018 at 4:57 pm I don’t think it’s a huge leap – it seems comparable to me to an OP saying “I saw my coworker in this documentary about people who get really sad without there being a reason for it” and us saying “okay, so a documentary about depression.” I’m not into armchair diagnoses, but the subtext is kind of text here.
Sylvan* February 21, 2018 at 5:00 pm If the first couple of comments take a “side,” most of the rest follow their lead. My thoughts on the subject can best be summarized as “whut” and I see this guy as fairly similar to the hypochondriac guy in another letter – that is, possibly (in the hypochondriac’s case, definitely) suffering with some real issue, which I sympathize with, but… I’m just not seeing how others in the workplace could be expected to react.
Betsy* February 22, 2018 at 7:34 am I agree that it’s odd that the commenters are acting like it’s certain that he has a mental health issue, and some are getting a little up in arms about it. Even if his behaviour is very unusual, it doesn’t necessarily mean he’d meet the diagnostic criteria for a particular mental illness. I think the advice Alison gave was solid, in case he does in fact, have a mental health issue. But because it didn’t go into much detail, he might not have issues with bodily integrity, and he could be using a wheelchair for all number of reasons. Or he could be malingering– for whatever strange reasons of his own– that’s not outside the realms of possibility.
Safetykats* February 21, 2018 at 5:01 pm Communicating this to HR is definitely the way to go. While the ADA expects that accommodations for straightforward medical conditions – like a disability that necessitates a wheelchair – should be accommodated in a reasonable straightforward manner, there is no part of the ADA that expects you to determine without professional help what kind of accommodation would be reasonable for an emotional or mental illness. Where determining a legitimate impairment and appropriate accommodation requires the services of a medical professional, the employer has the right to require evaluation by a medical professional. You are assuming that the appropriate accommodation is to continue treating him as if he is a paraplegic, but you can’t know that without professional medical input – you can’t even determine without diagnosis whether this is an actual illness. It is not unreasonable to require people asking for a nonstandard accommodation – like a wheelchair accommodation including designated parking as an accommodation for a mental rather than a physical condition – to be evaluated to determine the validity of the claim and the appropriateness of the accommodation. Other commenters are correct in that the potential sticky issue comes when somebody has a documented physical need for the deaignted parking – which could happen any moment, as they will give you a disabled placard for a knee or hip replacement, or a broken leg, or all kinds of things. I had one a number of years ago while recovering from pneumonia; I have a coworker who had one because of a collapsed lung (both of us just unable to walk any distance). If you don’t have multiple disabled parking spots, you will need a formal determination on whether it’s reasonable to continue to provide him with one. Which begs the question – does he have a disabled parking placard? Or is everyone just assuming he is entitled to the spot because of the wheelchair? Typically the state also requires evidence from a medical provider to grant the placard.
suzygreenberg* February 21, 2018 at 5:21 pm Y’all it’s 2018. “Handicapped” is not how you describe a person with disabilities. Words matter. I’m guess there have already been times at the office when people with short term disabilities (post-surgery, broken ankle, what have you) have had to use the second closest parking spot because Doug has the first on reserve. That does not seem right either.
Anamaria* February 21, 2018 at 5:48 pm Ugh, this to me smacks of a Disability-claiming version of Rachel Doleszal. What happens when an actual para/quadriplegic comes to work there and sees this able bodied man rolling around in a wheelchair? I spent quite sometime in one myself until undergoing a series of complex surgeries. I would be deeply offended by this person, as I’m sure a Black person would be to see Rachel Doleszal claiming her spot in their world. This man may have a mental illness, but his behavior in the documentary shows that he KNOWS that he is able-bodied (I think it would be completely different if he actually was not; like if he had a psychological issue that prevented him from walking or hearing or seeing in a way that stemmed from a mental condition (PTSD for example.) It sounds like in this film though, that is NOT the case for this guy. Instead, he demonstrates (a) the conscious knowledge that he is NOT paraplegic, and (b) the ability to walk. Coddling this at risk of offending actual wheelchair-bound people is a crock, in my book. He should definitely not get the parking s[ace at front. That’s not a legit accommodation for mental illness, and he is not physically impaired.
Manders* February 21, 2018 at 6:44 pm I think most wheelchair users are aware that you can’t tell who needs a wheelchair just by eyeballing them, though. Mobility impairments can be weird that way–some people have conditions that go through cycles of being better and worse, some can walk across their bedroom but can’t walk around all day in the office, etc. If Drew hadn’t appeared in the documentary, it’s totally possible that no one would ever have known. The issue is that he’s appeared in a high enough profile documentary that his colleagues are finding it and gossiping about his secret, not that everyone can tell on sight that he has full use of his legs.
Anamaria* February 21, 2018 at 9:37 pm My comments speak to the scenario created AFTER he has since outed himself—a choice he made to tell the world “I’m struggling with mental health issues, but I am not in anyway paraplegic or physically disabled.” I was not suggesting (and in fact would strongly advise against) that any non medical professional is qualified to know about a person’s condition from looking at them. But know people will hear through the grapevine about that film – that’s what I meant. I DO, of course, have sympathy for his mental condition; perhaps I didn’t make that clear enough. But just like a paraplegic with no mental health issues going around claiming (and asking to be treated to reflect) that they are bipolar/schizophrenic/etc. is disingenous, so is a mentally ill person claiming to be paraplegic. At least in my book.
Turboencabulator Engineer* February 21, 2018 at 6:27 pm The answer to let it go seems to rely on two things: a) Drew isn’t requiring or requesting any significant accommodations other than a close parking spot, and b) although Drew does not have a physical need for a wheelchair, there is another kind of disability creating that need. But what if those conditions weren’t met? I have or have had coworkers who have needed (totally justified) accommodations like special office space or allowances to never have to work outside of normal business hours. In this case we’re talking about something that does affect other employees in some way. Someone else (who is at the level that normally gets their own office) doesn’t get one. Someone has to work overnight during an emergency because the original person isn’t able to, etc. Pretty reasonable accommodations, normally. And what if it wasn’t a case of BIID (which this appears to be) but rather someone being deliberately deceptive? For example, if someone received an accommodation to never have to work a particular shift, only to find out that that person actually had a second job during that time period? I bring these up because it sounds like some after suggesting that you should never ever question a disability, even when there’s clear evidence (like the documentary) that all is not as it seems.
Sometimes yes, sometimes no* February 21, 2018 at 7:48 pm You’re asking for another conversation entirely, really. Your caveats in 1) and 2) are in fact the information we have. Everything else is conjecture. Answering “what if” happens when it happens. There’s no sane policy that can speak for all potential outcomes, and humans being humans means no two versions of the “what if” will be the same. There’s no value in questioning disability. At best, you find the one person in a hundred that goes to the bizarre lengths mentioned in some of the assumptions in other comments. At worst, you prevent people with disabilities who have the need for accommodation from asking for it for fear of having to “perform” or disclose more than they’re comfortable with in order to justify their request.
LawBee* February 21, 2018 at 8:33 pm I’m not suggesting one should never question a disability in the workplace. I’m saying it outright. Don’t question someone’s disability especially in the workplace where, if nothing else, doing so could run you afoul of labor laws and the ADA – and that’s not even touching the myriad reasons why it’s a shitty thing to do. I would 100% rather be a company who gave an accommodation to someone who turned out to be duplicitous and fraudulent than make people have to prove anything beyond the minimum required by law. Wouldn’t you? It’s not like there’s a finite number of accommodations allocated to each company. If the company hired seventeen wheelchair-bound employees overnight, accommodations would be found and made for all of them, even if one turned out to be a fraud. Plus, questioning people’s disability is just a shitty thing to do.
Student* February 21, 2018 at 7:21 pm Handicap spots (in the US) have specific laws about them. It’s important to stay in compliance with those laws, along with providing reasonable accommodations to this specific worker. That may mean having a special spot near the door for this co-worker, PLUS separate handicap spots, if Drew’s specific disability does not qualify for a handicap spot (though it certainly might qualify – it’s generally up to his healthcare provider). My employer provides special designated (but non-handicapped) spots near the front doors for pregnant workers who request them, as an example.
Diamond* February 21, 2018 at 7:37 pm Ooh. I think I agree with Alison – he has a mental disorder and the accommodation required is that he uses a wheelchair at work. It’s not affecting his work and the only thing the company has to do is give him the parking space, which is pretty easy to so. If the truth got out though it would become muddier – would the accommodation required then be ‘going along with it?’ Not sure that would be considered a reasonable accommodation.
Sometimes yes, sometimes no* February 21, 2018 at 7:50 pm Should it come to that, I think it would be useful for HR to gather more information. I have a grisly imagination and have conjured pictures of someone with BIID being challenged as not having a “real” disability and that person then taking the steps to acquire it in defense. Other BIID cases have involved intentional blinding, limb removal, etc., as a means to make the outsides match the insides and gain legitimacy. But I wouldn’t assume that’s the case here, anyway.
pcake* February 21, 2018 at 8:35 pm I’ve read a lot of comments but didn’t have time to read them all, and I have a question. I’ve personally known people who were unable to walk at all part of the time for physical reasons. Have we established that Drew isn’t such a person? I don’t know the source or research of the documentary, and it could be faked, give partial information or have some other oddness to it. BTW, I find it remarkable that a documentary such as this one could be made without the knowledge and model releases of the subjects. My mother, in her late ’70s, developed dementia, and when she became angry and argumentative, her doctor gave her an anti-psychotic medication. The morning after she started it, she woke up believing that she had been born handicapped and had never been able to walk. I had to get her a wheelchair, and she never again remembered every being able to walk, although she remembered all sorts of other things. My point is perhaps Drew is on a medication on and off like this.
Temperance* February 27, 2018 at 11:08 am None of that applies here. Drew, in the documentary, identified himself as not being physically disabled, but using a wheelchair. He gave an interview. This wasn’t a sneak attack, he participated fully, etc.
Undine* February 21, 2018 at 9:30 pm There’s a huge difference between “you have a mental illness that prompts you lie about your condition” and “you have an illness where your body is not under your conscious control and does things you don’t want, and doctors have diagnosed it as psychological because they don’t have any better explanation.” In the second case, yes, under certain circumstances the symptoms may relent or lessen for a short period of time, but it doesn’t mean that you can control when or how that happens. Here’s a link that talks about this: https://www.theguardian.com/society/2015/may/16/you-think-im-mad-the-truth-about-psychosomatic-illness
Thursday Next* February 21, 2018 at 10:00 pm This has been a really provocative discussion. I’m grateful to have found an online community that is so reflective and engaged, and challenging. I’m much less angry than I was when I posted my first comment on this letter—I could feel myself mellowing and mulling as I read through the comments over the course of the day. I’ve been given a lot to think about today—thank you!
Former Employee* February 22, 2018 at 1:24 am If Drew truly believed he was paraplegic and needed a wheelchair, why would he participate in a documentary about people who are pretending to have disabilities and why would he be willing to walk around to demonstrate that he actually is not paralyzed and does not need the wheelchair? While Drew has not asked for accommodations, perhaps he gets enough out of this pretense in terms of how he is treated by others that it is worth it to him on that basis alone. I wonder if Drew has a type of Munchhausen’s I also wonder if he has a separate personal life that looks more like the Drew in the film, i.e., where he walks around, participates in activities where he is not in the wheelchair, etc.
soon 2be former fed* February 22, 2018 at 9:00 am I think a conversation with Drew is warranted about why he participated in the documentary. Otherwise, MYOB is in order. I was once confronted by a busybody questioning my use of a handicapped parking space despite my placard. It didn’t go well for her, as I don’t have to document my low heart function to random strangers. The nerve of some people.
Wintermute* February 22, 2018 at 6:36 am I don’t get people… I really done. There is absolutely zero need for people to gate-keep, ever, period, end of story. The idea that he’s somehow “getting one over on people” and speculations about what benefit he might be getting he’s not entitled to are just insane to me! It’s none of anyone’s business, if he has a disabled placard then you are legally obliged to treat him like you would anyone else with a legal handicapped parking designation. If he doesn’t then your treatment of him says more about you than it does about him. We should be generous in all our dealings with people, and give people the benefit of doubt. If that means the occasional person might cop a minor tangential benefit they’re not entitled to is that really so bad? Is MORE compassion in the world a terrible tragedy that must be avoided at all costs? I say leave it be, OP, and if any of your employees start any drama about it treat it the same way you would any other case of hostility towards an employee with a disability, it doesn’t matter if the disease is of the bones or the brain the end result is the same.
Shay* February 22, 2018 at 7:53 am I forget what the disability Drew actually has is called, but I met someone with it. I’m fine with the disorder itself, but this person called it, “trans-able”. I am trans and disabled. NOPE NOPE NOPE NOPE. I’m also not sure how I feel about people with this disorders competing with “actually disabled” people for accessibility devices being provided by non profits.
Countess Boochie Flagrante* February 23, 2018 at 11:02 am Yeah, “trans-abled” is a really not-good way to frame it. BIID is its own thing, it’s different from being transgender, and people who try to claim that ‘transracial’ means believing you’re supposed to be another race are just wrong. (Transracial is a real thing, but it’s a term for people who have been raised by families of a different race, so that their acculturation is at odds with their appearance. NOT Rachel Dolezal.)
Zuppa da Clams* February 22, 2018 at 9:47 am Man, I wish I got on this yesterday. I personally suffer from a personality disorder and see a Cognitive Behavioral therapist, so while I understand this guy has a mental health issue that should be treated delicately, like all mental health issues, there is a certain amount of enabling that prevents someone from improving their health. For me, it was slacking off on my medication and not going to therapy and my family/friends just tiptoeing around me, not wanting to upset me, AND I was diagnosed, me living in this sort of, “Well, I’m sick, this is the way I AM,” mentality. Everything bad just happened to me too. Then I hit a sort of bottom, like an addict, and finally committed to my medication and therapy. And finding the right form of therapy helped me realize that it wasn’t things weren’t happening TO me, I was making them happen by not effectively committing to treating my illness-I was indulging behavior, not trying to learn effective ways to stop it. LONG STORY SHORT-I just hope Drew’s lifestyle is part of his treatment-like this is how they’re managing it while he is on the road to improving. Not just his own personal way of dealing with it. Because if it’s the latter case, that’s enabling a sickness. I know some people on the board are like, okay, well he DOES have a disability. And he does! But that doesn’t mean he should be indulged forever, he needs help managing this. I’m sure he would love to be totally at home in his own body and not have to use the accommodations. And for practical reasons, eventually, you will have a physically disabled person who really needs those for themselves. Drew has a great chance of being treated, but many physically disabled people do not.
KellyK* February 22, 2018 at 10:36 am While all of that is true, it’s not his employer’s or his coworkers’ job to dictate what treatments are appropriate for him or to decide that he needs to walk at work because “letting” him use his wheelchair is “indulging” him. That’s a conversation for his medical professionals and maybe extremely close friends and family to be having, and his coworkers need to stay completely out of it.
Mimmy* February 22, 2018 at 11:05 am This is an intriguing post! Since he’s not calling attention to his disability, it might be best hold off on saying anything to him or to HR since you don’t know the circumstances. Drew’s presence in this documentary isn’t enough proof that he is feigning his disability; other posters above suggest that documentaries may not be as honest as you’d think, which is an interesting and valid point. The only thing that worries me is the parking space. He does have the right under the ADA to use it, and he should be allowed to continue using it. HOWEVER, if that is the only available accessible parking space, and another individual comes in who also says they need such a space, then that might be the time to check with HR for guidance. OP, please update us if anything comes out of this!
Sometimes yes, sometimes no* February 22, 2018 at 1:04 pm Your (very kind and thoughtful) response is enough evidence that LW *should* go to HR. Here are a few of the flags: – “not calling attention to his disability… Drew’s presence in this documentary” [several commenters have argued that is indeed calling attention to his disability already] – “feigning his disability” [you may not mean it this way, but the thought that the condition mentioned in the documentary is any less of a disability than the one he’s presenting is problematic] – the whole parking space thing [you are correct that such a conflict would then require HR guidance, but the “HOWEVER” in this context implies that you’ve brought it up because his entitlement to it is in question just because someone else asked] You are supportive and I do not at all doubt that! When even someone supportive is still on the edge, though, I think it’s time to loop in HR.
a-no* February 22, 2018 at 12:04 pm Alison’s advice is pretty spot on, except I would push to definitely contact a lawyer – not maybe. I don’t think you have any other choice but to talk to HR about this. The reason being for taking it seriously, is that when ‘tans-abled’ was first in the news a few years ago people were up in arms. Before it was realized to be an actual condition, there was threats of violence, small attacks and verbal abuse towards people who identified as trans-abled. A lot of the general public was very very offended that someone would willingly harm themselves to live like people had no choice to live like. There are still current articles (Feb 10 2018) that are arguing that these people are liars and lazy among the nicer things said, as well as arguing trans-abled is the same ‘ridiculous wanting’* as being trans-species (*quoted, not my words!!). There are articles everywhere about actual BIID versus if it’s just attention seeking. People are very very divided on the existence of BIID and there is no way to know how anyone in your office feels about this. This is one of those things that you just don’t know how big of blow out it could be so better get HR prepared for dooms-day level and hope if it does come up, it’s just minor blip.
Shay* February 22, 2018 at 1:14 pm I really should stop reading the comments. I know the connection between transgender and “trans able” is easy but WOW like stop. Firstly BIID can and does persist after “treatment” such as amputation or blinding the patient. Gender, disability, and race are all social constructs but they are different constructs and the internal understanding of them is different. Primarily, gender is an internal perception. Disability is absolutely not. Race is a little of both. But we will need to not compare tansgender experiences to these sever mental illnesses that incline people to seriously harm themselves in these ways. Like, I am surprised that cisgender commentators are making this connection without seeing how incredibly gross it is.
a-no* February 22, 2018 at 3:29 pm “We define transability as the desire or the need for a person identified as able-bodied by other people to transform his or her body to obtain a physical impairment,” says Alexandre Baril, a Quebec born academic There is a fair amount of traction of LGBQT groups trying to fight the use of ‘trans-abled’ but for now, there is no other name. Personally, I think it really takes away from the struggle and the real strides the trans-gendered communities have made in recent years but that unfortunately is the name they’ve chosen.
a-no* February 22, 2018 at 3:29 pm that wasn’t all supposed to be in italics.. just the quote at the top!
Triple Anon* February 22, 2018 at 5:27 pm Yeah. It’s clearly different because there is evidence that being transgender is a neurological phenomenon. Neurological gender differences are a generalization. There is a lot of overlap. Just like you can say men are generally taller, you can say that some brain structures are bigger in one gender than the other. It’s a slight yet consistent average difference. And studies show that people who identify as transgender tend to have brain anatomy more similar to the average for the gender opposite that of their body. As far as I know, there isn’t anything analogous to explain what people are calling trans-ableism. But I’d like to hear what these people have to say. Maybe there’s more to it than I would have thought of. Although I think it’s safe to say it shouldn’t be compared to being transgender.
Mad Baggins* February 23, 2018 at 12:26 am I agree that it’s tough to grapple with the idea of “when does someone REALLY BELONG to a category when the rules of the category are arbitrary anyway”. I think some of the difference lies in why someone wants to be in that category–do they want to connect with others like them or do they want attention and pity? With that white lady, she knew she was an outsider to black/African American culture. She knew she wasn’t black and when she developed an interest in black culture later in life, instead of doing the hard work of being an outsider (and having to confront her own biases as a white person and questioning her own privilege), she thought it would be easier to just fake being an insider. I think it’s kind of like in The Office (US) when Michael burns his foot and calls himself disabled while dismissing the real experience of someone in a wheelchair. He just wanted attention and pity, not to understand and connect. That’s the litmus test I use, but I agree that ultimately it may not be my (or any one person’s) decision about who “belongs” or does not.
Mad Baggins* February 23, 2018 at 12:34 am Woops, this should have been in response to the thread started by Bend & Snap above.
Omne* February 23, 2018 at 4:32 pm Late but one thing that comes to mind, at least at some jobs not on a first floor, is what happens in an emergency such as a fire? Would Drew be willing to evacuate down a stairwell on his own if necessary? The alternative here would be to have him wait on a landing and have the fire department evacuate him. Obviously this puts the first responders at risk in a real fire. With someone that cannot walk it’s unavoidable, if they can walk it’s risking someone else’s safety. I would, at a minimum. have that conversation with him.
CristinaMariaCalabrese (do the mambo like-a crazy)* February 23, 2018 at 6:49 pm After reading the post, but no comments, my first thought was literally, “What if there is a fire, and a Good Samaritan rushes in to save Drew because he thinks he is a paraplegic? What if that Good Samaritan is injured, or dies? What if anyone, like your mention of First Responders, gets injured or loses his/her life because they tried to save a person who they believed could not walk?” Some might say, “Oh, it was their choice to try to help”, but they have not been given the ability to make a decision based on the truth.
Kitty* February 27, 2018 at 12:02 am First of all, who made this film and are they a reputable source? Could this be tabloid “journalism” or an unfairly targeted “expose”? Second, just because you’ve seen someone walk, doesn’t mean they “don’t need” a wheelchair. That’s actually a really harmful assumption. Many people have conditions that make it difficult or painful to walk or stand for long periods of time. So while they technically can walk, they still definitely need the wheelchair to ease the stress on their body and make getting around easier. I also agree with Alison that either way, it’s not really your business.
Yorick* February 27, 2018 at 11:54 am I mean, if he says he’s paraplegic but then can walk, that’s not the same as someone who can walk a few steps but still needs a wheelchair.
Gwendolyn Dunne* March 2, 2018 at 2:52 am I am a crybaby, it sucks. I started seeing a therapist when I was 11 for my ‘hyper sensitivity .’ Trying to be a respected professional is a real challenge because anytime I want to discuss an issue that affects me, the waterworks start. No matter how good I am at my job, these leaky eyes destroy everything.
JustOnePersonWithBIID* March 4, 2018 at 1:44 am OK – I have to take a break from reading this fascinating discussion and chime in. First of all I want to acknowledge that the level of compassion and curiosity expressed in most of the comments is encouraging. This condition is very difficult to live with, and to see so many people recognize this rather than vilify us as comment threads tend to do actually brought tears to my eyes in a good way. Second – there is so much here that I could write a book in response, or at least a long essay, but I want to keep it short. So I will focus on a couple things that seem to be missing from the discussion so far (at least the parts I have read). 1. There is no known effective treatment for BIID (Body Integrity Identity Disorder) other than acquiring the desired disability or living as if you have the desired disability. Good recent review article in the Journal Lancet Psychiatry (unfortunately behind a pay wall currently): http://www.thelancet.com/pdfs/journals/lanpsy/PIIS2215-0366%2816%2930265-6.pdf Editorial in the same journal based on this article: http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366%2816%2930381-9/fulltext I saw quite a few comments speculating on whether Drew was avoiding treatment for his disorder. Regular mental health interventions like psychiatric medication and therapy can help with the depression and anxiety that can result from or be exacerbated by dealing every day with such a mismatch between what your brain says your body should be like and what your body is like. Unfortunately, these treatments do nothing for that underlying mismatch or to decrease the desire and obsession. Could there ever be a cure for BIID? Well, it’s pretty rare and the active research on it is focused on understanding it better rather than curing it although there was at least one trial of a novel more neurological type intervention that was ineffective. Does BIID need to be cured? What if society were less ableist and more accommodating. Then adding just a few more disabled people to the mix might be considered more acceptable. Living as if you have your disability or actually getting your disability can make a person with BIID not just happier, but also more productive, better able to concentrate, more confident – just overall more effective and a better employee too. 2. “Wanting a disability” or “choosing to be disabled” are common expressions when talking about BIID, but having BIID is NOT a choice. The specific disability needed is not a choice although a person’s understanding of that disability can evolve. We do choose how to deal with our BIID as responsibly as we can given limited options. I have had these feelings for as long as I can remember. I feel like I was born this way. When I was 4 or 5 years old I saw kids on television whose bodies matched what my brain had been telling me my body was supposed to be like. That’s when I recognized how I was supposed to be, “my disability “. Most people with BIID have similar experiences. For Drew his disability is paraplegia – probably his brain is telling him he shouldn’t be able to move or feel his legs – so paraplegia is a shorthand way of expressing this and something other people can understand as well. I and everyone I know with BIID are acutely aware of how becoming disabled or even just living as if we’re disabled can impact our friends, families, and society. Depending on the particular disability it can get quite complicated. The last thing I want to do is take resources away from other disabled people or intentionally offend anyone with a disability. Disabled people I have discussed my BIID with online have various reactions ranging from accepting to curious to offended. Those that are initially offended are not once they get to know me. Are suppressing BIID or just trying to ignore it or hoping it goes away options we can choose? I think everyone with BIID tries those options at some point. I know I tried for many years. For me for many of those years this resulted in almost daily intrusive suicidal thoughts. Those suicidal thoughts disappeared once I began engaging with my BIID. 3. BIID is a very confusing and stigmatized condition. This leads to the contradictory impulses to be very private about it to protect careers, families, and relationships and the impulse to increase awareness about it in hopes of reducing the stigma. That can explain why Drew might not want to fully disclose what is going on to everyone at work, but then later appeared in a documentary he probably hopes can contribute to decreasing the stigma. Someone in this thread commented that people with BIID have not done the years of hard work that transgender activists have. This is true. Of course there are lots of differences between BIID and transgenderism, not just the lack of activism. Although it is impossible to know how many people have BIID, in part due to the stigma, it is probably far fewer than people who are transgender. The weirdness and degree of taboo are different too. I think this is due in part to ableism, but it’s more complicated than that. Currently the stigma and misunderstanding of BIID is such that every time you come out to someone about your BIID, if you ever even do, it is a tremendous risk. It can lead to ending marriages and becoming estranged from your family. It can also be a tremendous relief to finally reveal your true identity to the people closest to you.
JustOnePersonWithBIID* March 4, 2018 at 2:08 am OK – I have to take a break from reading this fascinating discussion and chime in. First of all I want to acknowledge that the level of compassion and curiosity expressed in most of the comments is encouraging. This condition is very difficult to live with, and to see so many people recognize this rather than vilify us as comment threads tend to do actually brought tears to my eyes in a good way. Second – there is so much here that I could write a book in response, or at least a long essay, but I want to keep it short. So I will focus on a couple things that seem to be missing from the discussion so far (at least the parts I have read). Despite my efforts, my comment got too long so I will need to post it in several chunks.